The NFC B-Day Chat Thread

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Kelsey, thank you. And us? Give up? Never! We know she’s already exceeded her physical prognosis and done things we were told not to even expect. What we were never told from the time her Spina Bifida was diagnosed at 20 weeks gestation was that there’d be mental handicaps as well, since most kids with SB don’t have those additional deficits. So the Autism, seizures, and delays were totally unexpected. But we have never given up any hopes for some kind of future for her, and we won’t. But at the same time, if we aren’t realistic in our expectations it would be far too easy to overlook a minuscule new accomplishment and keep pushing her way harder than she’s capable of handling, which could easily lead to frustration on all of our parts. We can’t afford that.

This new doctor made it clear to the kids that he is in this field primarily because he sees miracles, and those miracles are why he goes in to the clinic everyday. He said he is also a realist, and has to walk a fine line between expecting those miracles but helping families understand that we have to accept some parameters. That fits into the philosophy we’ve had with Kendra every minute of every day for almost 8 years. But we do get tired....and discouraged....and frustrated, even as we get excited when she does or says something new. We are humans who want our littlest human to lead as normal a life as possible. Kendra will ultimately decide what her normal is, not us.
 
I'm at a loss for words Blooie. All I can say is just keep doing what y'all are doing....and hope those miracles do come to fruition...after all I was told I would never walk again, I would be in a wheelchair the rest of my life, many times.
Just know you, Kendra and the rest of you're family is in my thoughts and prayers and I'm praying for a 'comeback kid' scenario. :hugs:hugs:fl
 
Aww, you don’t have to say anything at all, Sean! You all know that if Kendra never took another step or said another word, we’d still have all we need to see when she she smiles. ;)

Bruce, we love you right back! :love

Thank you all for caring so much. Ma used to tell me that sometimes my heart was just a little too big....now she knows why - I’ve got to fit a lot of people in there!
 
Blooie said:
Kelsey, thank you. And us? Give up? Never! We know she’s already exceeded her physical prognosis and done things we were told not to even expect. What we were never told from the time her Spina Bifida was diagnosed at 20 weeks gestation was that there’d be mental handicaps as well, since most kids with SB don’t have those additional deficits. So the Autism, seizures, and delays were totally unexpected. But we have never given up any hopes for some kind of future for her, and we won’t. But at the same time, if we aren’t realistic in our expectations it would be far too easy to overlook a minuscule new accomplishment and keep pushing her way harder than she’s capable of handling, which could easily lead to frustration on all of our parts. We can’t afford that.

This new doctor made it clear to the kids that he is in this field primarily because he sees miracles, and those miracles are why he goes in to the clinic everyday. He said he is also a realist, and has to walk a fine line between expecting those miracles but helping families understand that we have to accept some parameters. That fits into the philosophy we’ve had with Kendra every minute of every day for almost 8 years. But we do get tired....and discouraged....and frustrated, even as we get excited when she does or says something new. We are humans who want our littlest human to lead as normal a life as possible. Kendra will ultimately decide what her normal is, not us.
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:love:love
 

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