The NFC B-Day Chat Thread

[Blooie]

Good morning, all! Yep, Debby - happens to me all the time. This morning we have to be out of here by 6:30 in order to get the girls to Cody. Their geneticist comes to the area every two years, and they called and said they had pre-scheduled appointments for Katie and Kendra.....Katie at 8 and Kendra at 9. I hate waking up feeling like I'm already behind and rushing!

 

[N F C]

Have a safe trip to Cody Blooie, glad you can go before the winter weather really hits.

 

[DigMyChicks]

Good morning Debby and Blooie! Yes, I had that day on Monday. I spent 3 hours on the phone with an insurance company and I was transferred about 7 times...by the end of the three hours I was coming unglued, never did get the issue resolved as I hung up in frustration. After that the washer repair guy came...machine went down October 2nd and got fixed THANKFULLY on the 31st....so yes Debby you are not alone

 

[Blooie]

Thanks, Debby. This time of year, with it still not quite light out there, I worry more about dodging deer than the weather. Cody is actually only about an hour away, but you know how doctors are - even though they have your entire chart in front of them you still need to fill out paperwork.

That's especially true with one you only see every 2 years. So much to add since last time we saw him....Kendra's progress in some areas and total lack of progress in others, her feet turning in far worse than ever (when she stands her feet turn in so severely they face backwards, especially the left), her recent MACE and Mitrofanoff surgeries, the seizure frequency, and the decrease (YAYY) in her hydrocephalus all take a lot of time to go over.

Katie's serious weight gains over the past 2 years scare me, especially with her dad being an insulin dependent diabetic, but Ken and I can't seem to make the kids see the risk. Maybe the doctor can, although at the last visit he talked to Jenny, advised her, and in three different spots in Katie's report he used the words, "obese", "overweight" and "dangerously overweight". I knew nothing would change when Jen had me stop at a convenience store on the way home. She came out with a Hershey bar for Katie because she was afraid Katie may have overheard the doctor talking about her weight and her feelings might be hurt. Shoot, Katie was out in the toy room while we went over the doctor's observations and couldn't have possibly heard a thing, but that's the mentality Ken and I have been fighting with Jen over this. <sigh> A 10 year old should not weigh 151 pounds. Period. She's never learned to ride a bike, even.

Breaks my heart, so today I plan to get a few minutes alone with the doctor and let him know that we have to take a different approach with Katie and Jenny. I've learned since that last visit that the behaviors that kids with Autism exhibit with over-stimulation --- arm flapping, turning in circles, slapping themselves ---- show up in Katie as her needing oral calming. I've seen her get nervous and open a mustard packet and eat that. So I'm more concerned about Katie than Kendra at this point. Fortunately Dr. Manchester (or his associate - I can never remember his name until I see him) always checks the girls first, then talks to Jenny alone, and finally gives me a chance to speak to him alone. He says sometimes grandparents or other family members see things that parents don't, so he always likes to hear that point of view as well. He's gonna hear one today, that's for sure.

 

[Bunnylady]

Sounds to me like Jenny has some issues of her own.

Five cents, please.

 

[DigMyChicks]

