My leukemia's back.

[donrae]

Today isT+15.

Yesterday afternoon the nurse practictioner came around and said they needed to pull my central line out as it was the source of my blood stream infection. I had probably as close to a panic attack as I've ever had at the thought. Seriously, having it put in was so traumatic, the idea of getting it taken out had me dizzy, crying, my lips were numb...it was horrible. Phoned my poor honey for a talk-down and got calmed down. Thank you Lord the line came out very easily cause I was thinking it was going to be horrible. Between the drugs they gave me for that and the benadryl for the platelets, I was snoozing pretty good around 11pm when some big hairy man crawls into bed with me......I had no idea Honey was coming up. Unfortunately I didn't sleep the greatest because I was guarding my new IV sites and couldnt' get comfortable with them and him in the bed, but it was okay. He and Sugar Monkey stayed until around 2 pm, had to leave early enough to hit Cabelas on the way home, you know.

So, now off the IV nutrition, off the IV pain pump, waiting for clear blood cultures so they can put another PICC line in and I can be discharged. Honestly, never ever thought there'd come a day when I would have an issue taking in enough calories, but it's such a challenge right now. I used to drink 3 liters easy, now I'm not quite making 2 a day. And food's just not happening. They keep encouraging me to drink "supplement" like boost or ensure, but that stuff's just corn sryup and I can't do it. When I do get some down, it just sets in my stomach and doesn't want to move...yuck. I can't believe they tout that stuff as healthy..

Hopefully discharge around Wednesday. The day keeps changing, so we're just on a wait and see pattern.

 

[Blooie]

Right here waiting for the day, Rachel! What a great surprise, having your Honey sneak up for visit and a snuggle. I'm afraid I would have beaned Ken, though, having no idea he was coming and then waking up to somebody in my bed!

Are your counts still doing well? Great that the IV nutrition and pain pump are off!

 

[enola]

The mud is so bad at my barn door, where the horse goes in and out, that I literally do have to be careful or the mud will remove my boots. I got stuck in the mud pit today and the horse nearly knocked me right in tbe muck, she was following me so closely. That would not have been pretty.

 

[sourland]

Hang in there. Sounds as if your 'body' is gradually making it's way back. Your mind is sure to follow.

You were heavy on my mind this morning. Good on your family's part to pull the sneak visit.

 

[Blooie]

Good morning Rachel and Team Rachel....your morning dose of hummingbird is ready!

 

[bluesub]

They keep encouraging me to drink "supplement" like boost or ensure, but that stuff's just corn sryup and I can't do it. When I do get some down, it just sets in my stomach and doesn't want to move...yuck. I can't believe they tout that stuff as healthy..

Man, I wish I lived closer, I have got the feeding down. Milkshakes, smoothies? Boost and ensure taste terrible. There is a fruit flavored ensure, I think it is called Ensure Clear - it's like a juice box, comes in peach flavor and mixed berry.

Can hubby or your mom bring you stuff? There's a drink you can find in the grocery store called Chug milk shake - vanilla and chocolate tastes way better than Ensure - it's 440 calories.

Muffins are nice nutrient dense food. Can your mom bake stuff? I could send her some really good recipes for muffins...

 

[seminolewind]

Today isT+15.

Yesterday afternoon the nurse practictioner came around and said they needed to pull my central line out as it was the source of my blood stream infection. I had probably as close to a panic attack as I've ever had at the thought. Seriously, having it put in was so traumatic, the idea of getting it taken out had me dizzy, crying, my lips were numb...it was horrible. Phoned my poor honey for a talk-down and got calmed down. Thank you Lord the line came out very easily cause I was thinking it was going to be horrible. Between the drugs they gave me for that and the benadryl for the platelets, I was snoozing pretty good around 11pm when some big hairy man crawls into bed with me......I had no idea Honey was coming up. Unfortunately I didn't sleep the greatest because I was guarding my new IV sites and couldnt' get comfortable with them and him in the bed, but it was okay. He and Sugar Monkey stayed until around 2 pm, had to leave early enough to hit Cabelas on the way home, you know.

So, now off the IV nutrition, off the IV pain pump, waiting for clear blood cultures so they can put another PICC line in and I can be discharged. Honestly, never ever thought there'd come a day when I would have an issue taking in enough calories, but it's such a challenge right now. I used to drink 3 liters easy, now I'm not quite making 2 a day. And food's just not happening. They keep encouraging me to drink "supplement" like boost or ensure, but that stuff's just corn sryup and I can't do it. When I do get some down, it just sets in my stomach and doesn't want to move...yuck. I can't believe they tout that stuff as healthy..

Hopefully discharge around Wednesday. The day keeps changing, so we're just on a wait and see pattern.

That really stinks about the line and infection. I hope they wait until they have the infection under control before they put a new picc line in.
I hope you're on the upswing here. It sounds like he11 to be going thru all that, but there's still that bright shiny light at the end of all this, and while you're waiting, maybe hatch some eggs!

 

[donrae]

enola, I sure don't mind missing mud season at home! At least here I'm high and dry, and it should be pretty dried up by the time I get to head south again. I know what you mean about getting the boots sucked off, we fight mud constantly at our place especially with the horses.

Kinda a rough morning. Made some med changes to try to get me eating a litle better, and just feeling more myself. Not sure how they're working, we'll just see how things are tomorrow. They're transitioning me to oral meds for my anti rejection meds...not sure why these things have to be a big plastic caplet and taste and smell like skunk, but that's what we've got. Did not keep them down last night, and am afraid I'm making a mental connection to continue not to keep them down....that can't happen. Trying some different nausea meds...this is the hard part, going on a drug simply so you can keep another drug down...makes one wind up with a lot of drugs!

Rainy days in Portland recently, that may have some to do with the feeling down overall. I'm a sunshine girl, don't like the rain and gloom.

 

[lazy gardener]

Rachel. I'm glad you're able to be back on BYC and talking to us. Glad they found the cause of your blood infection. Praying that you're quickly over the nausea. Perhaps the antibiotic you're on is the cause, or at least contributing. 8 more inches of snow here today and tonight. Wind howling like a banshee. Spring, oh spring, where fore art thou???

 

[enola]

Spring is here in SC. Today it was in the low 80's. Beautiful to look at, very comfortable to experience. But, the mud was still deep in front of the horse barn.

Before you know it, Rachel, you will be out and enjoying good weather, again.