My leukemia's back.

[donrae]

So, bone marrow biopsy is done, should have results late Wed or Thurs.

I try not to be too much of a control freak here, but apparently they hit a hot button this morning

. I have my biopsies done under conscious sedation now, so they take me to a special unit, not in the room like normal. I'd told the nurse earlier to be sure transport knew to bring a wheelchair, cause for some reason they always want to use a gurney. I told her gurneys are for sick people, not me. We joked about how she could have me in a gown and hospital jammies ( I wear normal clothes while I'm here), maybe some of those nice TED hose, things to make me look sick. So, then transport gets here and the special unit wants me in my bed. Seriously? I'm walking a mile and a half a day and they want me in my hospital bed, wearing a mask, wheeled through all these halls, two different elevators....are you kidding? The nurse tried, but the unit insisted. I said okay, and fully intended to ride the bed there, but I just couldn't do it. I honestly had a little attack, I was shaking and crying and told the nurse it was just humiliating. She was great, validating my feelings and saying how great it was I don't see myself as sick and she wouldn't want to do it either. So, the nice man from transport pushed my bed from my room to the special unit, and I walked along behind him

. The nurse practitioner doing the biopsy saw me as we were leaving the unit and said how great it was I was standing up for myself (literally, lol). She was joking that as we got to the special unit, the transporter should hop on the bed and I'd push him in....I didn't need to go that far, but it was great to have the support. The staff here is amazing all around.

I did ride the bed back to my room, but they didn't recover me hardly at all and I mostly dozed on the way back. Didn't notice if folks were staring at me, so wasn't near as big a deal

.

Now, I'm back waiting for late lunch, drinking my beloved Diet Coke, chatting with you folks. Life's good!

 

[sourland]

Sounds as if you have some good folks working with you - even those bound by the 'rules'. I have a feeling that you are a good experience for some of them. Ya know, you're allowed a 'little attack' every now and then. Being strong and in control all of the time is hard work -----------

 

[Bunnylady]

I admire your spirit; I totally hear where you are coming from. I applaud you, the nurse, the nurse practitioner, and the guy from transport!

Don't suppose you know how to juggle . . . ?

See, I have a mental picture of someone sitting on a hospital bed, being wheeled through the halls, juggling all the way. A good-humored way to say, " OK, I'm doing what you want, but I'm not taking it lying down!"

 

[tahoechick]

I signed up on the donor registry after seeing the link on your signature.
Good luck with everything. I can't even begin to imagine how difficult it must be...

 

[drumstick diva]

I'm just meeting you through this thread but, I see many of my BYC buddies on here know you. I am a praying person, I hope and pray for the very best outcome for you

and will be checking back often.

 

[3goodeggs]

I love your transportation story!
You should be in the driver's seat.
I am glad they relented.

 

[donrae]

I signed up on the donor registry after seeing the link on your signature.
Good luck with everything. I can't even begin to imagine how difficult it must be...

And thank you so very much! It's cause of amazing folks like you I have a chance to beat this.

 

[sumi]

Hey Rachel, just popping in to wish you a happy Thanksgiving

 

[3goodeggs]

Happy Thanksgiving! We are thankful for you and you great sense of humor and indomitable spirit! You are in our prayers and best Wishes everyday!

 

[N F C]

Greetings from Florida...
Happy Thanksgiving to you and yours!