So....talk about.....CANCER SUPPORT THREAD !!

[mikki717]

My mom was diagnosed with Metestatic Renal cancer before Thanksgiving. Two weeks ago they found a tumor in her femur. She is now taking Sutent, (supposedly an amazing drug for Renal cancer) and last week, infusion Chemo.

She is really tired, and has lost quite a bit of weight. (Something she has always tried, but just couldn't get rid of!!)

She has always been so robust and cheerful, now she is sickly, but still cheerful. She refuses to complain, which bugs me. How can I know she needs help if she doesn't tell me? She figures complaining won't help, so why bother people?

My dad is an amazing caretaker! You can really see the love they share.

 

[debilorrah]

DEB-- Please email me ANY TIME if you have questions about cervical cancer. I just did that whole thing last year- radical hysterectomy, chemo, radiation, etc. BLECH. Tell Sara I care and she can email me also at any time. I want to suggest the National Cervical Cancer Alliance as a resource. The people on that site + you guys helped through some dark days!

EVERYONE-- It's like falling back in with old friends. I haven't posted in months because I went back to work full time, then the house we were living in was foreclosed on so we had to move, giving up my precious girls as a result- couldn't bring them with us to the new place. I have been in mourning and didn't have the heart to even come to this thread until today. Glad I did though, because I see Deb needs me

. I sent the girls to live with a co worker who will do everything in her power and then some to let them live out their natural lives. She brings me the eggs sometimes and my family and I make a point of making something special with them

.

Cancer update- I have been in partial remission since November, full remission is coming July of 2013- planning a big to-do for that day! Feeling great, joined an exercise program for cancer survivors at the YMCA, sponsored by Livestrong. Hoping to get back some of that energy that I fed the cancer with. It would be nice to put it to GOOD use!

Again, thank you for being here. I wish you all well, and will try to check back more often! Change is not easy, but I will try to accept the new format...

Erin

You are one of the kindest people I have met here. I have a few others (dozens) on my list as well.

I hope everyone understands that I am going to have good days and bad days and it has nothing to do with cancer right now. But I love you all, and I care about how you all are doing, so I may come here and commiserate Ken's condition.

 

[3goodeggs]

Deb,
What's wrong with Ken? I do not cruse the other threads anymore, it takes too much time and causes too much frustration on this old computer.
I am sorry you are having so many crisis's right now. I keep up with this tread so I can send out positive thoughts and prayers. I will place him on the general list.
The smilies are not working, but ((hugs))
Jan

 

[debilorrah]

Deb, What's wrong with Ken? I do not cruse the other threads anymore, it takes too much time and causes too much frustration on this old computer. I am sorry you are having so many crisis's right now. I keep up with this tread so I can send out positive thoughts and prayers. I will place him on the general list. The smilies are not working, but ((hugs)) Jan

Stage IV (end stage) emphysema. Which means he has a 50% chance of living longer than 4 years, and it also means he has a 50% chance of not living.

 

[CoyoteMagic]

I am sorry that you are going through this. My grandfather was very important to me. He was the first death that devastated me. I understand your anguish.

Please understand that your grandfather will make his own peace at his own time, What you may define as the actions to be saved, 'step one step two etc', may not be what he has done, or the order in which he has done it. But he is thinking about what is next. Faith is a lot less 'cook book' oriented than it is when we are young. Time and events change our perspectives, just because he does not have yours, it does not mean he does not have one deeper than he lets on. Faith is a personal issue. Give him your love and comfort, and leave the rest to God.

I wish you comfort and peace.

Good advice 3!

Your Grandfather knows things that no one will ever know and no one is going to change his mind.S ounds like he is happy with how his life has played out and ready to face the last chapter. He will make peace with his own god before his time comes. You job is to help and support your Grandfather in whatever he needs your help with, even if it just to sit and be with him as he shares his memories. Make memories that you can share with your kids

 

[CoyoteMagic]

Quote: That's just how some of us are. We don't complain, we take each treatment, each barf, each strand of hair lost in stride. We try to make those around us comfortable with what is happening all the while stuffing down our own feelings. Tell her you love her and even though you may not know what to say, you are there to listen.

Your Dad is a special guy. I didn't realize how Super Wondeful my husband was until we started this wild ride.

 

[CoyoteMagic]

Hang in there Nurse!! My husband and I are facing foreclosure ourselves right now. We are trying to do a work out plan with the back but they keep saying we have more money than we do. In the 3 years that we have started this my income has been reduced by 75% I make just about $1200 on disability, Lurchie lost 50% of his income by changing jobs so he could stay closer to home to take care of me. He makes about the same as I do. I pay ove $800 a month on prescription co-pays not to mention the costs of office visit co-pays.

It's funny now when we are out riding somewhere, if I see a dirt road I wonder if up that road would be a safe place for us to live out of the truck when we loose the house. As long as I have Lurchie and my FurKids, I can make a home anywhere.

 

[3goodeggs]

Deb, I am so sorry about Ken.
You all have been through the ringer lately.
I will keep you and your family in my thoughts.

 

[Lunachick]

Debi - check out pivotalhealth.info it has some good stuff on info with lung issues. My DH has pulmonary fibrosis and he found serracor NK worked for his lungs! After six months of use he gained his capacity to breathe almost back to normal! You & Ken might be able to find something there. DH has other issues though, spinal stenosis being one of them.

I lost a hen on Valentine's day. She was my internal egglayer. She was improving over the winter when the egglaying slowed down and they all went through a molt. But as soon as the days got longer her health started to wane. In just 2 days she was gone. She would have been only 3 yrs old at the end of March. No more red sexlinks for me. They are lovely birds, but out of the 4 I had 3 died from egg laying issues before they were 3 yrs old. The one I have left is her sister and she is the boss lady and very hearty, but every once in a while she'll lay a shell-less egg glop. So now I'm down to 6 girls.

 

[Lunachick]

Nurse - I'm sorry you had to go through a foreclosure and lose your birds. BUT very glad to hear that your health is on the right track!!

Coyote - you too with the house?? My sister is in the same boat, it might take another year or two before she loses her house. So many people with this happening!

I'm not always on here lately, but do check in on a "almost daily basis"........