Originally Posted by fisherlady
Originally Posted by wingstone
Fisherlady, what your sister goes thru sounds very similar.....no matter how many times it is removed, it will always grow back, they can not remove all the cells from inside the bone, those abnormal cells eventually form the tumor and eat right thru the packing material from the last surgery, then you start all over... I do have the scans done every 5 years, it has been 7 years since my last surgery and there's some swelling around the scar tissue lately,,,the biopsy was just to be on safe side since I would like to put the next surgery off for awhile..
would love to hear how your sister deals with the issues that come with these things.
She had to go on disability 13 yrs or so ago after she had part of her skull removed due to a tumor on the underside of it, she still gets symptomatic (Kind of like a minor stroke effect) when she gets tired or sick because of swelling that can happen. She has had tumors taken off of her jaw, multiple times from rib cage, had to have her femur rebuilt due to a tumor which had weakened it too much and same with one knee joint.
Pain meds, steroids, anti inflammatory meds and frequent rest cycles are primary management.
kind of think these are some of my issues lately,,,,my leg is weakened from years of surgeries, I have put on 40 pounds in the last year and I work 12 hour shifts on a cement floor with heavy steel toed boots on...Oh and I am not 29 anymore....this all adds up to way to much stress on a bone....
give your sister a hug,,, I understand her pain....and I am so thankful that mine is in an area that can be easily controlled.....really for me the worst case scenario would be amputation at the knee,,,,,when you think of what others face ,,,I am one of the lucky one's with this..