The Front Porch Swing

The funny thing is she still calls her mom "Dog". We haven't figured that out yet. "Dog" was her first word a few months ago, and she knows what it means. She gives our English Setter hugs and cookies and calls her "Dog", and if she sees one on TV, in books, or out and about she says it too, so she knows. Last night was also the first time she put two words together. So yeah, I'm puddley. She turned 3 on September 1. Ken and I have often said that she is like Helen Keller - there's a key for communication in her somewhere and we just have to find the key. I think we're getting closer. Boy, when she gets here this morning when Mom goes to work she's going to get the biggest hug EVER!
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Daughter Terrin was that way. I didn't think she'd ever start talking. Just pointed and grunted - a lot. For Christmas her grandparents sent her a toy telephone. I walked past the girls' room and thought I heard Tam talking on the phone. I stopped, and realized that it was Ter. She was telling her "Gammy" what she got for Christmas. Little stinker - she could talk just fine.

Kendra's seizures haven't let up even with the change in meds. So as long as that flow of information keeps being interrupted she's likely to remain behind. We get so excited about every little thing she does! Last night was huge - I'm still grinning. Oh, and she's repeated it a couple of times today while I've been babysitting her. YIPPPEE!

Thomas has been working really hard, speech therapy three times a week, occupational therapy once a week. The student clinician doesn't get much done with him honestly, but the other place (Easter Seals) is amazing. He's talking! He said bubble, puzzle, blocks... it's hard for him and it's only once in a while, but the words are coming out. We know they're in there.. he can says some clear as day, but he just WONT use them. He said "eyes" with the student clinician... just once, never again. Little stinker, that's what he is. He says words once and never again.

In the past two years he's said duck, chicken, waffle, movie, eyes, bye bye, daddy, mama, cereal, blocks, bubbles, all done, more, please, milk, juice, what dat.. but most of them once and never again. He said duck at 11 months old. 11 months! And this little turd still can't communicate at almost 3. He has words but has no idea how to use them to convey his needs. He just repeats them. They have little to no meaning to him. He just repeats. He says 'more/please' for everything now, knowing it gets him things
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Had a meeting with the school system yesterday for his evaluation to see if he's eligible for special education services and whatnot. He did really well, but he was exhausted afterward. Going to get an in-home evaluation next month and then another meeting in December to hear the results. I believe he needs to have atleast a 25% delay/loss to receive services for something. So that means he qualifies, he's way further behind than that.

The audiologist present did state that there's no reason his hearing loss would have delayed his language like it did. Halleluja! I told her that so many 'specialists' have claimed his delays are caused by his hearing, but I knew that's not true. She agreed and said the hearing loss would have to be way worse than his is to see the delays he has.. so there's something else going on.

We're finally getting somewhere!

Ofcourse my pediatrician blew me off again the other day when I brought up food allergies.
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I really need to switch peds, so tired of her treating me like I'm an overly worried first time mom. No lady, I have YEARS of experience with kids and I do know when something isn't right. Sheesh. I went to college to be a teacher, I've worked in classrooms with kids, I've babysitted for years... I know 'typical' and 'non-typical' when I see it.

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So excited for my little boy, he loves his speech therapist and does so well with her, we're going to go see her twice a week after we drop therapy with the student clinician.. he just doesn't work well with Thomas, he's too difficult for him.
 
Tomtommom, that is so great to hear Thomas is saying more and that you found a speech therapist that works well with him! That's huge! It sounds like he is one lucky boy to have such a good mom pushing for him. Keep up the good work! You and Thomas
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OMG....
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sometimes younger ones just let the older ones do the talking..... Einstine was a late talker...

http://www.neatorama.com/2007/03/26/10-strange-facts-about-einstein/

deb
My youngest DD always let her sisters talk for her. She would point at something that she needed, ex: more potatoes please. Finally we had to tell her "You must ask for what you want. No more pointing!!
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She could talk but chose not to. I think she was 4 when I put my foot down. My ex has always blamed me for babying her and she's definitely needy now, waiting for me to rescue her. I can't do it anymore. She's 36 by the way.
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So for ONCE maybe he was right.
 
