My leukemia's back.

[sourland]

Well, I could if you'd stay put!!!

Not ready for that just yet.

 

[lazy gardener]

Quote:

 

[donrae]

Happy Birthday Blooie!

You've been such a blessing to me the last few years. All the humming bird pics, all the wonderful supportive posts, your lovely way with words. Sharing of yourself and your family, your down to earth approach and advice. You are really amazing, and a great friend to have here.

Thank you.

 

[Blooie]

Whoa,.....I didn't expect THAT! Here all this time I'd thought of you as MY inspiration when things got rocky! Thank you. Your words mean more than you'll ever know..

 

[donrae]

Well I guess we're a good mutual support team then!

Went to the local hematologist today. Didn't really expect him to have a magic wand. He does agree I need to change my immune suppressant regimen. I'd been thinking a simple change in oral meds, but he's talking infusions, things like that. Kind of freaked me out. I thought I was done Being Sick. Maybe that's been my problem the last months, is trying to be healthy/normal. But I really felt good most of the time.......anyway, he's going to see about getting me seen up at the University next week. I guess I can hang on that long---I was telling Honey last night if something doesn't give here soon, I'm going to have to investigate some pharmaceuticals to get me through the day. Well, I've got the boys at home through the weekend, so it may be Entertain Mom Time.

Phil, what do you do when your breathing gets bad? I mean, literally, what do you do during the day when you can't breathe? I already feel like I spend too much time online. I can only watch so much TV, and I can only read for short periods of time before I lose the thread of what I'm reading. I find myself just sitting and staring into space. I feel like there are projects I could be doing, things I can do while sitting, but I just can't get the oomph to do them.

 

[lazy gardener]

I'm not Phil, but if your energy has gone AWOL, perhaps a nice nap is in order. Take up knitting, adult coloring books (gag me!)

 

[N F C]

I'm not Phil, but if your energy has gone AWOL, perhaps a nice nap is in order. Take up knitting, adult coloring books (gag me!)

I'm not Phil either, lol, but your suggestions are what I was thinking of too LG.

Grab a pad of paper Rachel and do some sketching...doesn't matter if you think you're any good or not, it could help you focus on other things. Or wrangle those boys into playing a board or card game.

 

[Blooie]

Genealogy! Oh, wait.... never mind that idea. Never know what will fall down out of that tree. <sigh> Um, hatching.....wait...not a good idea either. I like the sketching idea. Or even the coloring books. Goodness knows I do enough coloring around here when Kendra breaks out the crayons. Get some modeling clay and play in that! There ya go...you can put a clump down on the table and beat the stuffin' out of it, then form it into a delicate little butterfly.

Whatever you do, don't let yourself get too down. I'd be a fool to tell you that you shouldn't feel a little discouraged at this point. You'd never listen to me anyway and if anyone is entitled to a little "down in the dumps" time it's you! And that's healthy as long as it doesn't go on too long. It's when we reflect on where we are, what's in our power to change, and what we just have to let slide a bit longer.

 

[drumstick diva]

Rachel

and

 

[donrae]

Appt at the University is Thursday. Mid day appt, so we should be looking at a one day trip instead of overnight. That will be nice.

Been watching TV with the boys today. Ordered pizza for lunch, something we really never do. need to go to the grocery store--woo hoo! I'm going to make a boy go with me to help, they'll love that

.

I have a ton of yarn, I'm working myself up to starting a crochet project. maybe a blanket? I'm kind of burned out on hats. It can't be too complex or I can't follow the directions.....