My leukemia's back.

[donrae]

I'm at 20mg a day on the prednisone.

 

[LittleLakePhil]

I'm at 5 now but I've been at 10 till o week ago.
Well I hope you can taper down. Were you at a higher dose? I think if you were a little lower you wouldn't have so much an issue with you sugar levels.

 

[donrae]

I've been all over the place. Right after transplant I was on 60 a day. They tapered that down and I was off for several months until the gvh started to flare, I think that was back in Sept or Oct? Can't remember exactly. They restarted me on 50 a day, and I've gradually tapered down to 20 now. They'd tried 15 a few months ago and I failed, was horribly SOB and had a hard time functioning. 20 seems to be my sweet spot for the breathing and gvh, but I'm guessing it may be cumulative for the sugars? Not sure.

 

[donrae]

Saw the Dr today and got the okay to taper the prednisone down to 15. I think I'll alternate 20 with 15 for a few days before going down to 15. And be a little more aware of possibly decompensating.

I lost my temporary filling tonight. I'm thinking to just have the tooth extracted. I'd decided years ago I didn't want to continue to pour money into my mouth. I'll talk to the dentist on Monday. It's going to take some serious drugs or sedation to extract this puppy. I was so apprehensive just having them work on it, I had the shakes and had to sit in the van about half an hour before I could drive home. I hate that, I never used to have anxiety about going to the dentist. Having leukemia seems to have broken me for dealing with potentially painful medical procedures.

On the happy note, I'm getting more little blue/green eggs! I had a total of 4 girls reaching point of lay, I got 3 eggs today from them. They're so cute, and look so pretty next to my large Marans eggs. I have them sitting in one of those open faced egg flats on the counter. Every time I walk by, a boy has re-arraigned them in a different color pattern

. It's like they're writing secret code to each other or something, I just love it.

 

[Blooie]

Boy, you got a mixed bag of news for sure! Keep an eye on your breathing as you see-saw between those doses....but I don't have to tell you that! You already know, and besides, Phil will probably beat me to it!

I hate the dentist with every fiber of my being. I have to take anti-anxiety meds to take Ken and all I'm doing is sitting in the waiting room! Growing up Ma and Dad had a dentist for us who didn't believe in Novocaine for kids...said there was no way to know if it had adverse affects on children. Well, they thought he must have been the best thing since sliced bread to be so "modern" and up-to-date on the latest "research". But when you're a little kid and have to have an extraction or a filling and you KNOW there's no pain prevention, it's traumatic.

Congrats on the new blue/green eggs! I'll bet those little stinkers are arranging them in some kind of code....sounds like something Katie and Evan would do, too!

 

[LittleLakePhil]

Good luck Rachel on the tapering. I was on prednisone heavy for two years. I cannot remember the dose but for a long time I was at 100 then down to 80....
But I cannot remember what the dose was second year.....
What did they say about controlling sugar levels....
They never want to do much about mine....only when I was on really high dose of prednisone. Then it was pills not insulin which is the only reason I said that I doubted they would put you on insulin. I was just going by my experience.
I hope tapering works for you this time. I think you've been through enough.I'm hoping your breathing straightens out as you get farther out from your transplant.

 

[Blooie]

HA! This time I beat Phil to it!

 

[LittleLakePhil]

HA!  This time I beat Phil to it!  e

I let you.

 

[Blooie]

Ohhhhhh. Dejection. Disillusionment. Despair. <sigh>

 

[LittleLakePhil]

Ohhhhhh. Dejection. Disillusionment. Despair.

just joshing you.......