My grand daughter was diagnosed with Lupus at around 4 years of age. She is now nearly 14. Her flare ups have been severe but relatively infrequent. Puberty appears to have increased the frequency. Standard medications have succeeded in inducing remission, and her life has been pretty 'normal'. We are presently in a bad space. On Monday of this week she ended up in ICU at University of Md Medical center. The presumptive diagnosis is Lupus nephritis. She is stabilized and a kidney biopsy for a positive diagnosis was taken on Friday. One small ray of hope is that they did not 'install' ports for dialysis because there was a slight increase in kidney function. We should have a final diagnosis on Monday. I know the long term prognosis and don't need to hear anymore of that. Can anyone give me any hope/help.
She is Asian and adopted. I mention this fact only because of the fact that we know nothing of her family medical history. Friends at a local Chinese delicatessan have told me that the province from which Jenny comes seems to be endemic for people with 'arthritis'.
I knew there was probably a time limitation on the period for which we would have this child, but I hoped for more.
I am the fixer, the helper, the protector of this family and I am lost because I can do nothing for her. I have faith and believe in the power of prayer. I think we need a miracle.
She is Asian and adopted. I mention this fact only because of the fact that we know nothing of her family medical history. Friends at a local Chinese delicatessan have told me that the province from which Jenny comes seems to be endemic for people with 'arthritis'.
I knew there was probably a time limitation on the period for which we would have this child, but I hoped for more.
I am the fixer, the helper, the protector of this family and I am lost because I can do nothing for her. I have faith and believe in the power of prayer. I think we need a miracle.
You and your family are in my thoughts and heart. So sorry.. 
. 
