Granny's gone and done it again

[Rillowen]

Umm.. I live in pain, but I communicate. Not always though.

I know someone with late stage parkinsons, he cant speak anymore, and barely writes. I worry about that for him. I live in pain... but its all minor, and I can communicate. I can only imagine how painful having a body wide "Charlie horse" constantly would be.

 

[Granny Hatchet]

Me too. Can't believe it will be 5 years come May that my husband passed with Alzheimers..with Frontal.
Can you belive it Granny?

No way!

I have Peripheral Neuropathy. Half of my feet are numb most of the time.
Hey..my appointment for my ABI is coming up! Will be interesting.

and again, I don't remember what ABI stands for.

 

[Granny Hatchet]

3 1/2 months since Tom left me. I'm still waiting for him to walk thru the door.

 

[Cynthia12]

I know someone with late stage parkinsons, he cant speak anymore, and barely writes. I worry about that for him. I live in pain... but its all minor, and I can communicate. I can only imagine how painful having a body wide "Charlie horse" constantly would be.

I have a neighbor who just lost her husband..last month..to ALS. He lived only a year after diagnosis. Actually a blessing.

 

[Cynthia12]

3 1/2 months since Tom left me. I'm still waiting for him to walk thru the door.

Yes. I remember that. Doesn't happen in this house.
Now I get excited when Austin gets home from a trip. Just walked into the door anout 20 minutes ago. Has been in Arizona with my daughter Mindi selling a line of clothes for her son and daughter in law. The ones that just had the baby.
He was gone for 4 days.

 

[Granny Hatchet]

Hospital called and rattled off my email. I asked where she got it because I have never gave it to anyone. She said when I signed up for my chart I had to use it there and that's where they got it. I had her take it down. Shoot, I don't even know how to get there.

 

[Cynthia12]

The ABI will check my BP in my legs..and from my legs to my arms. Hope there's an answer for my purple feet and legs.
Now for an answer for my Mylopathy, Vestibular problems, Peripheral Neuropathy. Occipital Neuralgia. Fibromyalgia. All together now, Lupus. It is Lupus, it isn't Lupus, it is, it isn't. My Dr says the test being 100 % on the top part and 80 % on the lower..and all of my symptoms, is pretty darn..there. It's ok. I won't take the meds for it. He talked about me going to a specialist. I said, they'll just offer drugs.

 

[Rillowen]

I have a neighbor who just lost her husband..last month..to ALS. He lived only a year after diagnosis. Actually a blessing.

He has been living in the final stages for the last 10 years. This is the first year he lost speech completely. I hurt for him. He was a genius, built houses, learned 5 languages, translated the Bible, a brilliant man. Now he is locked in his own head with even thinking being painful.

 

[Cynthia12]

Hospital called and rattled off my email. I asked where she got it because I have never gave it to anyone. She said when I signed up for my chart I had to use it there and that's where they got it. I had her take it down. Shoot, I don't even know how to get there.

I do give mine at appointments. I get notifications for upcoming appointments. I need those.. Brain fog is a thing.

 

[Cynthia12]

He has been living in the final stages for the last 10 years. This is the first year he lost speech completely. I hurt for him. He was a genius, built houses, learned 5 languages, translated the Bible, a brilliant man. Now he is locked in his own head with even thinking being painful.

Yes, Dementia is a horrible thing. Lost my husband to Alzheimers. He also built houses. In fact, the first home I moved into when I married him, he had built on the whole back half of it. Giid thing. Wr combined family. 12 kids between us.
He was so smart. He was in quality control at a huge company. He had to check cracks in very latge valves that you couldn't see with the naked eye, then measure it. Had to use special equipment to see a hairline crack.