The NFC B-Day Chat Thread

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Blooie said:
Well, just had some some stuff I had to handle and keeping up with one site was enough at times. I’d have ignored that place too if most of my family members weren’t on it so it’s our way of keeping in touch and sharing family photos long distance.

I’m not sure how to do all this new stuff. They coulda waited until I was back so I could have complained while it was all new. Now I gotta just suffer in silence and get used to it all. Maybe I should go on my computer - maybe it won’t look so different there. <shrugs>

Kids are all fine. Kendra hasn’t had a seizure in almost 2 months. Looking at leg surgery to twist her legs into correct position sometime this summer. The surgical consult is in April. Mixed emotions about that. She’s starting to talk a little bit....not much, but more than she was. Evan is loving his new school and his grades and participation, as well as his social life, reflect that. Katie is just Katie, sweet as ever and doing great. Hard to get used to seeing her in b braces, though.

Let’s see...what else. Well, wasn’t feeling well for a few months but chalked it up to exhaustion from Ken’s year. Had an angio done in October...all fine there, or most of it was. Think that would have been a good time to tell me that they didn’t do the left half of it because of ”renal insufficiency”. People don’t like to find that stuff out two months later when they print out a copy of their angio report to give to their primary. But after several subsequent tests and visits, and an appointment with a nephrologist, the verdict is Stage 4 kidney disease. Been going on since 2016, according to the blood tests I tracked down and compared. GFR is the filtration rate of the kidneys. It’s supposed to be over 60, which mine was in early 2016. Then it started going down steadily - 55, 45, 42, 34 while my creatine was steadily going up. (that 34 was in October of 2019 during the angio and the reason the cardiologist didn’t do the left ventricle.) So on December 9th I dropped all the different tests on my primary’s desk and asked him what the heck it all meant. He retested that day and it was down again from 34 in October to 29. He took me off one of my meds and retested on December 17. Still 29 but my creatine had gone up again. He got me a nephrology referral and that blood test showed another tick up in creatinine and another drop in GFR - down to 27. So I’ve been trying to adjust to a new normal and keep mental images of Linda on Dialysis out of my head. I’m dealing. Hate the Kidney diet, it conflicts with the cardio diet in a lot of ways and it takes away everything that makes it worth getting up in the morning - salt, Pepsi, egg yolks, Pepsi, oranges, Pepsi..... I’ve gone from 168 pounds in August at Ken’s Grand Lodge (don’t judge) to 147.6 pounds as of this morning. Not trying to diet, but I have this strong metallic taste in my mouth and everything tastes like that. I see the nephrologist again March 5th for a renal ultrasound and some other stuff and I want him to see an improvement of some kind.

And that’s it. That’s where I’ve been. No sympathy, please. Been doing enough of that for myself, and it’s not fun to tell folks yet anyway. I’m working hard to bring the creatine down and the GFR up. The nephrologist thinks I might get little function back, and we’ll be happy to see the 30s again if they stay there nice and steady. I don’t have time for this crap, but it just is. The really disappointing part is that we were getting ready to put a decent new modular home on our land. Found the one we both liked, one we could easily afford, and we were getting ready to start the paperwork. That’s done for until I can stabilize, and Ken’s not budging on that.

So now you know where I’ve been. I felt so guilty when I got Bruce’s lovely card because I just wasn’t up to sharing this yet. I didn’t tell anyone (aside from family and one or two local, 20 year friends) until after last week. So thank you, Bruce, and forgive me..... Please understand that it often took all I could do to post on the other site and keep it fun and upbeat. Here you guys know me too well and one off-key post would have been the only clue you’d have needed. I wasn’t ready. But I missed you, I wanted to come back, but I wasn’t sure how after being gone so long. The end.
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wow, you know we're just happy to have you back, just you being you. if you don't want to talk about it, thats fine, if you need a shoulder, we're here anytime, just glad you're back. did i say, glad you're back(suppose to be funny, i know, not):hugs:hugs
 

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