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Thank you all for the uplifting quotes and thoughts. It always gets my day started in the right way!
This came late last night. Today will be Chemo #10 (of 21) for Kyle. Thank you for all your support for him!


Hello everyone.
I know when I wrote last week, I mentioned Kyle's new medicine he has to take. I wanted to write a quick update before he goes again on Monday. We were told the new medicine (gabapentin) would take 4-5 days before it really started doing anything. After anxiety and prayers, we did decide to give him the medicine but we did not start it until Tuesday night. He takes the medicine twice a day, every day. So in theory, we should not have noticed any changes until Saturday morning at the earliest. We have not noticed, or been told by Kyle, any negative changes. There are two things we have noticed... he has been more happy for longer periods than he has been in months. He has had a few extreme angry/upset, but that could also just be him being three and Katie picking on him. The other thing that has changed... his appetite has significantly increased. Today (Sunday) especially he wants to eat and ate entire meals with no prompting (not normal). At lunch, he ate three pieces of pizza, lettuce, cheese, a couple cubes of ham, and 1.5 brownies. That is a lot of food for him.
We don't know if the medicine has started to work and he feels that much better, or if it is coincidence that he is just feeling better. We don't know if he was in pain every day and it finally is subsided, so he finally feels good. We don't know if he is in a growth spurt (although we were told to not expect any growth while he is getting chemo). We don't know if he just loved seeing friends at church today and that put him in a good mood. We don't know what the change is, but there is a change today.
Although we do see light at the end of the tunnel, we are trying to stay focused on one day at a time. Kyle is doing awesome, so we just keep praying he stays strong.

 
What a wonderful update! I'm so glad to hear he's feeling better and eating so well, that is great! I hope things will continue going up and up for him now.
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for everyone.
 
Amazing update! I look for them and keep the prayers heading your way!

Neurontin (gabapentin) is a wonderful medicine in so many ways. I took it for years due to my epilepsy and it was the only seizure medication I was ever on that totally stopped the seizures and that didn't have a lot of side effects....not so many that I ever wanted to just stop taking it. Oh, there are side effects - there always are with any medication - but not everyone gets them and not everyone has the same ones or to the same degree. I could get a little, um, moody at times when I was on it. The only reason that I was changed to something else was because after so many years and finally some attempts at dosage variations, it just stopped working as well for me. I had some break-through seizures and they were happening more often, so we had to come to the conclusion that my body had built up a tolerance to it and it was no longer effective for me.

Kyle likely won't have to be on it for nearly as long as I was, so right now if it's working for him, that's exciting!!! By the time he would have built up that tolerance, his cancer will be far behind him anyway, right?
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