Glad that's behind you! And I hope the other shoe doesn't drop
JJ
JJ
So....talk about.....CANCER SUPPORT THREAD !!
- Thread starter Lunachick
- Start date
Enjoy the energy spurt you'll get when on the Dex. Although prepare for the lack of energy when you are off of it for that treatment. It's a roller coaster ride being on that stuff...
I suggest you talk to your oncologist about protections to avoid chemo-induced neuropathy. The taxanes (i.e., taxol and taxotere) are notorious for causing nerve damage. I'm several years out now from my experience with a taxane drug, but I am in pain EVERY DAY due to the neuropathy. There are certain things they can do during your course of treatment with those drugs try to lessen that effect, I think there is a prescription drug as well as certain vitamins and minerals that help. You really don't want to be in the boat I'm in now.
Remember: Just keep swimming, just keep swimming, just keep swimming...
I suggest you talk to your oncologist about protections to avoid chemo-induced neuropathy. The taxanes (i.e., taxol and taxotere) are notorious for causing nerve damage. I'm several years out now from my experience with a taxane drug, but I am in pain EVERY DAY due to the neuropathy. There are certain things they can do during your course of treatment with those drugs try to lessen that effect, I think there is a prescription drug as well as certain vitamins and minerals that help. You really don't want to be in the boat I'm in now.
Remember: Just keep swimming, just keep swimming, just keep swimming...
- Thread starter
- #443
Piecemaker - Surprise me! Thank you.
Coyote - The steroids didn't effect me too much, not yet anyway! I didn't get sleepy, just relaxed with the benadryl, but I did get annoying jumpy legs. I'm prone to RLS, so I kept reading my book to distract myself and kept shuffling my legs around trying to find a good position where they didn't bug me. Not much luck in that department, but it wore off the last 1/2 hour I was there.
Coyote - The steroids didn't effect me too much, not yet anyway! I didn't get sleepy, just relaxed with the benadryl, but I did get annoying jumpy legs. I'm prone to RLS, so I kept reading my book to distract myself and kept shuffling my legs around trying to find a good position where they didn't bug me. Not much luck in that department, but it wore off the last 1/2 hour I was there.
- Thread starter
- #444
- Thread starter
- #445
Quote:
You know, they didn't mention that, but it was in the literature, and that was scary reading. I suppose if I start to feel weird in the fingers and toes, I'll have to call them and then they'll tell me what to do.
I'm sorry you have to suffer from that,
what is it like for you now? I mean what kind of pain? Just when you get through one hurdle, there's another one lurking around the corner
You know, they didn't mention that, but it was in the literature, and that was scary reading. I suppose if I start to feel weird in the fingers and toes, I'll have to call them and then they'll tell me what to do.
I'm sorry you have to suffer from that,
- Thread starter
- #446
Luna
I am glad you got through your day! The unknowns are always so scary! Hurdle number 8 (less side effects) seems to have been a non-event! Yay! I hope you do well the rest of the week too!
Jenny
I am glad you got through your day! The unknowns are always so scary! Hurdle number 8 (less side effects) seems to have been a non-event! Yay! I hope you do well the rest of the week too!
Jenny
Lunachick, glad you got thru that first treatment, Did they put a chemo pump on you ? Every 3 weeks sound better. You should feel better after the first week. I had them every two week, feel bad one week outof the two....
Try not to spend to much time around the birds........Just feed and water, have someone clean the dropping up, DONT you clean up after them ,until after your treatment are over..
These treatments will be behind you before you know it.
May 5th will be 2yrs. from the time they found my cancer....
PM anytime you want to chat. Best to you,
Try not to spend to much time around the birds........Just feed and water, have someone clean the dropping up, DONT you clean up after them ,until after your treatment are over..
These treatments will be behind you before you know it.
May 5th will be 2yrs. from the time they found my cancer....
PM anytime you want to chat. Best to you,
Quote:
You know, they didn't mention that, but it was in the literature, and that was scary reading. I suppose if I start to feel weird in the fingers and toes, I'll have to call them and then they'll tell me what to do.
I'm sorry you have to suffer from that,
what is it like for you now? I mean what kind of pain? Just when you get through one hurdle, there's another one lurking around the corner
Don't think that because you don't experiencing the symptoms while you are on the drug, that you are in the clear. Please don't make that mistake. I'm not trying to freak you out here, but you really need to talk to your doctor about this now. My symptoms didn't start until approximately 10-12 months AFTER I was finished with my chemo. Oncologists aren't good about the whole long-term chemo side effects thing. They really aren't. Their number one goal is to destroy the cancer, at nearly all costs. This is the kind of thing though that once you are too late, you are too late. The damage is done. End of story.
Mainly my pain is in my lower legs, often times running up into my hips. I have pain, usually at night, in my elbows and shoulders. When it started, it felt very much like the bone pain I experienced while on the Neupogen injections (for neutropenia, you may or may not go on this drug). My doc went through all the tests...it wasn't the cancer, it's not arthritis, it's not fibromyalgia. He told me that it *might* get better in several years, but that there is a good chance I will experience this pain for the rest of my life. I'm 28, so that's a long time. I have good days and bad days. A good day is that the pain doesn't start until evening time. A bad day is waking up with the pain in my legs, and getting gradually worse throughout the day until I'm hobbling around the house at night trying to get the kids in bed like an old woman. A heating pad helps, but the second the heat is taken away, the pain returns.
I thought that maybe it's a fluke...but I got onto the YSC's website (young survival coalition) and was blown away at the number of young women dealing with chronic pain as an aftermath of chemotherapy and radiation.
You know, they didn't mention that, but it was in the literature, and that was scary reading. I suppose if I start to feel weird in the fingers and toes, I'll have to call them and then they'll tell me what to do.
I'm sorry you have to suffer from that,
Don't think that because you don't experiencing the symptoms while you are on the drug, that you are in the clear. Please don't make that mistake. I'm not trying to freak you out here, but you really need to talk to your doctor about this now. My symptoms didn't start until approximately 10-12 months AFTER I was finished with my chemo. Oncologists aren't good about the whole long-term chemo side effects thing. They really aren't. Their number one goal is to destroy the cancer, at nearly all costs. This is the kind of thing though that once you are too late, you are too late. The damage is done. End of story.
Mainly my pain is in my lower legs, often times running up into my hips. I have pain, usually at night, in my elbows and shoulders. When it started, it felt very much like the bone pain I experienced while on the Neupogen injections (for neutropenia, you may or may not go on this drug). My doc went through all the tests...it wasn't the cancer, it's not arthritis, it's not fibromyalgia. He told me that it *might* get better in several years, but that there is a good chance I will experience this pain for the rest of my life. I'm 28, so that's a long time. I have good days and bad days. A good day is that the pain doesn't start until evening time. A bad day is waking up with the pain in my legs, and getting gradually worse throughout the day until I'm hobbling around the house at night trying to get the kids in bed like an old woman. A heating pad helps, but the second the heat is taken away, the pain returns.
I thought that maybe it's a fluke...but I got onto the YSC's website (young survival coalition) and was blown away at the number of young women dealing with chronic pain as an aftermath of chemotherapy and radiation.
The other shoe is not going to drop, it may come untied,, but it ain't gonna drop! Congrats on your first day, I pray the rest of your treatment treats you kindly!
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