So....talk about.....CANCER SUPPORT THREAD !!

[chickadoodles]

That is great just try to keep thinking positive.

 

[oldhenlikesdogs]

So I'm being referred to a genetic counselor, has anyone else done this? Doctor says it's to establish a diagnosis. Everything freaks me out, wish I could forget all that I know some days.

 

[donrae]

Huh? I thought you were already diagnosed and had treatment? Did I miss something new?

I've known folks who went for genetic counseling, but not for cancer diagnosis. More for auto immune type things.

How are your labs doing? I had a little drop in platelets last week that had me all kinds of freaked out, but everything else was good so I'm trying to just go with it.

 

[oldhenlikesdogs]

I haven't a clue why it was brought up either.

I will let you know where this counselling thing goes, probably something more to freak me out.

 

[donrae]

I hear you on the test results. That little drop in my platelets gave me two sleepless nights, and I was so so crabby with my family. didn't want to stress them out with my obsession. I finally got the rest of my CBC today and everything else looks fine, so I'm thinking it's just a blip. Re-check next week, so we'll see.

that's weird they're bringing this up now. I can't remember, do you have kids? Would this be something they'd be looking at you passing on?

I didn't have any clue I was sick. My youngest son, the Super Sniffer, later told me I'd smelled weird to him for a while. We had a talk about telling momma if he smelled that again!

Ask your doctors what's up with this testing! Get some good answers you understand. There's got to be a reason.

I've still got the muscle weakness. I think mine is from the steroids. I was playing with the dog yesterday and chasing her, you know, making that lunging grab toward her. My legs got so weak and I just caught myself with my hands on the ground, thankfully stayed on my feet but it was a close one. Our step from the garage is higher than normal and I can usually make it with a normal laundry basket, but if I'm carrying a large load or something heavier I have to set it down and step up, then pick it back up. And don't get me started on memory loss! I'm considering going back to work, but man I'm not sure I'm going to be a good employee at this time. Not sure the brain can handle it yet.....

 

[oldhenlikesdogs]

I thought I was the only one, but the internet is full of people suffering afterwards with muscle and joint problems, the doctor acted like he never heard of it, but the nurses knew more stuff than him.


Do you still take steroids, I hated those too, I hated everything.

I fall down a lot, big bashing falls, one a month so far this year. I can't stop myself once I trip or get off balance. I use the same technique as you to get my heavy stuff up and down stairs, I pretend like my laundry basket is a walker.

 

[LittleLakePhil]

Okay guys...I still freak about every test....and it's been 21 years since my diagnosis.
So freaking out is normal....oh wait I'm not sure I'm normal.
I'm only sure that telling you not to worry is pointless.
But if your Dr is telling you from a rational non emotional point of view he's not worried there's probably something to it.
Admit it we tend to blow things up in our minds. We're human.
I'll be thinking about you...you'll be in my prayer....so try and not let that beast called worry consume you...your here today and still have living to do....

 

[oldhenlikesdogs]

Thanks for the encouragement as well as a rational opinion, some days I need both Phil.

 

[LittleLakePhil]

I know me too...

 

[LittleLakePhil]

Hope everyone is well.....it's kind of a shame that this threat died....i think it was helpful