Myasthenia Gravis - does anyone have this?

Discussion in 'Family Life - Stories, Pictures & Updates' started by Hillbilly Hen, Jun 30, 2010.

  1. Hillbilly Hen

    Hillbilly Hen Overrun With Chickens

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    I just found out last week that I have this. Just wondering if anyone else here has it and how they cope with it? I am just so tired.
     
    Last edited: Jun 30, 2010
  2. turney31

    turney31 Chillin' With My Peeps

    Sep 14, 2008
    palestine texas
    [​IMG]
     
  3. Wolfwoman

    Wolfwoman Chillin' With My Peeps

    May 5, 2010
    Chickaloon, Alaska
    My hubby has it... almost a year now.
     
  4. redhen

    redhen Kiss My Grits... Premium Member

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    What is it?
     
  5. Hillbilly Hen

    Hillbilly Hen Overrun With Chickens

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    it's an autoimmune neuromuscular disease that causes weakness of the muscles.
     
  6. Hillbilly Hen

    Hillbilly Hen Overrun With Chickens

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    Quote:How is he treating his? I am trying the meds but I have a very low tolerance to meds.
     
  7. redhen

    redhen Kiss My Grits... Premium Member

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    Quote:OOh darn.. sorry. [​IMG]
    Is there a cure for it? What kind of treatments/meds?
     
  8. Hillbilly Hen

    Hillbilly Hen Overrun With Chickens

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    No cure, but I have been researching on the internet that some people have to have their thymus gland removed and that sometimes that will cause it to go into remission. The medicine I take causes me to have facial [eye, tongue] spasams. Problem is that there are quite a few meds that I have to avoid because they will make the symptoms of MG worse.
     
  9. Wolfwoman

    Wolfwoman Chillin' With My Peeps

    May 5, 2010
    Chickaloon, Alaska
    What meds are you on? His is the ocular type and hasn't progressed any further than his one eye yet.
     
  10. Hillbilly Hen

    Hillbilly Hen Overrun With Chickens

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    I also have the ocular type but I do have muscle weakness in my arms. I was wondering if the MG is also why I sometimes walk like I have been drinking [I haven't had a drop...honest!] I am taking Mestinon. I will be seeing a new neurologist next week.
     

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