Wonderful Redhead! Good for you. Sounds like an amazing doctor!
Let us know what happens.
Thyroid Disease suffers
- Thread starter Sugar Sand Farm
- Start date
Quote:
I read that same thing about using the generics with thyroid meds and I was recently put on the generic for Synthroid (giant L word). I didn't question it at the time because, well I don't know why but I see a new endocrinologist on the 14th and I'll ask him about switching.
On a side note, I'd like to know what drug it was that took the OP down to 108! I'll pay extra for that one
I read that same thing about using the generics with thyroid meds and I was recently put on the generic for Synthroid (giant L word). I didn't question it at the time because, well I don't know why but I see a new endocrinologist on the 14th and I'll ask him about switching.
On a side note, I'd like to know what drug it was that took the OP down to 108! I'll pay extra for that one
WOW! I've learned alot on this thread! My Dr. has told me that my Thyroid isn't working at all - I will be on medicine the rest of my life. Yes, I also take Levothyroxin - at 175MCG once daily.
I have been on several kinds of Thyroid medicines since the age of 19 (I weighed 98 lbs. and when I ate at McD's, I could eat 5.5 Big Macs with 2 large fries, and a large chocolate shake). I was literally eating my parents out of house and home, trying frantically to gain weight.
Take a teen eating 5-6 large bowls of cereal or eating everything that was left from the last nights supper for breakfast, 5 sandwiches at lunch, 2 -3 plates of supper, begging for more to eat, and had to have a bedtime snack, eating 4 p-nut butter toasts every night. Also add 3 younger teen sisters and 2 older brothers plus parents and Grandma.
I do not think my medicine is working now.
I weigh 200 lbs.
I gain weight while on Thyroid medication.
I do not gain weight if I do not take Thyroid medication.
I will be looking into the loads of onfo I've found from this thread, as I have things going on which I know are not normal for me.
I have been on several kinds of Thyroid medicines since the age of 19 (I weighed 98 lbs. and when I ate at McD's, I could eat 5.5 Big Macs with 2 large fries, and a large chocolate shake). I was literally eating my parents out of house and home, trying frantically to gain weight.
Take a teen eating 5-6 large bowls of cereal or eating everything that was left from the last nights supper for breakfast, 5 sandwiches at lunch, 2 -3 plates of supper, begging for more to eat, and had to have a bedtime snack, eating 4 p-nut butter toasts every night. Also add 3 younger teen sisters and 2 older brothers plus parents and Grandma.
I do not think my medicine is working now.
I weigh 200 lbs.
I gain weight while on Thyroid medication.
I do not gain weight if I do not take Thyroid medication.
I will be looking into the loads of onfo I've found from this thread, as I have things going on which I know are not normal for me.
Last edited:
WOW! I've learned alot on this thread! My Dr. has told me that my Thyroid isn't working at all - I will be on medicine the rest of my life. Yes, I also take Levothyroxin - at 175MCG once daily.
I have been on several kinds of Thyroid medicines since the age of 19 (I weighed 98 lbs. and when I ate at McD's, I could eat 5.5 Big Macs with 2 large fries, and a large chocolate shake). I was literally eating my parents out of house and home, trying frantically to gain weight.
Take a teen eating 5-6 large bowls of cereal or eating everything that was left from the last nights supper for breakfast, 5 sandwiches at lunch, 2 -3 plates of supper, begging for more to eat, and had to have a bedtime snack, eating 4 p-nut butter toasts every night. Also add 3 younger teen sisters and 2 older brothers plus parents and Grandma.
I do not think my medicine is working now.
I weigh 200 lbs.
I gain weight while on Thyroid medication.
I do not gain weight if I do not take Thyroid medication.
I will be looking into the loads of onfo I've found from this thread, as I have things going on which I know are not normal for me.
