Originally Posted by Fancychooklady Agreed. It's not until you are really sick that you realise how isolated you are. Knowing your legal rights is also very important. After spending 12 months in Hobart hospital they paid for myself and my husband to fly to Melbourne , they then paid for accomodation for 3 months before I was admitted to the Austin centre for a further 6 months.this was all possible because my state health system was unable to provide me with the help that I needed and tassie has an agreement with the organ transplant organisation in Victoria. I was on palliative care at that stage and without my husband none of this would have eventuated.
Having said that , the care that I received at the Royal Hobart hospital was second to none. They just didn't know what to do with me.
It rained all night here , I didn't sleep through worry about the goats and cows down the back. This morning the mountains are covered in snow and the sun is shining . Wouldn't be dead for quids.
Originally Posted by MyHaven An advocate is what saved me too. I started in Dysart hospital. Remaining undiagnosed for a week. Then incorrectly diagnosed and sent to Mackay Mater hospital where the surgens nearly killed me through botched surgeries. The worst part was they "accused" me of have depression and lectured me, when I was turning septic and developing peritonitis. The Flying Dr service took me to the Princess Alexandra in Brisbane and my lovely Dr's Coen and Meed saved me. It seemed they did it with ease when I wasn't expected to survive before their care.
I paid a fortune for the private care but the PA took me as a public patient.
The other thing I learned is to not just think it - say it.
In Dysart they said, "we need to send you to Mackay for emergency surgery, can make you're own way there? You are not sick enough for the chopper" I thought how sick do you have to be, but didn't say it. Luckily a nurse off shift travelling back to Mackay volunteered to drive me. She didn't want to have to put in a nasal gastric tube. I didn't want her too either. HaHa.
I have never seen snow. I really should put that on a bucket list.
I said it before - you have both been in the wars, healthwise, but didn't realise just how bad it all was for both of you - at the times these horrors happened.
Really terrible, but here you both are now, hopefully hale and healthy. Yes Fancy - doctors are human and make mistakes, understandably. Some however, make those mistakes with arrogance and attitude. We are not there to placate them if they have problems, they are there to do a job and do it as well as humanly possible - and with compassion. Have struck two doctors who have acted badly, both with a ' I am a god' complex, one of whom I considered reporting to the AMA for very inappropriate behaviour. I didn't report it - would have fallen on deaf ears at the AMA.
Which is why we need to be so very vigilant, careful and help ourselves, by learning, and understanding as much as possible - and by asking a lot of questions, no matter how trivial they may seem.
So many people are afraid to ask doctors questions - ( not something I understand really ) - and it can be to their detriment to not open their mouths, through fear or awe.
To have sensible, loving support is essential, but that sometimes simply does not or can not happen, for whatever reasons.
So glad to know you both - two very brave ladies.
Edited by Anniebee - 5/4/16 at 8:25am