Thanks, Debby. This time of year, with it still not quite light out there, I worry more about dodging deer than the weather. Cody is actually only about an hour away, but you know how doctors are - even though they have your entire chart in front of them you still need to fill out paperwork. That's especially true with one you only see every 2 years. So much to add since last time we saw him....Kendra's progress in some areas and total lack of progress in others, her feet turning in far worse than ever (when she stands her feet turn in so severely they face backwards, especially the left), her recent MACE and Mitrofanoff surgeries, the seizure frequency, and the decrease (YAYY) in her hydrocephalus all take a lot of time to go over. Katie's serious weight gains over the past 2 years scare me, especially with her dad being an insulin dependent diabetic, but Ken and I can't seem to make the kids see the risk. Maybe the doctor can, although at the last visit he talked to Jenny, advised her, and in three different spots in Katie's report he used the words, "obese", "overweight" and "dangerously overweight". I knew nothing would change when Jen had me stop at a convenience store on the way home. She came out with a Hershey bar for Katie because she was afraid Katie may have overheard the doctor talking about her weight and her feelings might be hurt. Shoot, Katie was out in the toy room while we went over the doctor's observations and couldn't have possibly heard a thing, but that's the mentality Ken and I have been fighting with Jen over this. A 10 year old should not weigh 151 pounds. Period. She's never learned to ride a bike, even. Breaks my heart, so today I plan to get a few minutes alone with the doctor and let him know that we have to take a different approach with Katie and Jenny. I've learned since that last visit that the behaviors that kids with Autism exhibit with over-stimulation --- arm flapping, turning in circles, slapping themselves ---- show up in Katie as her needing oral calming. I've seen her get nervous and open a mustard packet and eat that. So I'm more concerned about Katie than Kendra at this point. Fortunately Dr. Manchester (or his associate - I can never remember his name until I see him) always checks the girls first, then talks to Jenny alone, and finally gives me a chance to speak to him alone. He says sometimes grandparents or other family members see things that parents don't, so he always likes to hear that point of view as well. He's gonna hear one today, that's for sure.

Good luck Blooie!

 

[N F C]

Thanks, Debby. This time of year, with it still not quite light out there, I worry more about dodging deer than the weather. Cody is actually only about an hour away, but you know how doctors are - even though they have your entire chart in front of them you still need to fill out paperwork.

That's especially true with one you only see every 2 years. So much to add since last time we saw him....Kendra's progress in some areas and total lack of progress in others, her feet turning in far worse than ever (when she stands her feet turn in so severely they face backwards, especially the left), her recent MACE and Mitrofanoff surgeries, the seizure frequency, and the decrease (YAYY) in her hydrocephalus all take a lot of time to go over.

Katie's serious weight gains over the past 2 years scare me, especially with her dad being an insulin dependent diabetic, but Ken and I can't seem to make the kids see the risk. Maybe the doctor can, although at the last visit he talked to Jenny, advised her, and in three different spots in Katie's report he used the words, "obese", "overweight" and "dangerously overweight". I knew nothing would change when Jen had me stop at a convenience store on the way home. She came out with a Hershey bar for Katie because she was afraid Katie may have overheard the doctor talking about her weight and her feelings might be hurt. Shoot, Katie was out in the toy room while we went over the doctor's observations and couldn't have possibly heard a thing, but that's the mentality Ken and I have been fighting with Jen over this. <sigh> A 10 year old should not weigh 151 pounds. Period. She's never learned to ride a bike, even.

Breaks my heart, so today I plan to get a few minutes alone with the doctor and let him know that we have to take a different approach with Katie and Jenny. I've learned since that last visit that the behaviors that kids with Autism exhibit with over-stimulation --- arm flapping, turning in circles, slapping themselves ---- show up in Katie as her needing oral calming. I've seen her get nervous and open a mustard packet and eat that. So I'm more concerned about Katie than Kendra at this point. Fortunately Dr. Manchester (or his associate - I can never remember his name until I see him) always checks the girls first, then talks to Jenny alone, and finally gives me a chance to speak to him alone. He says sometimes grandparents or other family members see things that parents don't, so he always likes to hear that point of view as well. He's gonna hear one today, that's for sure.

Sounds like you have an awesome doctor there Blooie. Good luck with the visit and how things go.

 

[N F C]

Blooie, I had to laugh when I saw a comment you made on one of my posts yesterday..."It takes so little to please you!"

The first thing that popped into my head was yeah and that's how I ended up marrying the now-ex. Good thing I've learned to be a bit harder to please, lol.

 

[Pork Pie]

Blooie, I had to laugh when I saw a comment you made on one of my posts yesterday..."It takes so little to please you!"

The first thing that popped into my head was yeah and that's how I ended up marrying the now-ex. Good thing I've learned to be a bit harder to please, lol.

Am reading that the way you intended? Oh my

, or maybe

Good morning everyone. Safe journey, Blooie and good luck

 

[N F C]

Morning Chris!

I don't know if that comment was a

or a

but now that I see it can be taken a couple different ways, it was good for a laugh! Thanks, lol.