My leukemia's back.

LittleLakePhil said:

.... Hi Suzie....going down to traverse city next Friday....see little Alice. I'd post more pics but my son hasn't sent me any.he post stuff on FB but I'm not on FB. I don't want to go on FB I'm already here too much.....

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We all want to see the photographs of the adorable little Alice...have a great time seeing her...I admit that I do have a facebook account...don't use it often but Phil's and my Niece send lovely images of their almost one year old Daughter...

I am also in touch with my cousin in Wauwatosa...

I also am in touch with some wonderful friends I have met here on BYC who regularly update me with their personal lives.. I do not have any details that can identify me on facebook... prefer it that way....

Well here's one for now....

Long day! Left the house at 8am, not home until 5pm. Almost like I'm working again or something

Pulmonologist appointment first thing, and it was a good thing I had the appointment already. Woke up wheezy, winded, coughing up crappy stuff. He did an office spirometry and it was decreased. He bumped the prednisone up a little and ordered a nebulizer. I feel so crappy I didn't even fuss at the increase in the steroids.

Hematology appointment was good. My labs look great, everything is going beautifully from that standpoint

Shopping, then picked up two of the boys from school. Echo had a Physical Therapy appointment for an old knee injury and Sugar Monkey had a doctor's appointment.

I was going to go with pizza for dinner as I'd not been home to prep anything. Good thing I didn't have a coupon on me, so I came home first. Honey had stopped at the local butcher shop and bought three smoked turkeys, spending about $65. I''m trying to stay within our budget for food this month, so no pizza tonight! Leftovers did fine.

Hopefully the prednisone kicks in soon. I have nothing going on tomorrow except a trip to the pharmacy, so it will be R & R for me!

So sorry Rachel about the breathing...hope the prednisone helps.
Take that R&R tomorrow. Just spend the day relaxing. I'm going to do that one of these days next week. I just want to pick one day and watch TV catch a couple of movies. Thats what I love about snow storms. But we haven't had one yet.....:/

Good morning everyone,

Phil, baby Alice is adorable!

Rachel, hope the extra bit of Prednisone helps with your breathing and with some extra rest today, you're feeling better.

Rachel, I really hope the bump-up helps - I just hate it when you don't feel well. But as we've learned from Phil's experience, you're probably right on track as far as those post-transplant ups and downs go, so as long as there are still plenty of ups mixed in with those downs it's a little bit easier to take.

Phil, that baby is just too doggone cute! She looks more than ready to meet her Grampa and get some of those Grampa hugs! Just warn her mom and dad not to let everyone sniff all the new off her before you get some!

Snowing like crazy here since last night. Ugh! We have to drive over the mountains this morning for a meeting in Sheridan. If the weather was nice we were going to just take Kendra with us, but since it's crappy we'll keep her until after I do her mid-morning catheterization and then Aunt Tam will take over until Jenny gets off work. That puts us leaving for Sheridan about 10:00 am, so I'm hoping the Wyoming Zamboni Company has had time to hit the roads. Don't understand why the roads are always slicker AFTER the plows have gone through. Granite Pass is at almost 10,000 feet so I imagine the higher we drive the deeper the snow will get. I told Ken if it's too bad after our meeting, then we will be further ahead if we just get a room and stay put. Time was, in our younger days, we just dove in head first no matter what travel advisories were out - too old for that kind of risk anymore.

Well Blooie just be safe. Sometimes getting a room is best.

Blooie, I hear you on the not wanting to risk it anymore. When we were younger, yep, we drove on roads that were closed right behind us, and no way should we have been out there in that mess! Thankfully God watched over us and allowed us to reach the wisdom of a little maturity. I so wanted to go see my family over the holidays, but the roads were too bad. Echo's brother was home on leave and they wanted to go over. I had misgivings, but I remember how it is to be young and invincible, so I let him go. Thankfully, God is good and my boy came home intact. Now, he has great stories to tell about how bad the roads were, and I have re-affirmation in the power of prayer!

Rachel...your up early.
I so hope prednisone helps.
Funny we gripe about it. But that little pill gets us through tough times.
Rest today....stop and smell a few roses.

Phil---it's sure a love/hate relationship, isn't it? All this time I've been pushing to taper, pushing to get off....until I feel this bad, them I'm gulping the little buggers down, side effects be ******. I've got to be able to breathe long enough to get osteoporosis and diabetes and all the fun stuff that can happen . I'm fully aware it's probably mostly mental, but I do feel better this morning. We'll see how chores go.