Quotes and Thoughts for the Day
- Thread starter sumi
- Start date
That is simply wonderful!!!!While I haven't been posting much lately, I always come to this thread and read the updates about the little guy! Prayers and happiness to you and your family!
X2!
e- Thread starter
- #31,003
- Jun 28, 2011
- 39,160
- 27,439
- 1,302
This is wonderful news!Update on Kyle's appointment today. Three weeks ago, the ultrasound tech had called in a couple of others to look at what was possibly something on Kyle's remaining kidney. The oncologist didn't feel it was anything to worry about, but said another ultrasound would be done today to see if there anything there. It has been a looong three weeks....
Hello everyone!!!
Well I am super happy to be writing to let you know that Kyle's ultrasound showed a clear normal kidney! This is fantastic news!!!!
So today Kyle had his last chemo treatment! We are so thrilled. And we will be spending the rest of the day celebrating.
I will write more soon but for now, we wanted to spread the good news
Thank you, BYC friends, for being there. You are the best!
As @DwayneNLiz knows, this is not over for Kyle. He will continue to be monitored for a long time to make sure he doesn't have a re-occurrence. Your continuing thoughts and prayers are greatly appreciated!!
THANK YOU FOR ALL THE WELL WISHES AND PRAYERS!
The following was in my inbox this morning but I didn't have time to forward it before work. I'm home for lunch so wanted to forward this on:
Hello again everyone!
I wrote quickly from the hospital earlier, but I wanted to give you all a few extra details from today. Kyle really had no idea what was going to happen today, so he went to the hospital armed with his green blanket and his new stuffed giant squid (he LOVES the animal the giant squid). He brought his usual humor to all at the hospital by attacking people with his squid... random nurse in the elevator, receptionist in the clinic, nurse trying to get his vitals, the doctor, the nurse giving him chemo... you get the idea. He likes to attack people by "swimming" the squid close and then aggressively hitting a person with the tentacles. It's quite funny except for the strangers he attacked who had no idea what he was doing. Like I said, always the jokester.
The ultrasound technician took a long time looking at Kyle's kidney, and brought a radiologist in to review the scans and look for another 5 minutes. After last time when they brought in additional people, I was nervous, but this doc looked and looked and said the kidney "looked good." We didn't know how to interpret that, so we waited to hear our doctor say it was actually clear. Our doctor looked at the scans and told us that it looked like a "normal, healthy kidney." That was the best thing we could have heard. The doctor explained that the ultrasound today was precautionary so they didn't miss something but they weren't really concerned.
We were also cautious about getting too excited until we had his blood counts back. His ANC was lower than last week and his white count was down, but all within "normal" for a chemo patient. Kyle received both drugs again. We are anticipating the same bad reaction as last time, but only time will tell. We were able to get him to eat after chemo and he ate a little before bed, so we are hoping this helps prepare his body a little better. We will wake him up at night to give him the Zofran like we did last time.
We had not told Kyle that this would be his last chemo until he was done. Then we gave him high fives and talked about it. He seemed to really understand. He was really excited. Since we had not planned a big celebration (we honestly had no idea what the ultrasound would reveal), we decided to take the kids to the Lego store in St Louis and let them pick out whatever they wanted. Katie got some girl Lego set and Kyle picked out some police island prison thing. The cool part was that we went to check out and the guy said something about if it was a birthday or something. I said no but we were just celebrating a big event so we let them pick something. He politely asked what the event was and I said "the end of chemotherapy." He was shocked but said congrats, and asked if we would hang out for a second after we checked out and he checked out the people behind us. I said sure. Another employee went in the back and brought out two little Lego bags and a Lego figure. When she asked Kyle what kind of special day it was, he almost shouted "Last day of chemo!" with a big smile on his face. It made the employee smile really big. I had no idea what would happen, but Kyle was really excited that he got an extra something special at the store. After the kids went to bed, we figured out that one of the bags was a Lego Angler fish! If you don't know, Kyle is really into ocean animals right now and obscure ones seem to be his favorite (sea cucumber, cuttlefish, giant squid, angler fish, etc), so he will be super excited in the morning when he sees what he got. We had a great relaxing evening at home building Legos.
