Anyone else with fibromyalgia?

[stoopid]

My rheumatologist makes a face every time I bring up disability paperwork.
Too much work for him, I guess.
Maybe if the doctors were in the pain we were.

Funny, alot of the drugs that have been mentioned are in my bottom dresser drawer.
The ones that dont work. It's quite a collection I have accumulated.
I had brought up on this forum sending something to another in need.
I was shut down VERY QUICKLY, and given an infraction.
Even thru PMs, I was told it is illegal, and would be spanked.
So don't bring it up on this forum.
However, a personal e-mail may be safe.

 

[suki'smom]

I take a hot bath every evening and sometimes in the morning too if the pain is bad. If it is very bad I take some over the counter pain meds to take the edge off. A glass of wine in the evenings can also help.

Lack of sleep, stress, and cold or damp weather make it worse. Pushing myself too hard physically also make it worse.

 

[redhen]

Sorry ya'll are suffering..

 

[rrrmamma]

Going through a bad spell right now. Could hardly walk this morning. have been blaming my foot pain on my diabetes,but maybe it is the fibro. The dr . that I have been seeing only wants to treat my diabetes and won't even discuss fibro. Stress is a big factor and I am under alot of it right now. I take alleve, but years ago when I was dianosed I was prescribed Celebrex. It allowed me to work,then they pulled it from the market.It is back but my dr won't prescribe it. I have fallen twice in the last month. My knees lock if I have been sitting too long. Don;t know where that is coming from. I am calling a chiropracter tomorrow and changing my primary care dr too. I need to find out what is going on and if there is anything to help. Right now I have the support of a wonderful husband and the chickens that force me to get up every day to care for them Sorry I don't have any answers.

 

[six_eclectic_chickens]

Have any of you heard of Dr. William Davis' book "Wheat Belly?" I have had body aches and pains for years, and the diagnositic criteria for fibro, but after reading this book decided to try a wheat free (not necessarily gluten free) diet, and I have had a dramatic improvement in body pain (and many other problems, like fatigue, poor sleep, mental fog, depression). Google it and read some of the stories on Dr Davis' blog, and give it a try. I haven't felt this good in years. Sounds crazy, but I encourage anyone with widespread body pain to at least try it.

 

[lwarfield]

I too have fibro along with Lupus, Hypermobility syndrome and alot of other fun side disorders. I used pain relievers (strength depends on pain level), heated blanket, whirlpool tub and rest to help deal. I spent 3 years pretty much laying in bed before my stubborn streak kicked in and I started fighting back. There is nothing that takes away the pain and discomfort but I try to stay as positive as I can. As silly as it might sound to others my silkies help. Sitting there watching them eases my mind and I can relax somewhat.

 

[rrrmamma]

Just an update. I was pretty much housebound for the last 3 weeks with a bad flare. I would get up and feed the chickens then cone back in and sit on the couch. I finally couldn't stand it any more and was very depressed. My DH pushed me to find a new MD. I spent the day on the phone and couldn't find one that was taking new patients that would be covered by my insurance. I saw a listing for a chiropracter. I had a regular chiropractor when I lived in CA Took a chance and went in to see him the next day. DH drove me because I was in such a fog that I couldn't drive. He couldn't believe his eyes when I walked out after one treatment. The fog was gone. I felt like I had had 8 hours sleep. I was walking without pain. I went back yesterday for a second appointment and I am even better. We walked a huge flea market today. I am tired,but no major pain. Has anyone else tried chiropractic?

 

[chicklady2012]

I seen some lotion at my local feed store . its called something like" this old goat" . not really sure its a blue bottle . my 80 yr old.grandmother has fibro. next time.i go I will get the exact name.for yall!

 

[justbugged]

I way over did things last weekend, and I spent the past 4 days paying for it. These days I have been having a lot of troubles with my hips. It makes sleeping difficult. There isn't any comfortable position to lay in any more. At least the weather has warmed up around here. We have finally gotten up to 90 degrees for the first time in over 2 years. I do feel a bit better when the weather is warm.

I have thought about eliminating wheat out of my diet. I rarely eat bread when I am on my own. (My DH travels most weeks for work, so I usually live alone during the week.) I have never noticed any difference between when I am eating a lot of wheat, to when I am not eating it. I have also tried a vegan diet, for nearly a month, and didn't notice any change.

I have tried chiropractic treatments in the past. My insurance isn't very good for it, so I am not currently seeing a chiropractor. I should have married a chiropractor. I could get treated multiple times a day, and always have something that needs to be put back where it belongs. The treatment doesn't make much of a difference.

I have tried Soma massage. That help some. The massage is at times very painful, but it does change the way it holds it's self. Once again though the only way I can afford the massage sessions, is because there is a local school that teaches the Soma massage style. I have volunteered to be a model for a student twice now. But at 50.00 a week for 10 week it is a lot of money out of pocket.

I have also tried trigger point injection without any benefit. I think the doctor got fed up with treating me because it never made anything better.

I am very open to any ideas that could make things better, but to date I haven't found anything that makes any kind of difference. I still looking and am willing to try new ideas though.

I must say that after trying some of the drugs that are marketed for Fibro, I am very leery about trying new drug. I have had bad reactions to a number of them. I do know that for me antidepressants all tend to make me very depressed. I am much happier without those types of drugs.

 

[downsm75]

I have tried every med for fybri and NOTHING seems to help. I also have bursitis in my shoulders. I drove a school bus for 10 years and HAD to quit due to the pain and the fact that my fingers swell constantly (it's hard and painful gripping a steering wheel). I have no idea what kind of employment to seek because it hits often and I can't sit down sometimes due to "hot spots" on the back of my legs. Jaw pain has become a HUGE issue lately...