CoyoteMagic
RIP ?-2014
Quote:
I'm sorry Luna, I thought I had said something about this, but after looking back through my posts, I can't see where I did.
Mine didn't start to really show it's self until about 9months ago, nearly a year after my last Taxotere treatment. I had some bone and joint pain during my chemo but this is a different pain. Sometimes it is just pins in needles in my feet. Other times it shoot from the tips of my toes to my lower back. I don't have the pain so much in my hands and arms but I do have the occassional pins and needles. (I've got a disc in my back that gets wonky at times but this isn't that either. That shoot down my leg,not up and is fixed by some slow moving yoga stretches)
There are times when I can barely feel my feet and legs. It's like walking on stilts, you can't really feel what's under your feet. There are times that I am really off balance because I can't feel where I'm stepping. I'm not driving right now because I'm afraid I won't be able to feel the break peddle. I was recently approved for long term disability.
But hey, the cancer is gone!!
As Phoenix said, Oncologist aren't good on the long term effects. They thought I would be up and ready for work 8 weeks after my last treatment. I was feeling crappier and crappier, but it wasn't the post treatment crappiness.
Was at my family doc today, and he has prescribed something new. Actually something old to see if it helps. Amitriptyline. It's an old time antidepressant that is suppose to help with pain and neuro. We are going to go 3 months and see how it goes. If there aren't marked improvements he's sending me to a neurologist.
I have been doing research on my own of high doses of a lipid based Vit. B-12 and Thiamine. What I've been reading is that these are having positive results in diabetic neuropathy patients as well as with some MS patients.
ETA--Just wanted to add this doesn't happen to everybody. I had major health issues even before I got cancer, one being an autoimmune form of thyroid disease. My body actually attacks itself.
I'm sorry Luna, I thought I had said something about this, but after looking back through my posts, I can't see where I did.
Mine didn't start to really show it's self until about 9months ago, nearly a year after my last Taxotere treatment. I had some bone and joint pain during my chemo but this is a different pain. Sometimes it is just pins in needles in my feet. Other times it shoot from the tips of my toes to my lower back. I don't have the pain so much in my hands and arms but I do have the occassional pins and needles. (I've got a disc in my back that gets wonky at times but this isn't that either. That shoot down my leg,not up and is fixed by some slow moving yoga stretches)
There are times when I can barely feel my feet and legs. It's like walking on stilts, you can't really feel what's under your feet. There are times that I am really off balance because I can't feel where I'm stepping. I'm not driving right now because I'm afraid I won't be able to feel the break peddle. I was recently approved for long term disability.
But hey, the cancer is gone!!
As Phoenix said, Oncologist aren't good on the long term effects. They thought I would be up and ready for work 8 weeks after my last treatment. I was feeling crappier and crappier, but it wasn't the post treatment crappiness.
Was at my family doc today, and he has prescribed something new. Actually something old to see if it helps. Amitriptyline. It's an old time antidepressant that is suppose to help with pain and neuro. We are going to go 3 months and see how it goes. If there aren't marked improvements he's sending me to a neurologist.
I have been doing research on my own of high doses of a lipid based Vit. B-12 and Thiamine. What I've been reading is that these are having positive results in diabetic neuropathy patients as well as with some MS patients.
ETA--Just wanted to add this doesn't happen to everybody. I had major health issues even before I got cancer, one being an autoimmune form of thyroid disease. My body actually attacks itself.
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