Anyone have experience with hospice?

I am sorry to hear about your mother. Both my mother and father benefited from Hospice care during their final days. My mother had Alzheimers and died in a nursing home and hospice was a comfort to my father and me during the two and a half years she was there. (My mother was beyond caring). A few years later my father had hospice care at home. (He had cancer and dementia and by then I was living with him)

Before hospice my father was in excruciating pain. Within 24 hours under their care he was pain free. At the time, hospice required a doctor's opinion that a patient had less than six months to live and my dad's very nice doctor signed off on it. The Hospice team included a chaplain, a social worker and a nurse who came to the house. The nurse made sure my dad was comfortable and addressed any medical problems. The social worker and chaplain were my support in a very difficult time and I don't know what I would have done without them.

I will be forever grateful to Hospice for being there for me and my family.

My thoughts are with you.

the rules change in different areas and different organizations, in my area it must be a year to live or less, that being said sometimes the person dies sooner, and sometimes they die several years later (like I heard of one whom had hospice for 6 years and finnaly died of something else).
 
Did everyone have 100% fantastic experiences? No issues at all? I feel like we are being made to change everything to accommodate those at hospice. That my mother's happiness and dignity are secondary.


My family had a 100% positive experience when we chose hospice care for my mother during her last year. Her quality of life improved immensely when the goals shifted away from prolonging her life. She was allowed to eat again after having been on an extremely restrictive diet, for one thing. Her health improved enough that she was discharged from hospice. She returned to long term care, and the cycle of repeated hospital stays was broken.

My condolences to you and your family as you navigate this time with your mother.
 
We went through hospice with our grand father and thought it was the right thing for him.... He didnt want it but the doctors, nurses had talked us into it bc we didnt want him in pain etc.... After all said and done, we wished we would have NEVER went with them. They quit feeding him bc he was not getting nothing out of it but kept him on liquids.... He survived another 3 weeks with no food until he starved to death. It was horrible... We should have just went with out it bc it would have been a lot faster and not as painful to go through. for him and for us to watch someone starve. This has been a big eye opener to what hospice really is and i would never recommend it. Seems all it is , is just another money maker off your loved ones.:( Some others have liked hospice so i guess it all depends on their situation...but i will make sure to put in my will, No hospice under any circumstance. IMO only.
 
Did everyone have 100% fantastic experiences? No issues at all? I feel like we are being made to change everything to accommodate those at hospice. That my mother's happiness and dignity are secondary.

What things are being changed? Is it equipment being brought in? The people? How things are being done to mom such as feeding, bathing, getting dressed? Is it just the change of how mom's home looks and feels that you are not liking or something in the care of mom?

My Unk had ALS and hospice care. Things were brought into the home to make it easier to do daily things for him. And eventually yes a hospital bed. So the "feel" of my auntie's home was different but the care for unk was outstanding. And it also helped tremendously auntie being able to do more for unk herself instead of feeling like she couldn't even take care of her husband.
 

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