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Well the news is that - in a few days time social services have finally arranged to pick Dans bed up and move him officially to the Supported living unit. I can;t believe after so many many months and all the years of struggling we are now into our final week of being full time care giviers...

We are still waiting as the process seems to take forever. This last weekend Dan was pretty hard work again what with biting and nipping. He took the skin clean off his carers arms in day care. The poor fellow has had a coat on with the sleves pulled down all week! I feel so bad when Dan does...

Thanks for that. I had a few folk who were very unpleseant and quite nasty about the prospect of us putting our son into full time residential. ( Some said we were dumping him on an already over stretched social care system? Others said we were selfish and should never have brought disabled kids...

The latest news is that a placement has been offered for full time residential for our boy. We went to see it and have said YES ! Will update but right now I am a very happy mummy! It has been a rollercoaster of torture. Oes

Thanks for sharing that thought - Have sent you a pm. Oes

It is a really awful situation I cannot imagine having to go on another 10yrs??????? Oes

Update - After all the talk and thought and heartache Just got the social worker on the phone. She told us the delightful news that there is NO availability for perminent care for Danny for a minumum of 10yrs! That means DH will be 65yrs old I will be nearly 60yrs old and Danny will be nearly...

Thank you for your lovely mail - I am so glad that you diagnosis was wrong and that you are living a really good and happy life. Sadly for Danny it is very different. Danny is very brain damaged indeed and will never be able to do any of the things that you are able to do. I certainly do think...

Thanks for the mails - You ar right of course. I certainly cannot cope with looking after everyone fulltime. I am struggling myself to get about as I am in constant pain too with Fibromyalga (soft tissue arthritus - brought on by stress! ) I know what it is like to have someone paralized down...

Thanks for this mail No accupuncture wont help. The spine has crush injuries (alot of this is from lifting danny) The vertabra are crumbling and collapsing into eachother. This is what is causing the weakness down one side and the problems with falls and dropping things for DH. I am not sure...

Well DH had to go to hospital today. He is having a lot of issues with the spine. They are going to try to inject stuff into the neck and spine in 4 weeks time. I guess they have to monitor his heart. They had said they were not going to do that due to the heart condition. I am wondering about...

I get such a lot of love and care and help and support from my friends at BYC. I don;t know sometimes what I wuld do without you all. Dh is a little better now we are home and has managed to start on a few home projects which I am thrilled about. It was indeed very hard while we were away and I...

Thank you for that... I have been so very exhausted lately. DH And I did try to go away for a while but it was not an experience I would like to repeat. It was far from the easy option holiday that we had been assured it would be. It did give me a great eye opener as to how disabled folk are...

Sorry I have not posted for a bit on this thread. It seems to be taking ages to get perminant care sorted. out. I will have to go look at all I wrote for fear of repeating myself. - Things here have been hard for a bit. DH is now 9 months after his last heart surgery. He is a lot better than he...

They are disabled - they cannot be "fixed" - no it wont "work out". Oes

I wrote that title because I wanted to make a difference between a "normal child" growing up and leaving home. In that circumstance a parent has to as you say "let go." In many ways I have felt that I have had to "give both Danny and ben away". This is because of not only letting them "move on"...

We have the placement secured so it is just a matter of getting through their protocalls. They like to faff about and have lots of Tea visits! Lol but then if we didn;t go to a few Tea visits in the last place we would not have seen how it really was and how awful it would have been for Danny. oes

We told the social worker that eventhough we were desperite for the care we would NOT just grab at the nearest thing given. She seemed to be working on a one size fits all type of thing. But that is not true everone is different and while some folk would thrive in a loud noisy environment Danny...

News from the Oes I guess I owe you all an update. The restbite centre we went to that we thought was right for Danny turned out ot be not so. The reason why this was is because when we went back for the second visit the place had a totally different atmosphere. The residence were screeming...

Sorry I have not been on this thread. Your all so nice and supportive. I am sure by this stage most of you know the reason why I have not been around for a bit. My mother passed away and so we were away over to the mainland for a bit for funeral etc. Consequently I have not even looked at this...