The NFC B-Day Chat Thread

[N F C]

 

[igorsMistress]

Hi all. Back from doc, he says cochlear hydrops but from what I’ve read when it involves vertigo it’s Menieres. Either way I follow up at the end of the month and need a balance test and MRI in the meantime. As I suspected. So no cure, just have to be ready for vertigo at any time and see if I don’t go crazy from the tinnitus

 

[N F C]

Hi all. Back from doc, he says cochlear hydrops but from what I’ve read when it involves vertigo it’s Menieres. Either way I follow up at the end of the month and need a balance test and MRI in the meantime. As I suspected. So no cure, just have to be ready for vertigo at any time and see if I don’t go crazy from the tinnitus

Can they give you anything to help with the vertigo IM?

 

[Cynthia12]

Hi all. Back from doc, he says cochlear hydrops but from what I’ve read when it involves vertigo it’s Menieres. Either way I follow up at the end of the month and need a balance test and MRI in the meantime. As I suspected. So no cure, just have to be ready for vertigo at any time and see if I don’t go crazy from the tinnitus

Bless your heart. I've been to every specialist out there and had every test there is. Some tests more than once. Like the MRI because the CT showed something..MRI didn't. What? Balance test. Oh boy. I've had miserable last few days. Swimming head ...my ears have been ringing for years. Docs tell me I'm lucky I can handle it..not everyone can. Ask someone about Vestibular Migraines. I was pretty upset that none of the ENT's here in my county never mentioned it..but in Salt Lake area it was the first thing that ENT said. Then off to the Neuro again..for meds that help. There's a reason why most folks that suffer with vertigo find help with the meds they're put on. The Steady Coach explains why..I posted that. Good luck with everything. We always hope they will find something that can be cured ..praying you do. .

 

[Cynthia12]

Good morning all. Back from getting some things off my husband's grave site. And did some shopping. Blessed I was able to today. Couldn't yesterday! I look forward to good days like this. Sometimes they're good in the morning but bad by the afternoon. I'll take what ever part I can get.

 

[igorsMistress]

Can they give you anything to help with the vertigo IM?

I dunno yet Debby, I suppose it depends on what happens with the tests. For clarification I don’t have vertigo every day. What I do have is random moments when I feel unsteady like I’m a little tipsy, particularly when I’m tired. Mostly not knowing if/when vertigo will happen, especially in a public setting, is what’s unsettling. As far as I know the only guaranteed way to prevent vertigo is to cut a nerve and fix it permanently.

Bless your heart. I've been to every specialist out there and had every test there is. Some tests more than once. Like the MRI because the CT showed something..MRI didn't. What? Balance test. Oh boy. I've had miserable last few days. Swimming head ...my ears have been ringing for years. Docs tell me I'm lucky I can handle it..not everyone can. Ask someone about Vestibular Migraines. I was pretty upset that none of the ENT's here in my county never mentioned it..but in Salt Lake area it was the first thing that ENT said. Then off to the Neuro again..for meds that help. There's a reason why most folks that suffer with vertigo find help with the meds they're put on. The Steady Coach explains why..I posted that. Good luck with everything. We always hope they will find something that can be cured ..praying you do. .

Thanks Cynthia, sending good mojo your way too! I asked about vestibular migraines today, but my symptoms are accompanied by longer bouts of vertigo than is typical with the VM. Also, I have frequent ear fullness. Supposedly vestibular migraines can be a part of Ménière’s, and I think Menieres has become a catch all for,“damn, I have no idea what’s wrong lady.” I disagree with the doctor that the diagnosis is cochlear hydrops though, it doesn’t involve vestibular symptoms like vertigo. I’m going to bring this up at our next appointment.

 

[janiedoe]

I dunno yet Debby, I suppose it depends on what happens with the tests. For clarification I don’t have vertigo every day. What I do have is random moments when I feel unsteady like I’m a little tipsy, particularly when I’m tired. Mostly not knowing if/when vertigo will happen, especially in a public setting, is what’s unsettling. As far as I know the only guaranteed way to prevent vertigo is to cut a nerve and fix it permanently.

Thanks Cynthia, sending good mojo your way too! I asked about vestibular migraines today, but my symptoms are accompanied by longer bouts of vertigo than is typical with the VM. Also, I have frequent ear fullness. Supposedly vestibular migraines can be a part of Ménière’s, and I think Menieres has become a catch all for,“damn, I have no idea what’s wrong lady.” I disagree with the doctor that the diagnosis is cochlear hydrops though, it doesn’t involve vestibular symptoms like vertigo. I’m going to bring this up at our next appointment.

"Damn, I have no idea what's wrong" also applies to plenty of autoimmune diseases too. So many women get diagnosed with fibromyalgia as a catch all. I think more people diagnose themselves, than doctors do. I admire anyone who can make it through medical school, but once they go into practice, they just don't have the time to research that the patient does. Keep throwing Ménière’s out there.

 

[janiedoe]

Saw it on instagram.
Made me laugh.

 

[N F C]

Saw it on instagram.
Made me laugh.
View attachment 3526928

Don't you just have to wonder what goes on in those little brains?

 

[igorsMistress]

"Damn, I have no idea what's wrong" also applies to plenty of autoimmune diseases too. So many women get diagnosed with fibromyalgia as a catch all. I think more people diagnose themselves, than doctors do. I admire anyone who can make it through medical school, but once they go into practice, they just don't have the time to research that the patient does. Keep throwing Ménière’s out there.

Well, this is an ENT so you’d think he’d know the difference. I agree as a patient we definitely have to be informed and ask the questions; I will definitely advocate for myself.