Most of you know that I have a very handicapped son who is nearly 30yrs of age. We have been trying tog et him perminent care as we are getting older and he is getting more difficulet for us to look after and meet all of his ongoing needs. Well - honestly it has been like wading through glue to get this far. - I am not sure how adult services work in the US but here it is dead slow! This is crazy and I wanted to share it for some input from my BYC friends. Last time we met with Social services - they told us that our child could not stay longer than 2 hrs at the supported living unit we are trying to get him into because the unit cannot feed him? WHY? Because on his notes which they have not updated since he was about 9yrs old said he had to have his food minced up ( blended?) Anyhow this is total nonesence as I have been caring for him for nearly 30 yrs and he has not had blended food since he was a baby! He eats like everyone else only I have to be careful of certain things like you would for any toddler really. You knwo cut up food in managable chunks and not feed him anything that may cause an obstruction if he seizures etc. Other than this our boy loves normal living - he goes out for dinner and his respite center take him for chinese and all sorts. The day care has had him out for fish and chips and everything ( I know this as I have had to sign the parental concent forms.) I am darn sure they never took a blender. Anyhow we told them that our boy eats everything they are very keen to emphasise usually that we the parents are "the experts"! lol. This time they insisted he has his eating assessed! ( I found this a bit insulting as I have fed him good food for all of his life and not once has he ever choked on anything.) ANyhow they came today - we had to threaten them with legal action as they were going to put him on a waitng list that would take us into the new year! We got them out today. - 2 girls looked like they just dropped out of high school. One started to explain how to put on a nappy? Yeah right? Bet the girl has never had a baby let alone changed a near 30 yr old especially hard when he is bitting you in the head while your trying to put the dipper on in the middle of the night! - Then she started to tell me how to feed my son and what to seed him and how to chop it up and all that? I felt like slapping her face and throwing her out the door! The other girl that came was supposed to be a nurse. - I guess one of these new nurses we have who go to college a few years and think they know everything! At the meeting she said she was not qualified to take responsibility to tell the supported living unit how to feed our son and then 10 mins later told them they count give him his Jaffa cake biscuits only if they were cut into 1 cm cubes? - ( Either she is responsible or she isn;t ? Either she is trained or not?) Anyhow that aside supported living phoned up on Monday to say they would take him after day care for a few hours. He didn;t have some things with him extra dippers etc. So I dropped them off at the day care. - Once there I realised I had forgotten his Epistatus ( Epilepsy meds.) - I knew the day care had some of his meds there so I said to them to send it with him to the Supported living unit. They flat refussed ! This meant the lad went without his meds? Meaning in short that they didn;t care if he has a major seizure and dies in the bus or at the Supported living unit as long as he doesn;t choke to death on a Jaffa cake! I was so mad I sent a message with more meds the next day. I said those Meds were not to be removed from his bag (normally I would be a responsible parent and tellt ehm about Meds in bags etc for safety of other disabled. So they could lock the meds up) This time I said if the Meds are removed I would get a solicitor on the grounds that they have witheld life saving meds, failed to provide a duty of care and prevented my son from basic human rights to access his meds. After all they are perscribed to him NOT THE DAY CARE CENTRE - well they have now agreed to lock his bag up. SO they now have two loads of epilepsy drugs - one they keep in a cupboard and I guess stroke every now and again? What a wast of tax payers money. Well the little chlld nurse who came to the house today started a whole things about the day care not being able to sign out controlled drugs etc as it is "their policy!" naturally I tore her throat out and bashed her brocken body up and down the street ( In my mind of course!) - Hubby was a pathetic wast of space trying to maintain the peace by siding with the box ticking brigade! I was very mad indeed that thay could leave an epileptic boy with a history of status with heart failure without his meds because of a box ticking excersize! If our son had of had a seizure on the bus or at the supported living unit and his meds were not available ( because the Day care wanted them as an ornament! and were *** covering) Then what would have happened he could have been at risk certainly especially with his previous history of heart failure - Mental note - He has NEVER HAD A HISTORY OF CHOCKING OIN JAFFA CAKES! - UGH!!!!!!!!! Anyhow once they left of course had a big fall out with hubby. over his understand of the *** covering for begginers brigade! I was so mad I told him I didn;t care a hoot about their darn box ticking *** covering - I cared about OUR BOY and his right to have access to his lifesaving meds all of the time! So now I am stressed and have endured a day of these little jumped up teenagers telling me how to feed my son and even how to put a darn dipper on - DH doesn;t understand why I am Mad? They are only doing their job he says vainly as I sceem at him - that I am DOING MINE - LOOKING AFTER THE INTERESTS OF OUR CHILD! Not worrying about some child nurses arse! or a day care centres obsetion with holding onto other peoples meds like they are planninng to sell them on the back market! I need a cofffee - mentally tearing heads off and hiding the bodies in the chicken coop hoping the girls will eat the evidence! Oes ok rant over some one say something before my chickens get fed a big dinner!