Although this was Kyle's last chemo appointment, technically his treatment plan is three more weeks. He will still have his blood draw on the next two Mondays. Then on the 31st, he will have another ultrasound and chest xray. He will also have an appointment to see the doctor. That is the day he will actually "ring the bell" and have a small celebration at the clinic to celebrate the end of his treatment. He will have his next ultrasound 3 months after that (January). And then again 3 months later (April-ish). After that second ultrasound, they will consider removing his port. The doctor told us today that his immune system will not be back to full strength until around 6 months after treatment. For that reason, he will need to continue the sulfa meds he takes on the weekend until his port is out. Thankfully, Kyle calls that his "candy medicine" and gives it to himself willingly every time. We are so grateful for that.
Alright well I've rambled enough for tonight. Thank you again for all of your love, prayers and support for Kyle and our whole family through these past months. We are so grateful.
The following was in my inbox this morning but I didn't have time to forward it before work. I'm home for lunch so wanted to forward this on:
Hello again everyone!
I wrote quickly from the hospital earlier, but I wanted to give you all a few extra details from today. Kyle really had no idea what was going to happen today, so he went to the hospital armed with his green blanket and his new stuffed giant squid (he LOVES the animal the giant squid). He brought his usual humor to all at the hospital by attacking people with his squid... random nurse in the elevator, receptionist in the clinic, nurse trying to get his vitals, the doctor, the nurse giving him chemo... you get the idea. He likes to attack people by "swimming" the squid close and then aggressively hitting a person with the tentacles. It's quite funny except for the strangers he attacked who had no idea what he was doing. Like I said, always the jokester.
The ultrasound technician took a long time looking at Kyle's kidney, and brought a radiologist in to review the scans and look for another 5 minutes. After last time when they brought in additional people, I was nervous, but this doc looked and looked and said the kidney "looked good." We didn't know how to interpret that, so we waited to hear our doctor say it was actually clear. Our doctor looked at the scans and told us that it looked like a "normal, healthy kidney." That was the best thing we could have heard. The doctor explained that the ultrasound today was precautionary so they didn't miss something but they weren't really concerned.
We were also cautious about getting too excited until we had his blood counts back. His ANC was lower than last week and his white count was down, but all within "normal" for a chemo patient. Kyle received both drugs again. We are anticipating the same bad reaction as last time, but only time will tell. We were able to get him to eat after chemo and he ate a little before bed, so we are hoping this helps prepare his body a little better. We will wake him up at night to give him the Zofran like we did last time.
We had not told Kyle that this would be his last chemo until he was done. Then we gave him high fives and talked about it. He seemed to really understand. He was really excited. Since we had not planned a big celebration (we honestly had no idea what the ultrasound would reveal), we decided to take the kids to the Lego store in St Louis and let them pick out whatever they wanted. Katie got some girl Lego set and Kyle picked out some police island prison thing. The cool part was that we went to check out and the guy said something about if it was a birthday or something. I said no but we were just celebrating a big event so we let them pick something. He politely asked what the event was and I said "the end of chemotherapy." He was shocked but said congrats, and asked if we would hang out for a second after we checked out and he checked out the people behind us. I said sure. Another employee went in the back and brought out two little Lego bags and a Lego figure. When she asked Kyle what kind of special day it was, he almost shouted "Last day of chemo!" with a big smile on his face. It made the employee smile really big. I had no idea what would happen, but Kyle was really excited that he got an extra something special at the store. After the kids went to bed, we figured out that one of the bags was a Lego Angler fish! If you don't know, Kyle is really into ocean animals right now and obscure ones seem to be his favorite (sea cucumber, cuttlefish, giant squid, angler fish, etc), so he will be super excited in the morning when he sees what he got. We had a great relaxing evening at home building Legos.
Although this was Kyle's last chemo appointment, technically his treatment plan is three more weeks. He will still have his blood draw on the next two Mondays. Then on the 31st, he will have another ultrasound and chest xray. He will also have an appointment to see the doctor. That is the day he will actually "ring the bell" and have a small celebration at the clinic to celebrate the end of his treatment. He will have his next ultrasound 3 months after that (January). And then again 3 months later (April-ish). After that second ultrasound, they will consider removing his port. The doctor told us today that his immune system will not be back to full strength until around 6 months after treatment. For that reason, he will need to continue the sulfa meds he takes on the weekend until his port is out. Thankfully, Kyle calls that his "candy medicine" and gives it to himself willingly every time. We are so grateful for that.