Wow... that's weird that you gain weight on Armour, but I guess if you have no thyroid function at all, how you are on the Armour would be "normal" for you I suppose! I do know some people who take Armour and Levo, or Armour and Cytomel. If your thyroid is not functioning at all and you stop your meds, you could put your life in danger! I hope you are able to find the best balance for you
I have been on several kinds of Thyroid medicines since the age of 19 (I weighed 98 lbs. and when I ate at McD's, I could eat 5.5 Big Macs with 2 large fries, and a large chocolate shake). I was literally eating my parents out of house and home, trying frantically to gain weight.
Take a teen eating 5-6 large bowls of cereal or eating everything that was left from the last nights supper for breakfast, 5 sandwiches at lunch, 2 -3 plates of supper, begging for more to eat, and had to have a bedtime snack, eating 4 p-nut butter toasts every night. Also add 3 younger teen sisters and 2 older brothers plus parents and Grandma.
I do not think my medicine is working now.
I weigh 200 lbs.
I gain weight while on Thyroid medication.
I do not gain weight if I do not take Thyroid medication.
I will be looking into the loads of onfo I've found from this thread, as I have things going on which I know are not normal for me.
Wow... that's weird that you gain weight on Armour, but I guess if you have no thyroid function at all, how you are on the Armour would be "normal" for you I suppose! I do know some people who take Armour and Levo, or Armour and Cytomel. If your thyroid is not functioning at all and you stop your meds, you could put your life in danger! I hope you are able to find the best balance for you
- Thread starter
- #155
I have a report from the USP announcing a revision to Leveothroxin sodium tablets. The requirement for the pills is changing. According to this report each company that produces this pill uses a different standard. The current requirement is that each pill must contain not less than 90.0 percent and not more than 110.0 percent of the labeled amount of levothryxine sodium the change will mandate that each pill contain no less the 95.0 percent and not more than 105.0 percent
This goes into effect Oct 3, 2009. It means taht the narrowing of range of acceptability will reduce the amount of dosage fluxuation being found in patience. It will also insure longer shelf life.
Meaning that depending on who your pharmacy buys their drugs from determines how much levothyrixine sodium you are getting. It could change from month to month It has also been found that levothyroxine does not have a good shelf life. Does that mean that the first pill you take and the last pill you take each month has a differnt potency. I would stay away from this drug. I told my doctor I wnated off She shanged my meds, saying she didnt think there would be a difference I had to have another blood workup to satisfy her. But I don't care what the blood work shows I know I am 100 percent better. No pains, no sugar rushes,no dry skin, no headaches no fatigue. I will not go back on that medication again its not worth my health to save a few bucks. I printed out the info on Levo and will be taking it to show her.
This goes into effect Oct 3, 2009. It means taht the narrowing of range of acceptability will reduce the amount of dosage fluxuation being found in patience. It will also insure longer shelf life.
Meaning that depending on who your pharmacy buys their drugs from determines how much levothyrixine sodium you are getting. It could change from month to month It has also been found that levothyroxine does not have a good shelf life. Does that mean that the first pill you take and the last pill you take each month has a differnt potency. I would stay away from this drug. I told my doctor I wnated off She shanged my meds, saying she didnt think there would be a difference I had to have another blood workup to satisfy her. But I don't care what the blood work shows I know I am 100 percent better. No pains, no sugar rushes,no dry skin, no headaches no fatigue. I will not go back on that medication again its not worth my health to save a few bucks. I printed out the info on Levo and will be taking it to show her.
Quote:
Wow... that's weird that you gain weight on Armour, but I guess if you have no thyroid function at all, how you are on the Armour would be "normal" for you I suppose! I do know some people who take Armour and Levo, or Armour and Cytomel. If your thyroid is not functioning at all and you stop your meds, you could put your life in danger! I hope you are able to find the best balance for you
Chicabee19 - No, I'm not on that "yet", I take Levothyroxin at 175MCG. I tried to not take my medication for a few months, I lost weight, but my Dr. fussed me out, telling me he couldn't regulate my thyroid levels if I kept myself in danger of getting sicker. I hate taking this medicine!!!!!!!!!!
