Is There Anybody Else Here With Aspberger's Syndrome?

[geebs]

Knock Kneed hen It will explain him...not define him....why wouldn't you want him to take the ranks with Bill gates, Tom Hanks, Robin William, Abraham Lincoln, Thomas Edison, Albert Einstein... And Geebs...

Hang in there...It is a wild ride learning who we are..... Just build a bridge to him and let him build one to you.... It is quirky but it is the way he is... a beautiful mind.... It is a sensory thing...Find out what makes him tick and life gets sooo much easier... My son is Aspy and protecting him is my hardest thing....He is more impacted than my daughters and that is dangerous... Protection from people who don't understand is really the key.... Tony Attwood has an amazing video that explains it best... Very well worth the bank it takes to aquire it.

 

[Knock Kneed Hen]

Quote:
Thanks! Just this weekend my son had what I call a meltdown. I know him and I know what it was about. After wards someone said to me that it's hard when our kids act like brats. I pointed out that he wasn't being a brat. Then they said that what they meant is that he was trying to get his way and manipulate me. Noooooooooooooo....I'm in mama bear mode right now. People need protection from me!!

Thanks for recommending the video. I'm going to order them right away!

edited to change my intention

 

[Knock Kneed Hen]

Just met with the "team" at my 9 yr. olds school. They haven't committed to saying whether or not he's on the spectrum. They're sensitive to what labeling a child does and want to collect more data. In the mean time they're going to start helping him develop social skills with his peers so at least he'll receive services. I was very emotional today listening to others describe him during school hours. It breaks my heart that he doesn't "fit in." I think the "team" is really dedicated and a great group of professionals so I'm greatful for that.

 

[geebs]

Hang in there... He DOES fit in... just not in that group.

He will find his space.... (it is going to be okay)

Having my son's diagnosis sent me reeling but now.... I wouldn't have him any other way. Just advocate for him while you learn to understand what it means. If I didn't write it before... Tony Attwood... best and latest information available...

 

[Knock Kneed Hen]

Thank you, and yes you told me about Tony Atwood. We bought a couple of his books and almost immediately felt relief after reading them. It explained so much to us and has been a huge help in unifying us. I certainly wouldn't want him to change. I just want to help him feel comfortable at school, maybe make a friend.

 

[justbugged]

KKH I would get a medical diagnoses, rather than relying on a school to diagnose your son. I believe that to truly have a diagnoses of Aspbergrer's syndrome, that your son would need neuropsychiatric testing from a medical professional. I know that I am scheduled for testing sometime in March. I am a much older woman that has always been different than most people. So I am so willing to find out why I am the way that I am.

I agree with geebs that it is more about explaining what is different and unique about each person. I hope that a persons potential can then be crafted in to success, rather than being shut out because we aren't just like everyone else.

 

[Tartannik]

I have read this thread with so much interest!! I have alsways known I was 'different', i am not saying that I have Aspergers, maybe I have autisic tendencies but just reading what people 'have' to do sounds like me.
I don't particularly 'like' people, I prefer to be on my own, always have done (I dream of living in the middle of nowhere being surrounded by animals)
I am in fact married with 4 kids, who I love dearly but I am not a 'lovely dovey' mum, dont' really do cuddles, don't like looking people in the eye and can't stand anyone being in MY space.
Hate social occasions if i have to talk to people or worse if there are people i don't know. I am ok with people i know, sometimes i dont' shut up, other times i would rather be on my own and most people know it, lol. I never tire of being with my animals though and talk to them all the time!
Someone told me once that autism and Vitamin B12 deficiency are linked, i have never looked into and don't know if there has been any tests done but as i am actually b12 deficient, it does make me wonder.......
I was just wondering if anyone has 'colours' for the days of the week? I quite often sit and count 1-5 on my fingers just when i am sitting, if i am sitting i can't sit at peace and always have my foot moving! I could go on and on, the thing is, I am quite happy being me and often wonder why people are happy being them, lol!

 

[Knock Kneed Hen]

Quote:
We have taken him to the doctor but the doctor wants the school to complete their evaluation so he can use the test results from them instead of redoing it all. The school suggested we wait until we observe him more and collect more data...they said that sometimes doctors will be swayed by other findings and they want to make sure they are thorough before releasing THEIR findings. I think for a school they're being very cautious and are genuinely concerned. We are a small community with a lot of resources. They can really devote a lot of time and resources to him. I know that ultimately we have to have a doctors diagnosis for it to be an official diagnosis.

He shows some tendencies of high functioning autism, except that he is VERY social...but only with adults. He has a hard time interacting appropriately with his peers. I think he feels comfortable with adults because they are kind and adjust to accommodate him. It's what adults do naturally. Kids haven't acquired the skill yet so when another kid doesn't want to play by the official rules or he wants to quack like a duck when the rest of the class is wanting to play ball then they tend to ignore or shun him. I'm proud of him for being able to hold it together at school, but it's only going to get harder. I want an official diagnosis by the end of this school year.

 

[geebs]

I will caution you... THe budget cuts and such that a lot of schools experience leaves aspergers testing in the lurch... That is a common theme so they will sometime try what is easy and an already established path... I firmly agree that if I had not had outside testing done.. The diagnosis would have been different and inaccurate. The school was ready to send him down the wrong avenue. THis is what I mean by advocate for him/her. It means trust yourself and your love of your child above all others. The funding where I live is easier to achieve for mentally disturbed than for autism.... so that would have been the avenue they intended for my child. Outside testing that you pay for is impartial though not inexpensive. I am really glad I did because not only does he have an IEP... It is a 504, making it medical, not mental.

 

[FireTigeris]

I know I am 'on spectrum' and I fit ADHD/Asp the best.

It's not really that big a deal if its really mild.

I 'pretend' to be normal around other people- look at faces instead of souls- trying to read facial cues and body language.

Everywhere else I do what's normal for me- my biggest problem is my new family that doesn't get it.

I guess they will get used to me...