Alright well I've rambled enough for tonight. Thank you again for all of your love, prayers and support for Kyle and our whole family through these past months. We are so grateful.
THANK YOU FOR ALL THE WELL WISHES AND PRAYERS!
The following was in my inbox this morning but I didn't have time to forward it before work. I'm home for lunch so wanted to forward this on:
Hello again everyone!
I wrote quickly from the hospital earlier, but I wanted to give you all a few extra details from today. Kyle really had no idea what was going to happen today, so he went to the hospital armed with his green blanket and his new stuffed giant squid (he LOVES the animal the giant squid). He brought his usual humor to all at the hospital by attacking people with his squid... random nurse in the elevator, receptionist in the clinic, nurse trying to get his vitals, the doctor, the nurse giving him chemo... you get the idea. He likes to attack people by "swimming" the squid close and then aggressively hitting a person with the tentacles. It's quite funny except for the strangers he attacked who had no idea what he was doing. Like I said, always the jokester.
The ultrasound technician took a long time looking at Kyle's kidney, and brought a radiologist in to review the scans and look for another 5 minutes. After last time when they brought in additional people, I was nervous, but this doc looked and looked and said the kidney "looked good." We didn't know how to interpret that, so we waited to hear our doctor say it was actually clear. Our doctor looked at the scans and told us that it looked like a "normal, healthy kidney." That was the best thing we could have heard. The doctor explained that the ultrasound today was precautionary so they didn't miss something but they weren't really concerned.
We were also cautious about getting too excited until we had his blood counts back. His ANC was lower than last week and his white count was down, but all within "normal" for a chemo patient. Kyle received both drugs again. We are anticipating the same bad reaction as last time, but only time will tell. We were able to get him to eat after chemo and he ate a little before bed, so we are hoping this helps prepare his body a little better. We will wake him up at night to give him the Zofran like we did last time.
We had not told Kyle that this would be his last chemo until he was done. Then we gave him high fives and talked about it. He seemed to really understand. He was really excited. Since we had not planned a big celebration (we honestly had no idea what the ultrasound would reveal), we decided to take the kids to the Lego store in St Louis and let them pick out whatever they wanted. Katie got some girl Lego set and Kyle picked out some police island prison thing. The cool part was that we went to check out and the guy said something about if it was a birthday or something. I said no but we were just celebrating a big event so we let them pick something. He politely asked what the event was and I said "the end of chemotherapy." He was shocked but said congrats, and asked if we would hang out for a second after we checked out and he checked out the people behind us. I said sure. Another employee went in the back and brought out two little Lego bags and a Lego figure. When she asked Kyle what kind of special day it was, he almost shouted "Last day of chemo!" with a big smile on his face. It made the employee smile really big. I had no idea what would happen, but Kyle was really excited that he got an extra something special at the store. After the kids went to bed, we figured out that one of the bags was a Lego Angler fish! If you don't know, Kyle is really into ocean animals right now and obscure ones seem to be his favorite (sea cucumber, cuttlefish, giant squid, angler fish, etc), so he will be super excited in the morning when he sees what he got. We had a great relaxing evening at home building Legos.
Although this was Kyle's last chemo appointment, technically his treatment plan is three more weeks. He will still have his blood draw on the next two Mondays. Then on the 31st, he will have another ultrasound and chest xray. He will also have an appointment to see the doctor. That is the day he will actually "ring the bell" and have a small celebration at the clinic to celebrate the end of his treatment. He will have his next ultrasound 3 months after that (January). And then again 3 months later (April-ish). After that second ultrasound, they will consider removing his port. The doctor told us today that his immune system will not be back to full strength until around 6 months after treatment. For that reason, he will need to continue the sulfa meds he takes on the weekend until his port is out. Thankfully, Kyle calls that his "candy medicine" and gives it to himself willingly every time. We are so grateful for that.
Alright well I've rambled enough for tonight. Thank you again for all of your love, prayers and support for Kyle and our whole family through these past months. We are so grateful.
