Today February 29th is the 5th International Rare Disease Day!

[JP101010]

In the U.S., a rare disease is one that affects fewer than 200,000 people. This definition comes from the Orphan Drug Act of 1983 and is slightly different from the definition used in Europe. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease.
Visit http://www.rarediseasedayus.com For more information
Also on FB:
http://www.facebook.com/RareDiseaseDay.US

list of rare diseases

Acrocephalosyndactylia​

Acrodermatitis

Addison Disease​

Adie Syndrome

Alagille Syndrome​

Amylose

Amyotrophic Lateral Sclerosis​

Angelman Syndrome

Angiolymphoid Hyperplasia with Eosinophilia​

Arnold-Chiari Malformation

Arthritis, Juvenile Rheumatoid​

Asperger Syndrome​

Bardet-Biedl Syndrome​

Barrett Esophagus

Beckwith-Wiedemann Syndrome​

Behcet Syndrome

Bloom Syndrome​

Bowen's Disease

Brachial Plexus Neuropathies​

Brown-Sequard Syndrome

Budd-Chiari Syndrome​

Burkitt Lymphoma​

Carcinoma 256, Walker​

Caroli Disease

Charcot-Marie-Tooth Disease​

Chediak-Higashi Syndrome

Chiari-Frommel Syndrome​

Chondrodysplasia Punctata

Colonic Pseudo-Obstruction​

Colorectal Neoplasms, Hereditary Nonpolyposis

Craniofacial Dysostosis​

Creutzfeldt-Jakob Syndrome

Crohn Disease​

Cushing Syndrome

Cystic Fibrosis​

Dandy-Walker Syndrome​

De Lange Syndrome

Dementia, Vascular​

Dermatitis Herpetiformis

DiGeorge Syndrome​

Diffuse Cerebral Sclerosis of Schilder

Duane Retraction Syndrome​

Dupuytren Contracture​

Ebstein Anomaly​

Eisenmenger Complex

Ellis-Van Creveld Syndrome​

Encephalitis

Enchondromatosis​

Epidermal Necrolysis, Toxic​

Facial Hemiatrophy​

Factor XII Deficiency

Fanconi Anemia​

Felty's Syndrome

Fibrous Dysplasia, Polyostotic​

Fox-Fordyce Disease

Friedreich Ataxia​

Fusobacterium​

Gardner Syndrome​

Gaucher Disease

Gerstmann Syndrome​

Giant Lymph Node Hyperplasia

Glycogen Storage Disease Type I​

Glycogen Storage Disease Type II

Glycogen Storage Disease Type IV​

Glycogen Storage Disease Type V

Glycogen Storage Disease Type VII​

Goldenhar Syndrome

Guillain-Barre Syndrome​

Hallermann's Syndrome​

Hamartoma Syndrome, Multiple

Hartnup Disease​

Hepatolenticular Degeneration

Hepatolenticular Degeneration​

Hereditary Sensory and Motor Neuropathy

Hirschsprung Disease​

Histiocytic Necrotizing Lymphadenitis

Histiocytosis, Langerhans-Cell​

Hodgkin Disease

Horner Syndrome​

Huntington Disease

Hyperaldosteronism​

Hyperostosis, Diffuse Idiopathic Skeletal

Hypopituitarism​

Inappropriate ADH Syndrome​

Intestinal Polyps

Isaacs Syndrome​

Kartagener Syndrome​

Kearns-Sayre Syndrome

Klippel-Feil Syndrome​

Klippel-Trenaunay-Weber Syndrome

Kluver-Bucy Syndrome​

Korsakoff Syndrome​

Lafora Disease​

Lambert-Eaton Myasthenic Syndrome

Landau-Kleffner Syndrome​

Langer-Giedion Syndrome

Leigh Disease​

Lesch-Nyhan Syndrome

Leukodystrophy, Globoid Cell​

Li-Fraumeni Syndrome

Long QT Syndrome​

Machado-Joseph Disease​

Mallory-Weiss Syndrome

Marek Disease​

Marfan Syndrome

Meckel Diverticulum​

Meige Syndrome

Melkersson-Rosenthal Syndrome​

Meniere Disease

Mikulicz' Disease​

Miller Fisher Syndrome

Mobius Syndrome​

Moyamoya Disease

Mucocutaneous Lymph Node Syndrome​

Mucopolysaccharidosis I

Mucopolysaccharidosis II​

Mucopolysaccharidosis III

Mucopolysaccharidosis IV​

Mucopolysaccharidosis VI

Multiple Endocrine Neoplasia Type 1​

Munchausen Syndrome by Proxy

Muscular Atrophy, Spinal​

Neuroaxonal Dystrophies​

Neuromyelitis Optica

Neuronal Ceroid-Lipofuscinoses​

Niemann-Pick Diseases

Noonan Syndrome​

Optic Atrophies, Hereditary​

Osteitis Deformans

Osteochondritis​

Osteochondrodysplasias

Osteolysis, Essential​

Paget Disease Extramammary​

Paget's Disease, Mammary

Panniculitis, Nodular Nonsuppurative​

Papillon-Lefevre Disease

Paralysis​

Pelizaeus-Merzbacher Disease

Pemphigus, Benign Familial​

Penile Induration

Pericarditis, Constrictive​

Peroxisomal Disorders

Peutz-Jeghers Syndrome​

Pick Disease of the Brain

Pierre Robin Syndrome​

Pigmentation Disorders

Pityriasis Lichenoides​

Polycystic Ovary Syndrome

Polyendocrinopathies, Autoimmune​

Prader-Willi Syndrome

Pupil Disorders​

Rett Syndrome​

Reye Syndrome

Rubinstein-Taybi Syndrome​

Sandhoff Disease​

Sarcoma, Ewing's

Sjogren's Syndrome​

Sjogren-Larsson Syndrome

Smith-Lemli-Opitz Syndrome​

Spinal Muscular Atrophies of Childhood

Sturge-Weber Syndrome​

Sweating, Gustatory​

Takayasu Arteritis​

Tangier Disease

Tay-Sachs Disease​

Thromboangiitis Obliterans

Thyroiditis, Autoimmune​

Tietze's Syndrome

Togaviridae Infections​

Tolosa-Hunt Syndrome

Tourette Syndrome​

Uveomeningoencephalitic Syndrome​

Waardenburg's Syndrome​

Wegener Granulomatosis

Weil Disease​

Werner Syndrome

Williams Syndrome​

Wilms Tumor

Wolff-Parkinson-White Syndrome​

Wolfram Syndrome

Wolman Disease​

Zellweger Syndrome​

Zollinger-Ellison Syndrome​

von Willebrand Diseases​

 

[Bullitt]

Does International Rare Disease Day only happen once every four years? I am guessing because it's rare.

 

[JP101010]

Does International Rare Disease Day only happen once every four years? I am guessing because it's rare.

Rare Disease Takes place on the last day in February every year. Last year it was on the 28th