Blooie, I find myself checking for updates on your grandkids and on Not-a-farm's grandson, then it occurred to me that we might be intruding on your children's privacy.
Are they okay with this?
I hope Kendra is still recuperating well and that the surgery pain is tolerable for her.
My daughter and SIL know I am keeping my BYC friends updated....just like they are keeping their college, work, personal friends updated. If one person can learn something that will help them recognize a problem early-on because of what Kyle is going through, the kids will know that his trials are making a positive difference for some one. They have posted his saga on fbook and because they did, a college friend posted about a boy on her block, just last year, that had a Wilms Tumor that was Stage 4. One year later he is cancer free and healthy. That gave them great hope, even before the pathology on Kyle came back. I've always hated fb but when all this happened and my DD was trying to message a zillion people, I told her to post it there. The more people knowing and praying the better!
Sharing our burdens is what we are suppose to do. Helping each other is what we are suppose to do. Lifting up, not tearing down, is what we are suppose to do.
Ditto what @Jessimom said about the community of people that are involved in some way with children (and now for us, adults) with disabilities. They are great! I have a niece born with Cerebral Palsy and a 30 year old son with Down Syndrome. We know how important support is from our experiences with them.
There can never be too many prayers!!