Tumbling K
Crowing
reading that makes me almost as happy as ya'll........THANK YOU FOR ALL THE WELL WISHES AND PRAYERS!
The following was in my inbox this morning but I didn't have time to forward it before work. I'm home for lunch so wanted to forward this on:
Hello again everyone!
I wrote quickly from the hospital earlier, but I wanted to give you all a few extra details from today. Kyle really had no idea what was going to happen today, so he went to the hospital armed with his green blanket and his new stuffed giant squid (he LOVES the animal the giant squid). He brought his usual humor to all at the hospital by attacking people with his squid... random nurse in the elevator, receptionist in the clinic, nurse trying to get his vitals, the doctor, the nurse giving him chemo... you get the idea. He likes to attack people by "swimming" the squid close and then aggressively hitting a person with the tentacles. It's quite funny except for the strangers he attacked who had no idea what he was doing. Like I said, always the jokester.
The ultrasound technician took a long time looking at Kyle's kidney, and brought a radiologist in to review the scans and look for another 5 minutes. After last time when they brought in additional people, I was nervous, but this doc looked and looked and said the kidney "looked good." We didn't know how to interpret that, so we waited to hear our doctor say it was actually clear. Our doctor looked at the scans and told us that it looked like a "normal, healthy kidney." That was the best thing we could have heard. The doctor explained that the ultrasound today was precautionary so they didn't miss something but they weren't really concerned.
We were also cautious about getting too excited until we had his blood counts back. His ANC was lower than last week and his white count was down, but all within "normal" for a chemo patient. Kyle received both drugs again. We are anticipating the same bad reaction as last time, but only time will tell. We were able to get him to eat after chemo and he ate a little before bed, so we are hoping this helps prepare his body a little better. We will wake him up at night to give him the Zofran like we did last time.
We had not told Kyle that this would be his last chemo until he was done. Then we gave him high fives and talked about it. He seemed to really understand. He was really excited. Since we had not planned a big celebration (we honestly had no idea what the ultrasound would reveal), we decided to take the kids to the Lego store in St Louis and let them pick out whatever they wanted. Katie got some girl Lego set and Kyle picked out some police island prison thing. The cool part was that we went to check out and the guy said something about if it was a birthday or something. I said no but we were just celebrating a big event so we let them pick something. He politely asked what the event was and I said "the end of chemotherapy." He was shocked but said congrats, and asked if we would hang out for a second after we checked out and he checked out the people behind us. I said sure. Another employee went in the back and brought out two little Lego bags and a Lego figure. When she asked Kyle what kind of special day it was, he almost shouted "Last day of chemo!" with a big smile on his face. It made the employee smile really big. I had no idea what would happen, but Kyle was really excited that he got an extra something special at the store. After the kids went to bed, we figured out that one of the bags was a Lego Angler fish! If you don't know, Kyle is really into ocean animals right now and obscure ones seem to be his favorite (sea cucumber, cuttlefish, giant squid, angler fish, etc), so he will be super excited in the morning when he sees what he got. We had a great relaxing evening at home building Legos.
Although this was Kyle's last chemo appointment, technically his treatment plan is three more weeks. He will still have his blood draw on the next two Mondays. Then on the 31st, he will have another ultrasound and chest xray. He will also have an appointment to see the doctor. That is the day he will actually "ring the bell" and have a small celebration at the clinic to celebrate the end of his treatment. He will have his next ultrasound 3 months after that (January). And then again 3 months later (April-ish). After that second ultrasound, they will consider removing his port. The doctor told us today that his immune system will not be back to full strength until around 6 months after treatment. For that reason, he will need to continue the sulfa meds he takes on the weekend until his port is out. Thankfully, Kyle calls that his "candy medicine" and gives it to himself willingly every time. We are so grateful for that.
Alright well I've rambled enough for tonight. Thank you again for all of your love, prayers and support for Kyle and our whole family through these past months. We are so grateful.
thanks so much for the update.
I am so happy for all of you. Kyle sounds like an amazing, strong, sweet and talented little boy, he will go far in life.
- Thread starter
- #31,008
- Jun 28, 2011
- 39,160
- 27,439
- 1,302
Mary, this is so good to hear
It's nearly all over!! I hope Kyle is going to "stay in touch" after all this and let us know how he's doing.
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