Originally Posted by Jessimom
Hi, I am going to find a quiet evening to go back and read all the posts here. Just a few made me cry. I am mom to a BEAUTIFUL little girl that has special needs. We don't have a reason for why. Maybe a fever I had when I was pregnant. She is on the autism spectrum, slight CP, definite learning disabilities. She didn't start talking verbally until she was 12, but when she was 6 she started using American Sign Language. She wasn't potty trained fully until she was 8. She is 16 now - wow time sure flies.
She had a MAJOR delay when she was little in interpreting sensations. For example, when she was 2, we saw her slam a sliding glass door on her hand (within 72 hours slider was gone, french doors put in). After slamming the door on her hand, she crawled over to some toys, started playing, and about 2 minutes later started SCREAMING. It took that long for the pain sensation to reach her brain, and have her brain send out the message that OUCH, that hurt. Unless we SAW something happen to her, we would have no way of knowing what happened, or why she was screaming, Made things interesting. Thankfully that isn't an issue anymore.
She ADORES watching the chicks hatch. Loves watching the babies in the incubator. Once they move out to the brooder, she loses all interest. Loves looking at pictures of them, but doesn't care about going to see them or care for them. She will help us feed the cats, feed the dog and feed the fish, but not the chickens.
She loves having the dog sit with her all day, but at bed time, the dog has to leave the room. We don't know why. She has to have a cat on the bed with her before she can sleep. That doesn't always work out perfectly.
She is unique, and the love of my life! She has made me look at life differently. I am a happier person.
Welcome! Glad you found this thread.
So, she is 16, time does go by doesn't it? Sounds like you have already been through a lot, and have conquered a lot. Having these special children really is a blessing. I would never have thought that I could do something like this..my mother did..I watched, I helped. I took my little sis and my mother to this very Children's hospital, saw these children walking with crutches, walkers, or in a chair. .. never knew what they had..never knew that I would have a child with this birth defect and someday be coming here ... often. All I would think was, what little cuties they were, and how amazed I was with how the parents were with these children. How loved these children were, and thus, how blessed these children were to have these amazing parents.
When my son was born, there were two drs. there to visit with me after his birth. The neuro was actually there, and a pediatric dr. was there. I was lucky to have them there..well, one at least. The neuro went down a looong list of what my child's outcome could be. He could have a heart problem. He would probably not walk. He would probably have learning disabilities. He would probably have many many surgeries for this that and another thing by the time he was 14, and he went down the list of what they could be for. I couldn't believe how he ended up his little talk. So, he asks...should we do the surgery or not? Meaning, or, should we let him die. I immediately said, I heard my baby cry! He sounded just like my others that I had. Normal. Then I asked, will he be able to sit up? The pediatric dr. stepped right in and said, oh yes, he is only paralyzed from the waist down going by where the opening is. I just looked at my husband standing there beside me on the other side of the bed. Then said, if he is meant to live he will, the Lord will bring him through this. Well, then, the neuro says, well, give me some credit won't you? I wasn't in the mood for light conversation, as far as I was concerned, this man was serious. We decided we wanted our baby to live. What a crazy night. What a crazy first few yrs. Then I just got used to it. Figured out how to get things ready pretty quick when it was time for another surgery, and some time spent with our son. Glad we did. What a blessing it has been, as you well know, in so many different ways. Tough, yes. Rewarding, yes! Aren't we just right out proud of our children when they make progress with something? Or something gets better? To see that smile on their faces when they know they have done something right?
Like I said, glad you are here. I'm sure Blooie will be happy to hear more of what you have been through since her granddaughter has some autism also.
Sharing is a good thing to be able to do with others that can understand. Wondering if you ever went to parent/child meetings with others that had children with the same problems.