My leukemia's back.

Rachel...congrats on the good labs!

My hubs had to have a trach tube for several years and his doctor prescribed Acetylcysteine for the mucus in his chest. It has to be inhaled or in his case squirted into the tube...sure was a life saver many times as it would quickly break up and liquefy the gunk! Doc said it was very effective for R.A.D. Sufferers.

I come to this thread to enjoy the high motivational support you give each other....lifts me when I'm discouraged as a caregiver.
Oh, I can so relate to that! I adore my granddaughter Kendra but sometimes the meds, the lifting, the multiple cathing, the enema, and the therapies sure get to me. Shhh, don't tell anyone I said that - they think she's perfect! Well, so do I come to that, but she is a lot of work. We may have reached a milestone, though - she's learning to get into her wheelchair by herself! That will help!
 
Hi @NanaKat glad to pull up another chair at the table! We're all here for each other...someone once said we're suspenders because we hold each other up and it's true. Nice to have you here!
 
@Blooie that will be a wonderful help Kendra getting in the chair herself. That much less lifting for you and that much more independence for her!
 
Thanks, Phi....I'm not going for sainthood - just Gramma of the Year would do quite nicely!
big_smile.png
 
My hat's off to all you caregivers. I'm a nurse by trade and was very good at it, but I always got to go home at the end of the day. Ya'all are amazing.

And go little Kendra!

Blooie, did you ever look into getting some help for the heavy stuff?

We finally got our guardianship papers filed for Echo. The Court Visitor called today to make an appointment and we chatted on the phone a while. From some of the questions he asked, it just makes me sad thinking what he must see in the course of his job. But they were just funny for me, cause I know Echo and my other boys. Things like, was I concerned about Echo being a year older than Big Boy, cause next year he (Echo) would legally be able to buy cigarettes and give them to my other kids. I just laughed and said he wouldn't dare! Not that any of them want to smoke anyway, they all know how nasty it is. And watching Pop-pop drag on for the last few years with his horrible heart and associated issues, and seeing the only thing keeping him going is wanting one more smoke, has made a big impact. And then the CV was saying after Echo is 18 we can't compel him to go to school, what will we do if he doesn't want to finish his senior year? Well, we'd boot his butt out, that's what we'd do. But the entire point of him living with us is so he can graduate, and he's so motivated. His grades are great, and attendance is wonderful. I don't know how he's such a great kid with all he's been through. God truly has plans for him, that's for sure!

Anyway, the CV will be out tomorrow to talk with us. As he put it, make sure we're not running Party Central. I told him the biggest party we had was cleaning horse stalls......so I'll probably spend tomorrow cleaning up the house. Probably put my convalescing chicken outside, she's kind of stinky. Hope you all have a good day tomorrow, and if anyone wants to come work off some issues by cleaning, just let me know, I'll leave the gate open for you
big_smile.png
. I hate cleaning.
 
Rachel, hope all goes well with the Court Visitor. You have formed such a great family unit, they'll have to see Echo is yours.

Happy Friday everyone, make it a good one
smile.png
 
Y'all are an inspiration - you truly are.
hugs.gif


But I think I need to crawl over to one of the coffee threads and get another cup or two - the few brain cells I have left are still not firing. A few minutes ago, I saw a billboard with one of the local dentists' ads in my rear view mirror, and in my rather befuddled state, it read:
SLIME
Dyslexia, much?
lau.gif
 
Last edited:

New posts New threads Active threads

Back
Top Bottom