My leukemia's back.

[getaclue]

Al, Doesn't the hospital have a website portal that you can log into, with all the reports from the tests, and everything? I get all my results as soon as they are done, at the same time the doctor gets them. They know waiting for test results can be frustrating, and the wait time is increased when you have to wait for a doctor's appointment. This way it reduces both the wait time, and the frustration. The doctor is even able to put in an outlined plan of action, which can then be fine tuned during the appointment.

This allows time to research any trials you think might be beneficial to you, to be able to ask your doctor about them when you go in for your appointment. While some doctors try to keep up with the latest in trials, there are so many, one may slip under their radar. Some doctors don't even bother keeping up with all the trials, and expect you to check on them. It just depends on the doctor. It also allows you time to become familiar with the medications the doctor intends to use, side effects, and whether you think you might be allergic to an ingredient in any of them.

 

[Alaskan]

Al, Doesn't the hospital have a website portal that you can log into, with all the reports from the tests, and everything? I get all my results as soon as they are done, at the same time the doctor gets them. They know waiting for test results can be frustrating, and the wait time is increased when you have to wait for a doctor's appointment. This way it reduces both the wait time, and the frustration. The doctor is even able to put in an outlined plan of action, which can then be fine tuned during the appointment.

This allows time to research any trials you think might be beneficial to you, to be able to ask your doctor about them when you go in for your appointment. While some doctors try to keep up with the latest in trials, there are so many, one may slip under their radar. Some doctors don't even bother keeping up with all the trials, and expect you to check on them. It just depends on the doctor. It also allows you time to become familiar with the medications the doctor intends to use, side effects, and whether you think you might be allergic to an ingredient in any of them.

thanks! I actually don't know if they have a patient portal, but I am sure they must.

I asked my mom again (because of the cancer 5 years ago, it is difficult to understand my dad over the phone), and it turns out that they want to do another "procedure" before they tell them the stage the cancer is at, and the prognosis and treatment options.

I think my mom was a bit overwhelmed, because she didn't really know what the procedure was going to be.

She said that she had the impression that directly after the procedure (whatever that was), that they would immediately have the results and immediately get to talk to the doctor and then know the stage etc.

All of that is scheduled for Friday.

 

[sourland]

Good morning, Team Rachel. Thinking of you and your Dad, 'Al'.

 

[getaclue]

Al, it sounds like they do. That's good! Please don't be to upset at your mother about not knowing the exact procedure they're going to do. The one thing we cancer patients learn to expect, are "procedures". About the time we think we've done all the "procedures" there are to do, the doctor whips out yet another "procedure" from their arsenal. The whole thing can be overwhelming.

I'm praying for them!

 

[getaclue]

Good morning Team Rachael! Rejoice that you are alive, and blessed.

 

[DwayneNLiz]

good update.

Appointment today said the cancer of the Esophagus is a NEW cancer, not the old one spreading.

That is very good news.

Appointment next week will tell them what stage the cancer is in, prognosis, and plan.

Great news!!! good luck to you and your parents and for friday!!

By design, they are more readily, and more easily absorbed by the body, than the rest.

ahhhh, thank you!

Al, Doesn't the hospital have a website portal that you can log into, with all the reports from the tests, and everything? I get all my results as soon as they are done, at the same time the doctor gets them. They know waiting for test results can be frustrating, and the wait time is increased when you have to wait for a doctor's appointment. This way it reduces both the wait time, and the frustration. The doctor is even able to put in an outlined plan of action, which can then be fine tuned during the appointment.

This allows time to research any trials you think might be beneficial to you, to be able to ask your doctor about them when you go in for your appointment. While some doctors try to keep up with the latest in trials, there are so many, one may slip under their radar. Some doctors don't even bother keeping up with all the trials, and expect you to check on them. It just depends on the doctor. It also allows you time to become familiar with the medications the doctor intends to use, side effects, and whether you think you might be allergic to an ingredient in any of them.

never knew this was an option, interesting

 

[FridayYet]

Good morning Team Rachel.

 

[drumstick diva]

Waiting is always the pits.

 

[Alaskan]

Al, it sounds like they do. That's good! Please don't be to upset at your mother about not knowing the exact procedure they're going to do. The one thing we cancer patients learn to expect, are "procedures". About the time we think we've done all the "procedures" there are to do, the doctor whips out yet another "procedure" from their arsenal. The whole thing can be overwhelming.

I'm praying for them!

thanks so much! And don't worry, I don't mind that my mom doesn't know. She is doing SO WELL taking care of my dad. I am just thrilled that my mom is able to handle all of this stressful illness stuff.

Talking of stress, just wanted to say, having all of you invisible people here be so supportive. ..well..... it is monumentally helpful to me. Thanks GREATLY!!!

 

[bruceha2000]

Sending some support, and a bit of heat, your way @Alaskan

I, thankfully, have not had intimate knowledge of cancer in my local family so I don't have the background on how the diagnosis and treatments are done that others here (sadly) do. But I'm reading along and feeling sympathetic thoughts.