My leukemia's back.

[sourland]

My grand daughter lost her hair after undergoing chemotherapy because of her Lupus. When her hair came in she dyed it an auburn color. Picture an Asian girl with auburn hair - beautiful. She was a trooper through the whole ordeal.

 

[N F C]

Good for her Sour...people should do things like that if it makes them feel better about themselves. As for your g-daughter being a trooper, maybe she got some of that strength from her grandparents

 

[lazy gardener]

Picture please!

Gonna be a long wait. Pretty near the bottom of that list.

 

[sourland]

NFC, she went into 'Lupus nephritis', and we were afraid that she was going to die. I think that the hair color change was part of embracing new life for her. Any strength she garnered from us was by nurture rather than nature.

 

[Blooie]

One of the three bravest little girls I've ever had the honor to call family -


Our Ashley - battling leukemia since January 2015 Thought you all might like to see an update. She's doing very well. Still tires easily, but her chemo-induced glaucoma has been less this round. Her spirit and attitude is irrepressible....some trouble with labs delaying chemo a few times but she always rallies. And would you look at that smile! Her photo is also on the Fundraiser for Sanford. I was shocked to learn the statistics on childhood cancers .....as you read this 3 more families will hear those dreaded words that will turn their lives upside down, and another child will lose the battle. Yet childhood cancers are the least funded of all. Only 4% goes to fund research and treatments for these little warriors. I'm so proud of Ash and her entire family.

 

[donrae]

Blooie, I'd been wondering how Ashley was doing. Thanks for the update!

I colored my hair today, darkish auburn. It's the color that looks best on me and I'm so happy with it. Not sure why I waited so long.

But then at Joann's, I saw a girl working the fabric counter with the prettiest short hair in shades of light purple/lavender. Oh, it was so, so pretty! I'm probably too old to pull that off, but I may look into some of the clip on color swatches once my hair grows out enough to clip something to lol.

Good visit with the Dr today. He's doing to increase my dose of Advair to get more inhaled steroid, getting more benefit where it needs to go while decreasing the oral prednisone--yippee! He's also going to look into increasing my Zithromax. It's currently every MWF, but he read some research if a specific lab is elevated I could benefit from a daily dosing. So, I'm having labs done tomorrow anyway, we'll tack that test on. Also get another EKG cause the Zithromax and posaconozole (antifungal) both can contribute to prolonged QT syndrome, where basically your heart stops and you die. We agreed heart stopping is a bad thing, so periodic EKGs will be done while I'm on those meds. This Dr spent a good amount of time with me, pulled the computer screen around so I could see the research he was looking at, answered all my questions, had a very clear plan and said he'll do some research on my other meds, specifically why such a small dose of the Singulair. I did a spirometery in the office and it's a touch better than my PFT was in October. He wants to repeat that monthly. He said what I've got at 3 months is probably as good as I'll be for the rest of my life. I pretty much knew that, but it was still hard to hear. I know lungs just don't come back, but was holding hope for a miracle. Not that a miracle can't still happen, but I feel I've used mine already. And I can absolutely do everything I need to do, just not everything I want to do.

Maybe I'll process more cockerels tomorrow. That can let off some upset feelings! Poor little guys.

 

[LittleLakePhil]

I'm sorry to hear that about your lungs...I'm glad you found a good Dr but still confused as to why your lungs are doing what they are doing.
I would figure in the 18 years since I went through my transplant that they would have things do much better. When I went through mine they kept telling me that the processes were so new they didn't know much about post transplant treatment,etc.
My COPD is caused from years of asthma that isn't well controlled and years working with hazardous fumes,etc.
I for one am pulling for you (I know everyone else is too, but I'm just doing it with more of a sort of familiarity) I hope your lung function improves dramatically.

 

[N F C]

Good morning Team!

Blooie, what a great smile on the g-kid of yours! And what a brave, strong girl. I had no idea funding for childhood cancers was so low or the frequency of it.

Rachel, sounds to me like you found yourself a darned good doctor. And it's ok to take out your feelings on those cockerels, you'll have something positive to show for it (meat in the freezer).

 

[Bunnylady]

Rachel, that Dr. sounds like a keeper! Bummer on the lungs, but sounds like you are finding something positive to do with some negative energy.

But if you want to play around with wild hair colors, there are several brands of temporary hair color out there. We used a couple on Syd and Blondie on Halloween:

Gotta warn you though, these things may contain scents that bother you. My ponies came out of this smelling like a hair salon!

 

[N F C]

Rachel, that Dr. sounds like a keeper! Bummer on the lungs, but sounds like you are finding something positive to do with some negative energy.

But if you want to play around with wild hair colors, there are several brands of temporary hair color out there. We used a couple on Syd and Blondie on Halloween:

Gotta warn you though, these things may contain scents that bother you. My ponies came out of this smelling like a hair salon!

Hi Bunny, looks like your ponies were a hit!