I am familiar with it as I have known people with it. But, I haven't dealt with it directly in my family.
Kinda off-topic, yet related (I found this interesting and would like to share). There was a show on the health discovery channel the other day that was explaining how some (few, but nonetheless some) of the cerebral palsy diagnoses are really a condition called Dystonia, a condition that causes a dopamine deficiency. It was really interesting. The doctor was explaining that with Cerebral Palsy, the symptoms aren't progressive (you can't get worse), but with the dystonia the person has regressive behavior (more and more difficulty walking, talking, etc). It was really interesting. The show was about twins that were diagnosed with cerebral palsy, but found out about this rare (and recently discovered?) condition that can be treated with dopamine drugs. I found it fascinating. Looking online, I found several articles discussing dopamine therapy for cerebral palsy, but I am not sure if it is because they really have dystonia or if it is also a helpful treatment for cerebral palsy.