My leukemia's back.

[ronott1]

eh.... not great. I hate going home... I like vacation....

and my dad is being horrid... -sigh- he is refusing to do what he is supposed to do, and keeps trying to rip out his lines including the feeding tube that goes into his gut (so bleeding, infection, etc.) Fighting is his only exercise. He refuses to do the swallow test to see if he can get the feeding tube out.

I find it super depressing that with everything that has happened to him, he is still stuck in this super self centered selfish pit and can't even see that there are other and better options in this world.

And yes... even though my mom has been gone, someone he knows visits almost every single day... and my mom has done face time with him, and talked to him......

Sorry Al!

Too many bad patients out there for sure!

 

[bobbi-j]

I take Ibrance, and Letrozole daily. They're to block my hormone receptors, so my hormones don't reactivate my cancer. The meds have done very good, keeping the cancer inactive, and recently have actually shrunk the existing tumors quite a a bit. It has also metastasized into my spine. I've had 2 extremely small bone mets, one each in two of my vertebrae. They've been showing as inactive until this last batch of tests.

The thing is, if the medication is working to reduce the bone mets, it will show on the tests as activity, until it finishes reducing them. I will be totally re-tested in 2 months. In 2 months, if the medication is working, it will either show as inactive, OR if it shows as active and the meds are working, there should be a reduction in the size of the mets. Otherwise, it means the cancer has become active in my spine. We're praying, if it's God's will, that the meds are working, and when I get re-tested, the bone mets will be smaller.

Praying with you that the meds are working.

 

[Alaskan]

Sorry Al!

Too many bad patients out there for sure!

yeah... I keep wondering just how bad I would be in the same situation . I sure hope I have learned to be better.... but then how often are we really honest with ourselves about our faults .

 

[Cynthia12]

I went to the Dr. yesterday, youngest granddaughter in tow, since it was my day to babysit. I was somewhat concerned about my latest test results. My doctor is too. The test results can mean either very good news, or very bad news. It's a little too soon to tell. I would really appreciate any, and all prayers that the tests are showing that my meds are working, and not that my cancer has returned.

Granddaughter started to get a bit antsy, and I told her I knew it was hard to be sitting still, and quiet for such a long time. She just turned 2. I told her, if she'd do her best, and behave, I would take her to McDonald's for breakfast. She did so good. Yes, when we left the Dr, we went to McDonald's. She earned it.

Prayers.

 

[getaclue]

Thank you for all the prayers. I suspect I'm at a crossroad, and needing them very much. I really do appreciate them.

Al, sometimes the meds can cause his type behavior too. Praying for him, you, and yours.

 

[bruceha2000]

eh.... not great. I hate going home... I like vacation....

You could, I suppose, forget where the airport is for a few months

Sorry about your Dad

 

[getaclue]

Good morning Team Rachel. Hope everyone has a wonderful day!

 

[N F C]

Good morning Team Rachel

 

[Alaskan]

You could, I suppose, forget where the airport is for a few months

Sorry about your Dad

I would... except the rest of the kids miss me.

 

[Cynthia12]

eh.... not great. I hate going home... I like vacation....

and my dad is being horrid... -sigh- he is refusing to do what he is supposed to do, and keeps trying to rip out his lines including the feeding tube that goes into his gut (so bleeding, infection, etc.) Fighting is his only exercise. He refuses to do the swallow test to see if he can get the feeding tube out.

I find it super depressing that with everything that has happened to him, he is still stuck in this super self centered selfish pit and can't even see that there are other and better options in this world.

And yes... even though my mom has been gone, someone he knows visits almost every single day... and my mom has done face time with him, and talked to him......

Oh wow. It is a worry when a parent is going through things. Man, and they can't even sedate him for some of these things. He has to be awake for certain tests. So sorry!