The Mad Ramblings of a Cancer Patient!!

Discussion in 'Random Ramblings' started by CoyoteMagic, Jun 25, 2008.

  1. CoyoteMagic

    CoyoteMagic RIP ?-2014

    I was diagnosed with breast cancer 2 weeks ago. I think all I do anymore is run from Dr. appointment to Dr. appointment!!! Today, tomorrow, Friday and Monday will be no different! Oh and don't forget Wednesday and Thursday of next week too! Sheesh!!

    Today I went for a MRI of my chest. Can you say torpedo tube?! I did good for the first part of the test. Nice slow breathing, kept my eyes shut, so I didn't see the top of that thing not 3 inches from the tip of my nose! When they had me roll over and plop my boo*s down into this box like thing it wasn't so easy. Boo*s where fine. Even being face down was fine. What wasn't fine was the edge of that dang box thing digging into my diaphram!! Let's remember here, I am fat and I have asthma. Can't breath to start with and now I've got a box poking me in the diaphram. "Hold still" "Can't breath" "We need to complete the test" "I can't breath" "Give me 3 more minutes and then I'll pull you out" "YOU PULL ME OUT NOW OR YOU'LL BE TALKING TO MY LAWYER!!" Fire torpedo! After I was able to breath again and get the knot out of my diaphram, I went in for another 3 minutes to finish the test. I was about to wiggle out of there any way I could!

    Ok, left there head over to the surgeons office to pick up my orders to my "port-a-cath" to be put in.(this is where they will put the chemo instead of putting IV's in everytime) I'm trying to catch my breath sitting in the truck but they won't let DH get the orders because he doesn't have my "Healthcare Power of Attorney". (My Mom is the one named on it not him. Love him, but he can be too emotional to make important decisions sometimes. Hey! Everybody should have one of these! And a Living Will!! ) Ok, so I have to go in just to sign a piece of paper, sheesh.

    Papers in hand we are off to the Oncolgoist. We weren't suppose to go here until Thursday but they rescheduled for today. Everybody is falling over themselves about Spook(my Service Dog for another problem). "Oooo she's so cute!" "So well behave." Spook just looks that them with the "You scrub people touch me, I'll bite your arm off!!" look. (she thinks anyone in scrubs is from the vets office) They take us to a room to wait for the Dr. He looks all of 12 I think he is scared of DH. He's acts really nervous but he explains all about the cancer I have and how we're going to cure it. The plan is to use Herceptin (sp?) as my tumor is showing that it has good Her2 receptors. Plan is for 4 treatments to shrink down the tumor, then surgery, followed by a year of Herceptin treatments. There were 2 other drugs that he is going to give me but I can't remember what those ones were. Tells me that I have to have a MUGA test of my heart to make sure it's ok to use the Herceptin with. That gets scheduled for tomorrow. I had a stress test last year and everything was fine so I'm not concern. Off to the lab to have blood drawn. Back to the room because they have to find the non-laytex stuff to use on me, sheesh! Blood drawn, am signed up for Chemo Class tomorrow at 2, MUGA test at 3:30 (plus I have to get a chest xray sometime for a different doc!) Chemo starts on July 9th and then on the 10th, just to make sure the meds don't cause me to croak with all my allergies.

    Leave there, go home, drop off DH at work, and take a power nap. Up and out the door an hour later, back down the mountain to the urologist office, Pre-op visit.(I've got a kidney stone I have to get rid of before we can start chemo) Leave there and go to the hospital for 2 Pre-ops (the docs can't coordinate the 2 procedures on the same day, sheesh!) I'm stuck yet again! Someone needs to check to see if I have any blood left!! EKG, Normal. Yes I do have a heart! Chest xray I mentioned earlier is scheduled.


    Tomorrow is Chemo class, MUGA, and chest xray. Friday is the gyno, just need to get that checked too. Monday is kidney stone surgery. Tuesday NOTHING!!!!!! Wednesday asthma doc and breathing tests. Thursday is port-a-cath surgery. Then NOTHING FOR 5 DAYS!!!!!!!! Chemo starts 2 weeks from today.

