Had a disease/injury and failed to realize that you had it?

[feather and mountain man]

I hurt my foot falling down the stairs and it swelled up and turned black and blue I could bearly walk but I went to work and worked on it for three days before I realized I might need to go to the Doctor.

Well sure enough broke in three places. Doc laughed at me and could not beleive I walked on it for three days. I told him when it hurt real bad I would prop it up and the black and blue would go away. He said yeah that should have been a huge clue to come see him.

I am so smart sometimes

 

[Skittlez]

I have Osteo Genesis Imperfecta. In English, brittle bone disease. I fall down the stairs, fall up the stairs, trip on cracks in the sidewalk, etc. and have hurt my back many times. When I was 16, in May, I wrecked my moms car. Oops- My back hurt, went in for an xray, doc says "Have you ever broken your back?" I say "No." Xray showed multiple white lines on the surface of my spine. Old fracture scars. Never knew until then. Then at the end of June (same year) fell off my horse and broke my ankle. I knew that was broken, but I had a full body xray and I had also a broken hip and fractured pelvis. My hip didn't even hurt, until my ankle was healing. I guess the pain of the ankle masked the pain of the hip. Took me 2 yrs to heal. I still have a hitch in my giddy up.

 

[pbjmaker]

Quote:
Cool - someone who has met my child

She couldn't stand certain "types" or "tones" of music when she was little but loved Southwest Indian Flute music. It was like the music that tamed the beast. And she WAS a beast as a small child. At 16 she has learned how to cope with the things that bother her. For a long time she would wash her hair and then stick her hands out of the shower because she couldn't stand the "feeling" of her hands being pruney when the rest of her skin wasn't

She is a typical teen if not a bit fidgity and I am glad I have never drugged her or labeled her. She has just figured out what works over time.

ETA: sorry to get a bit off topic - it's not often someone has heard of SI

 

[welsummerchicks]

I don't know of any medications that are even recommended for sensory integration disorder. Sometimes it occurs with other disorders that might need medication, but specifically for SID, I'd have to study up on that, but I think no.

 

[pbjmaker]

Quote:
We were given a bunch of physical things to do with her from the OT at school - they were wanting me to get her diagnosed with ADHD since her older brother is. She WAS a straight A student though and just annoyingly fidgity at the time. The OT nixed the whole idea and said she doesn't need that.

She also gave me a sensory brush that she still likes on occasion. She enjoys swimming and running to calm herself now.

 

[welsummerchicks]

OT is always going to go with an OT solution, a surgeon is going to go with a surgical solution, an internist with something else...as my doc said, 'Sometimes one of them will be right'. ?!!?!?!?!?!?!?!?!?!? Our medical care these days is a frustrating mess many times.

I really wish there was some one other than an insurance company you could go to who would give you an overview of different opinions on treatment, the backing for each option, the pros and cons for each option, and a 'best fit recommendation'

Wouldn't that be nice? I have spent enough to buy a sports car and still don't have a 'clear' picture of options for my messed up neck.

 

[feather and mountain man]

Quote:
Wouldn't it be nice if there was a "Dr. House " at every hospital.

 

[welsummerchicks]

Laurie's character 'House' seems to have too much interest in solving puzzles and saying clever things, and occasionally looking tragic.

My idea is that the best person for the job would care first of all, about doing what is most sensible for the person's quality of life and well-being; secondarily, not spending money that should not be spent.

Example - there was a surgeon who was absolutely delighted to operate on my neck - in fact he'd operate on it once now, three times later, and 'see how you do'.

A little questioning and it was not at all clear that that 50,000 plus dollars (most of it out of pocket) would actually reduce my symptoms. That surgery is his 'baby' - and there is a good possibility that it would be done regardless if it was really 'your baby' or not.

These things get extremely technical, and there are a lot of opinions rolling around - some of them diametrically opposed to each other. Insurance would like you to maintain forever on pain pills or just go away so they don't have to pay for it (I'm convinced most of their procedures are designed to make you give up on having your treatment paid for by them), but a lot of new surgeries and procedures really ARE good and really ARE appropriate.

I feel the insurance companies have too much control over what treatment you get. They clearly have a highly vested interest in you not getting covered, or getting covered for the lowest cost treatment only.

It really is not that easy for an ordinary person to make sense of it all.

 

[sourland]

Not me, but a friend. A friend of mine ended up in the hospital with kidney stones. While in the hospital they determined that there was a mass on the non affected kidney. They treated for kidney stones and biopsied the mass on the other kidney. The results showed that it was malignant. The malignant kidney was removed yesterday. Initial testing indicates that the tumor probaly was not metastasized. Having kidney stones may have saved his life because he had no indications that there was any other kidney trouble. You never know. I do not believe in coincidence. Things happen for a reason.

 

[booker81]

Quote:
I love your posts

I've got the absolute determination to complete the problem "issue" as well, I usually chalk it up to Aspergers

At work today, a programmer was looking for someone to help him understand the connections between users, user IDs, privileges, teams, roles, and a few other things, all found in the tables. Now, we're talking a few thousand users, hundreds of roles, thousands of privileges, and finding the connections of everything in about 50 tables. If anyone knows SQL and DB2, this is what we were dealing with. Now, he's a programmer. I'm not. I'm technically a Business Analyst. I only got table access because I wore my manager down. He couldn't find a tables person to help him, or who understood the connections, they only know what went where, not why.

An hour later (including 1/2 after I was to leave), I found all of the information and how everything correlated and sent it to him.

I'm getting my training next week for the database systems that I was using

What does this have to do for this topic? Probably nothing!