Thomas' progress is so heartwarming to read about. Isn't it strange how people with basically the same type of education and training in the same field can be so different? You're sure finding that out the hard way, just like we did. Katie had a couple of therapists who were so busy blaming us for not working hard enough between sessions that they barely got through a session. Her speech therapist was amazing, and her physical therapist was too. But her occupational therapist was horrible! We didn't like her and Katie, even at 16 months old, definitely didn't like her. But there was nothing we could do about it - in our rural area our options were Children's Resource Center staff or nothing. When she was older she had another therapist we didn't care for - seemed like listening was not one of his job skills. He kept trying to correct Katie's balance issues and telling us that we needed to push her harder to do the routines he wanted and that as far as he could tell there was no physical reason for Katie's lack of balance. We must be allowing her to get by with "lazy behavior'. He changed his tune right quick after an appointment at Shriners revealed that Katie had asymetrical hips and was missing a rib. When her mind was telling her that her body was straight, her body was actually leaning toward her strong side.

Flash forward...Kendra now has the same therapists that Katie had. What a difference in them. By the time Kendra came along they had realized that Jenny and I and the rest of the family not only worked hard with Katie, but came up with innovative ways to get things done with her. Case in point: sticking the Colorforms Dora the Explorer figures on my glasses and telling her that if she wanted something she had to "ask Dora". It worked, we got speech and eye contact. So now they use that, and several other of our "inventions" with lots of other kids, including Kendra.

Thomas is so lucky to have you in his corner. Being your child's strongest advocates isn't easy - you always feel like you are "just the mom" and that you have to bow to the therapists' superior training. It's liberating when you find out that motherhood trumps training any day of the week. Good for you! Good for Thomas!! I follow his progress with so much pride.
 
To be fair to the therapists though, I think with today's parents looking up everything on the internet and coming up with their own diagnoses, a lot of valid points from the parents get overlooked just because of the sheer amount of nonsense hysterical parents come up with.

But it's nice to hear Thomas is doing well too.
 
To be fair to the therapists though, I think with today's parents looking up everything on the internet and coming up with their own diagnoses, a lot of valid points from the parents get overlooked just because of the sheer amount of nonsense hysterical parents come up with.

But it's nice to hear Thomas is doing well too.
Very good point, Vehve. I've seen that too and I'm sure that very thing is why parents with a really good grasp of what's going on and what's best for their child are ignored. I'm also sure these hardworking therapists get a little burned out when parents constantly second-guess them. But in our case we didn't turn to other sources until well AFTER we started losing confidence in those two particular therapists. A good therapist can listen to the parents' concerns and react in one of three ways. They can either incorporate the parents' goals and ideas into the treatment plan, totally dismiss them (making the parents feel less like partners in their child's plan and more like troublemakers) or listen to what the parents are saying and be able to explain sensibly why those concerns are unfounded.

The occupational therapist Katie had for her autism insisted on using things that made noise when Katie accomplished a task - either bells ringing or this really annoying bongo drum sound, followed by a cymbal and a hearty "Hooray". This theory was similar to the clickers that a lot of animal trainers use - supposed to communicate success with a task. Katie stiffened up and sometimes cried and held on to us instead of being encouraged by the instant cues that she'd succeeded. We tried to explain that Katie didn't react well to noises. Finally Katie's new geneticist pointed out that many kids with Autism suffer from hyperaccusis - such a strong over-sensitivity in hearing that loud or unexpected noises cause extreme pain in the ears. The sensation is the same as it is when someone sticks his mouth right next to your ear and screams. We told her that and she poo-poo'd it. Not until we had Dr. Manchester send her a full report did she opt to change her reward system. But Katie never did learn to trust her.
 
So happy to hear that Kendra and Thomas are progressing so well.

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Here is a photo of my sad dog - took him in for a bath and a little trim since I haven't found my grooming supplies yet, they are still packed in a box somewhere in the barn...
I got chided by the groomer because he had a couple of small mats - duh, that's why I brought him in for a bath! and I told her that when I dropped him off. She went a little crazy with the trimmers.

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