So....talk about.....CANCER SUPPORT THREAD !!

[broodytood]

Hey there! Glad you found this thread. You can vent here as well as in your tub!
We will listen gladly!
I'm very sorry to hear that your DH is suffering from this awful disease!

Have you been on the Wa thread? You seem familiar.
I'm not on the Wa thread as much as I used to be because of my treatments.
I miss it and hope to get back more often when this is all over!
Take care and pop on here whenever you need!

I never noticed this thread before but wow...I see it on a night I really need it.
My husband of 9 months has chronic myelogenous leukemia. He was diagnosed just about three months ago.
last September at his physical the labs showed a high white count. Not to horrible at 13. So his doc did drags a UA and blood cultures looking for an infection. Nothing.repeat the CBC a week later. It was 22. Kept checking and after a month sent him to a hemotologist. When he looked at the labs he was somewhat reassuring, telling us there was nothing that screamed cancer .. bunch more testing and the test for the Philadelphia gene came back positive. So they did a bone marrow biopsy. So, no doubt now. They ordered one Med which our insurance denied. They approved it on appeal, but our cost would be almost $3000 a month, better than the $9000 without insurance I guess.
At this point we went to the VA and applied. On learning the diagnosis and his diagnosis of Parkinson's they immediately approved him for medical benefits. He is a Vietnam vet and agent orange has been linked to both. I think a blessing in disguise ...
So that's the back story. He's now on gleevac and feels worse than he did before (he had no symptoms ) and his wbc last week was 68.2.
A year ago he had two brain surgeries to fix an aneurysm. 6 wks later they diagnosed Parkinson's.
and now this.
I've taken to soaking in a hot bath several days a week so I can cry where no one knows.
Its been a whole lifestyle change, especially trying to keep him from getting sick(kids in germ factories aka school, I'm a nurse, life in general ).
The kids are having issues with this part mostly, despite being a teen doesn't get why I say no your friend with a cold can't come over even if it's not real bad and please try to avoid anyone obviously sick.
One of the things the doc said was no fresh fruit and veggies because of risk of bacterial contamination. I'm learning how to grow a garden so we will know where the food comes from.
Its things like that that just seem to build up and send me into tears.
He seems and says he is ok with it all. He says at 67 he's already lived most of his life and what will be will be. I tell him I'm not ready to be a widow at 38 and wont even be ready at 50.

 

[stargazingmommy]

Hey there! Glad you found this thread. You can vent here as well as in your tub!
We will listen gladly!
I'm very sorry to hear that your DH is suffering from this awful disease!

Have you been on the Wa thread? You seem familiar.
I'm not on the Wa thread as much as I used to be because of my treatments.
I miss it and hope to get back more often when this is all over!
Take care and pop on here whenever you need!

I hve been over there, but pretty rarely, It moves soooo fast and i kept getting Lost.
We're in Spokane

 

[jjthink]

Cindi/CM, Thinking of you and sending lots of good energy your way!~

Hope you feel better soon, in every way.
(It's been awhile since I've had my hands on the data but the wonders of mangosteen juice seem to know no bounds.)

 

[Lunachick]

Wow, I haven't been on here for awhile, I feel bad about that. It wasn't neglect, just been busy in the yard & garden etc. Then my vacuum decided to suck the life out of the surge protector and I lost use of my computer til I got a new surge thingy.

HELLO Everybody!! Thanks for the B-day wishes......it was just another day, but that in itself was a gift anyway

Coyote - been thinking of you and hope your struggles will lift soon, I mean something's gotta give!! And of course deerman, Sara, broody - all you guys..........I think of all of you.

I hate to report this with all of you going through the tough times with chemo & meds that can make or break you. BUT - so far I'm doing great. All my tests came back normal & fine. I have NO complaints. Just one more 6 mo. mammo to do.

It's been 2 years since my first diagnosis.

 

[jjthink]

So glad to hear that Ginny!

 

[3goodeggs]

Luna,
I think the members of this thread welcome good news! Do not feel bad at a good report. You are proof that this is manageable. Which gives a foundation for others to have hope. I am glad you are doing well. Enjoy the gardening!

 

[CoyoteMagic]

Luna,
I think the members of this thread welcome good news! Do not feel bad at a good report. You are proof that this is manageable. Which gives a foundation for others to have hope. I am glad you are doing well. Enjoy the gardening!

You aren't kidding 3!

Congrats Luna!!!

 

[CoyoteMagic]

I hate to follow Luna's GREAT news with this but, we were told Thursday that WellsFargo has decided that they are not going to pursue loan modification with us and are moving foreward with foreclosure.

We have tried to make it work, but with the obstacles, cancer, loss of income, downsizing, etc, it’s just not worked out. It’s only because of Family, Friends and the mercy of the Creator we’ve made it this long.

We have a phone call into our lawyer to see if there are any other options. We haven’t qualified so far for any of the programs out there. Time wise, I don’t know when we have to be out the door. I read one place that it’s 10 days after the sale, but we don’t know when the sale is. We are trying to scramble a camper or something for us to live in. I have a friend whose family owns a campground and can get us good lot rent and a couple others that have offered us a corner of their yard to park one. We’ve had 2 friends offer a corner of their properties to set up something. Finding a house or apartment is going to be really hard. I’ve got FurKids! Pet deposits are expensive and most have a limit of 2, I’ve got 7! Yes, Katie is a Service Dog and has to be allowed to live anywhere, but which of the others should I send away? I’ve had FatBoy for 16 years!! We will live in the truck or in a tent before I give up even 1. I did it years ago with my girl, Tippy, in Arizona, I can do it again. How many can fit on an air mattress before it pops?!

I don’t know where we are going, what we are doing, or when it’s all going to be happening, but I wanted to let people know if we just happen to fall off the face of the earth. In the meantime, I’ve got to pack. How do people accumulate so much STUFF?!

 

[newfoundland]

My thoughts and good wishes are with you. Remember that when you feel you have reached rock bottom, the only way is up! God Bless.

 

[3goodeggs]

CM,
Now more than ever I am glad I dumped wells Fargo for the local credit union. Now I really do not care for their business ethic.
I wish I could help. Every once in a while I buy a lottery ticket when the numbers are really high and think of all of the people I could yank out of harms way, but it never pans out. I think what I hate most about this economy is that It consumed a lot of good people.
Will we ever be on our feet again? Is this really the new normal?
When we were young our future was wide open and we did not fear it, Now that we are in the middle of it, It scares me. Why? What changed? We need to start another thread, the 'Economic recession support thread'
I am here for you CM! I wish I had a camper for you. Yurt. you need a yurt. How cool would it be to tell people you live in a yurt?
...and a hug.

Jan