- Thread starter
- #501
donrae
Rest in Peace -2017
Agree the pics of gravy do not look at all appealing
Yesterday was a little rough. Let's just say Immodium is my friend, and sips of Sprite with saltines were my main sustenance.
Today is better, though. Cereal for breakfast, walking the halls, on byc. Life is good! I do have a sore spot starting in my throat, though, and one in my mouth. The nurses say with an unrelated transplant, it's not IF you get sores in the mouth/gi tract, but a matter of how extensive they are. Joy. At least they've got that great numbing mouthwash if I need it, just not sure how to get it that far down my throat without gagging on it.....more joy.
I'll be in the hospital about 3 weeks after transplant, so 2 1/2 more weeks, depending on how my counts and graft vs host disease go. After that, I'm out of the hospital, but have to be within 30 minutes of the hospital for 100 days total, again depending on how things go. So, Mom and I will be staying at a motel close to the hospital. Right after discharge, my days apparently will consist of going to the clinic early in the morning, getting Magnesium/fluids/blood/platelets/whatever else they can pump into me, being there 3-8 hours, then back to the motel for the afternoon and evening. Rinse and repeat, gradually lessening the days in the clinic as I improve. So, not in the hospital for 100 days, but I can't go home for 100 days cause we're too far away. Also, it's very common to have a complication and need to be re hospitalized. Apparently you can tank very fast post-transplant, thus the being so close.
Yesterday was a little rough. Let's just say Immodium is my friend, and sips of Sprite with saltines were my main sustenance.
Today is better, though. Cereal for breakfast, walking the halls, on byc. Life is good! I do have a sore spot starting in my throat, though, and one in my mouth. The nurses say with an unrelated transplant, it's not IF you get sores in the mouth/gi tract, but a matter of how extensive they are. Joy. At least they've got that great numbing mouthwash if I need it, just not sure how to get it that far down my throat without gagging on it.....more joy.
I'll be in the hospital about 3 weeks after transplant, so 2 1/2 more weeks, depending on how my counts and graft vs host disease go. After that, I'm out of the hospital, but have to be within 30 minutes of the hospital for 100 days total, again depending on how things go. So, Mom and I will be staying at a motel close to the hospital. Right after discharge, my days apparently will consist of going to the clinic early in the morning, getting Magnesium/fluids/blood/platelets/whatever else they can pump into me, being there 3-8 hours, then back to the motel for the afternoon and evening. Rinse and repeat, gradually lessening the days in the clinic as I improve. So, not in the hospital for 100 days, but I can't go home for 100 days cause we're too far away. Also, it's very common to have a complication and need to be re hospitalized. Apparently you can tank very fast post-transplant, thus the being so close.
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