Originally Posted by Blooie
In our case Kendra's SB was a direct result of Depakote (valproic acid) used to control her mom's seizures. It's also the med that resulted in Katie's problems but hers are relatively mild - mild autism, one rib missing, and asymetrical hips. Unfortunately Depakote is the only medication that controls Jenny's seizures. So in her case she could have mainlined folic acid and it would have made no difference. Since Kendra was born, I've become militant about telling every young lady not to wait until she's planning a pregnancy - I believe every young woman of childbearing age should take a folic acid supplement. Kendra was totally unplanned....it took the kids 11 years to conceive Katie and her OB told Jen that it was unlikely she would conceive again. After Katie she made sure! We owe a huge debt to you, Cynthia, and so do millions of healthy babies all over the nation.
Depakote! Have a sis that was on that for yrs. for seizures. Mentally handicapped. When my mother passed, I had her for a couple of yrs. First thing I did was see that she was not taking this prescription like she should..wondered about it..took her to a specialist. Mom had been taking her to the same Physician for yrs. Years on this stuff. When the Neuro saw her, put her on something different. He couldn't say enough bad about Depakote. Long story short..she still didn't take this all of the time. I was leaving it up to her to take her own meds..she did..supposedly while living with mom. Well, I wasn't seeing any seizures..she had had the mild starring type. Started when she was very young, 3 yrs of age.
I took the bottle out of the cabinet. She didn't even notice it gone for about 2 weeks! I told her, she is fine. She was fine! No more seizures. When she was on the Depakote, she would go take it when she wasn't feeling well..I'm sure, there were withdraw effects. I remember taking her to the dr. for a sprained ankle. Her dr. for yrs. He went over a few things. When I told him, that she wasn't on any meds for seizures, wow, you should have seen his face. Yep, all those yrs. with that stuff for nothing.
Your daughter needed these meds. Lisa didn't. That dr. just kept giving her those meds for over 30 yrs. :/
Just sharing. Not sure the meds did anything to her. Saw the word Depakote up there..lol...had to vent. Some drs.!
Anyway, see this is new news to me. Wonderful the things they are finding out. It's been since the 80's/90's since I've done anything with awareness. This is great to know! Needs to get out there more..I didn't know!?!
Lots of info on it, and a lot have to say they don't know for sure, then they suggest it could be this or that. :/
Edited by Cynthia12 - 3/13/16 at 2:34pm