Teaching hospitals are a good place to go when you are not finding answers. My Family has used UCSF a couple of times for rare issues. One was in the 1950s when my Dad was paralyzed from a car accident. The surgery he had is common now but was experimental back then.I don't know, maybe Vanderbilt
That's how my life feels![]()
More recently, my DW went to UCSF for parathyroid tumor removal.