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I thought it was just me thinking that it seemed huge. There was no sac around it, it was just blown wide open. It’s amazing that they got the great results they did when they closed it. They put her in a giant plastic bag as soon as she was delivered, and she stayed in it until her surgery the...

I haven't been on in a few weeks either, so I missed your post. You know, as much as I know about Kendra I can't remember! I'll have to ask Jenny. I'm thinking it was lumbar-sacro, but I could be wrong. I know it was huge and wide open when she was born, at least it seemed like that to me...

Just having a few issues, but nothing to be concerned about. I don't know how I missed your response to Kendra's video! Duh, Diane! How's our girl doing? Think of you and everyone here so often!

POKE POKE....Just waking this thread up again! I've been off BYC for quite awhile and have only been back on for about a week. So how about starting off the New Year with a Kendra video? THIS is why she's broken three sets of steel torsion cables...once she hits the couch, keep an eye on what...

I love that boy man!

Oh me too! I have such a soft spot for Richard anyway, having learned so much from the both of you about Spina Bifida as the kids age. Hey, Jessimom! You've got this!!

Howdy, Kiki! They are awesome, as usual, thanks. Kendra was so happy to see us back from South Dakota she was almost talking!! Well, it was mostly babble, but the smile was unmistakable! She was saying, "Good evening, Grandfather. Good evening, Grandmother. It is so wonderful to see you...

Hey, Cynthia!! :love

Oh, my! I've been away for a few days so I'm just now reading these latest posts! I'm so sorry he's going though all of this. You know, if people thing about Spina Bifida at all, they usually just think, "Oh, can't walk...." But it's so much more than that. It's pain and relief, tears and...

Well, I just don't even know where to start. I feel terrible that Richard is facing this! We were worried that Kendra would need bladder augmentation when they did her MACE and Mitrofanoff procedures but they said her bladder was more than adequate. All we can do is hope that it stays that...

Got a couple of "growing up" videos for you.....In the first one Kendra has finally learned to get in the van and into her car seat by herself. When I first started teaching her I praised the soup of out of her every little step along the way. Now we just praise her when she's done - we want it...

Thanks! She sure is!! So are Jessi and Richard and Caleb and Grace and all of the other kids we've been honored to get to "know" - (I just can't remember all the names off the top of my head, although I know who they are and who they belong with! Just getting old, I guess!

Oh, dear! I haven't been here for a few days and I missed this post, so this was distressing to read. I don't know much about stones - aside from the fact that I'd never want one - so I'm not sure how they go about removing them. Is that something they can do the "laser smash" on or do his SB...

Won't get any arguments from me, Cynthia! How's Richard? Feeling better I hope! Jessimon, Australia? And Jess is already 18? Good grief!! We'll need pictures of that trip, that's for sure!!

Hard to read the back, I just noticed. It says, "Everyone's somebody, like me!"

"Autism Awareness Month....because Autism isn't just a word, it's a special little person"

There you guys are!! Cynthia, of course Richard is in our prayers....those doggone UTIs are absolutely awful and now that he's on the right antibiotic maybe he'll be on the mend sooner than later. I don't know why UTIs are so doggone difficult for ER folks to get. It was the same way when...

Oh hush! Most of Wyoming is getting snow and high winds tonight. We are not, and I'm glad! I'm OVER winter! Wonder where everyone is? I invited a super nice lady to join us but looks like it's just you and me, Kikis! Sure would like her to meet the rest of the amazing friends we have here...

Yep, that's how we roll here! Get the hard part done and then she's off! Actually cathing with the new Mitrofanoff she had done last summer is just about that quick and easy! So how are you and your family doing? Ready for spring? I heard we are supposed to get spring on August 3...

So Ken had shoulder surgery yesterday and they sent him home with one of those little breathing thingies. Kendra found it and sat down on the floor with it. I grabbed the camera, thinking she remembered how to this from when she was in the hospital with pneumonia and I'd record it to show her...