    That's what I'm doing on my summer vacation. What are you doing on yours?!!!
  2. Chirpy

    Chirpy Balderdash

    May 24, 2007
    I have absolutely nothing to say except that I will absolutely keep you in my prayers as you face each day. And, I'm really sorry that this is how you have to spend your summer vacation.
  3. bluie

    bluie Songster

    Aug 18, 2007
    OMG, you have a lot on your plate. You sound like you have a really good attitude about everything though. Real matter-of-fact, nonemotional attitude and that's what will get you through this thing. I am so glad that your tumor has the right receptors for the drug they want to give you. Best of luck and you will be in my thoughts. Keep us posted on your progress.
  4. tnkinhunting

    tnkinhunting Songster

    Feb 7, 2008
    East Tennessee
    I have had that same experience in 2004 and again in 2007. My experience in 2004 was almost identical to your schedule - I still have my port-a-cath - I am afraid to have it removed - I may need it again. I had a modified radical mastectomy with 20 lymph nodes removed - 15 were positive for cancer and I had 16 weeks of chemo and 25 radiation treatments and started on Arimidex and took it until April 2007 when I discovered another lump in my remaining breast. Now this was also cancer but a totally different type of breast cancer. My first one was hormone receptive this new one was an aggressive but after a sentinal node biopsy which determined it had not spread to the lymph nodes so I had my second mastectomy and 12 chemo treatments of taxotere and began taking Femara. I have blood tests every 4 months now and I am cancer free. Thanks to God.

    You can handle this - you can and will beat this disease - at times you will feel so "why me" but don't ever give up! If I can help you in any way, let me know. Feel free to email me if you have a question or just need to reach out to someone. Know this I will pray for you and your family.
  5. arlee453

    arlee453 Songster

    Aug 13, 2007
    near Charlotte NC
    Oh, Coyote - my thoughts are with you as you start down this road!

    Keep your chin up, and keep us posted!!
  6. Tuffoldhen

    Tuffoldhen Flock Mistress

    Jan 30, 2007
    You have alot to face and I know where you are coming from...hang in there and have alittle humor when taking it all in... I have been in your shoes being poked and prodded...its not are in my thoughts and prayers.....
  7. Dixiedoodle

    Dixiedoodle Songster

    Apr 14, 2007
    Sounds like you need a sec. just to keep you going in the right directions! I will keep you in my prayers---And hope you will post often during your recovery... Do you have lots of books? It's the one thing that kept my sister going..
  8. Poison Ivy

    Poison Ivy Songster

    May 2, 2007
    Naples, Florida
    I just wanted to let you know I'm sending you Postive Thoughts & Prayers. Wishing you the Best in the days ahead.
  9. jeaucamom

    jeaucamom Songster

    Oct 1, 2007
    Ophir, CA

    I was diagnosed in 2004 and next March is my 5 year all clear. You WILL be here in no time. It is a hectic busy, stressful (to say the least), depressing (understatement of the year), fearfull, amazing time. I say amazing because you will see people rally around you and it will lift your spirit and you will be amazed at your bodies ability to heal itself.

    1. Be good to yourself. Rest. Eat well.
    2. Laugh, it is scientifically proven as good medicine.
    3. Surround yourself with positive people and NO negative ones. Let your friends and family pamper and care for you.
    4. Be VERY grateful you are here in the US and no where else in the world.
    5. Remember when you aren't feeling so great that the medicine is doing it's job and that is a good sign.

    Please don't hesitate to call me or email or pm me if you have any questions. I am also a nurse so I can answer medical questions too.

    Good Luck and be blessed. We will be praying for you.
  10. cyanne

    cyanne Songster

    May 19, 2008
    Cedar Creek, TX
    I just wanted to mention that I work for the American Cancer Society, and if you find yourself having questions about your treatments or maybe you need some financial assistance or a support group or whatever, CALL US!

    That's what all of those wonderful donations and hours of volunteer work are for (gosh we love our volunteers for all the work they do!), so we can help people when they need us the most!

    The number for the national cancer info center where I work is 1-800-227-2345, and you can call anytime because we keep that line staffed with cancer information specialists like myself 24 hours a day, 7 days a week. When you call, just choose option 1 to get through to a real live person anytime, day or night.

    Anyway, hang in there, I know it is tough but there is a lot of support out there in the form of family, friends, and even strangers who are willing to help out. Keep fighting, girl!!!

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