Wow... that's weird that you gain weight on Armour, but I guess if you have no thyroid function at all, how you are on the Armour would be "normal" for you I suppose! I do know some people who take Armour and Levo, or Armour and Cytomel. If your thyroid is not functioning at all and you stop your meds, you could put your life in danger! I hope you are able to find the best balance for you
Chicabee19 - No, I'm not on that "yet", I take Levothyroxin at 175MCG. I tried to not take my medication for a few months, I lost weight, but my Dr. fussed me out, telling me he couldn't regulate my thyroid levels if I kept myself in danger of getting sicker. I hate taking this medicine!!!!!!!!!!
Thanks! I also found 2 books that I have read almost cover to cover, VERY informative, that I wanted to share with everyone on the thread. They are called:
Thyroid Power, 10 steps to total health, by Richard L. Shames, MD & Karilee Halo Shames, RN, PHD ~
&
Living Well With Hypothyroidism ~ What your doctor doesn't tell you... that you need to know, by Mary J Shomon.
These are fantastic books as well. The first book ~ Thyroid Power, even has a little ~Show This To Your Doctor~ section, that you can take in & prove a few things to them with ~ FANTASTIC!!!
On another note, I should get my results back Monday! ~ Regardless of the results, my new Doc has agreed to put me on a mild hypothyroid treatment ~ he said " Well, I guess if you start feeling better, we'll know we are on the right track." YEAHH!! for good docs!!
~Red
Thyroid Power, 10 steps to total health, by Richard L. Shames, MD & Karilee Halo Shames, RN, PHD ~
&
Living Well With Hypothyroidism ~ What your doctor doesn't tell you... that you need to know, by Mary J Shomon.
These are fantastic books as well. The first book ~ Thyroid Power, even has a little ~Show This To Your Doctor~ section, that you can take in & prove a few things to them with ~ FANTASTIC!!!
On another note, I should get my results back Monday! ~ Regardless of the results, my new Doc has agreed to put me on a mild hypothyroid treatment ~ he said " Well, I guess if you start feeling better, we'll know we are on the right track." YEAHH!! for good docs!!
~Red
im sory
i know how you feel , i was diagnosed with graves disease . my thyriod is all waked out
great news redhead! I'm so glad you have a doctor who listens to you.
True about the new guidelines on Thyroid meds!
Even Armour Natural Thyroid is going through the change. It's taking so long, there is now a shortage of the medicine world-wide. Your pharmacy can get it drop-shipped from Forest Labs, but those who are self-treating are having to resort to other brands while waiting for the new pills.
Even with the new guidelines, you could not pay me to take Levothyroxine or Synthroid.
I heard that the larger milligram Armour pills will be sold in blister pacs to help with longevity.
True about the new guidelines on Thyroid meds!
Even Armour Natural Thyroid is going through the change. It's taking so long, there is now a shortage of the medicine world-wide. Your pharmacy can get it drop-shipped from Forest Labs, but those who are self-treating are having to resort to other brands while waiting for the new pills.
Even with the new guidelines, you could not pay me to take Levothyroxine or Synthroid.
I heard that the larger milligram Armour pills will be sold in blister pacs to help with longevity.
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I'm so glad everyones getting tested for their thyroids - now I need to call my Endo and see if I can get in and get my labs done in depth, see about switching to something or adding Cytomel back in again; I'm done being tired and my hair is falling out yet again.
I love my Endo, he does whatever I ask him to do, and he's terrific as he does internal medicine as well, but its just forever to get into see him. *sighs*
Wanted to add a few things to touch on Chicabee's fibro information (great job Chicabee!!
) I often wonder how many thyroid patients have fibro (but my hubby doesnt have thyroid, just fibro along with me)....
Fibro: I have had fibro for 10 + years now and so does my hubby ( very rare that hubby and wife both have fibro at the same time). While rest does play a HUGE role in fibro, sometimes it not that easy. Studies have found (and lab tests) that Epstien-Barr virus and Chronic Fatigue Syndrome (a subsidiary of sort you could say of Epstein-Barr) are partly to blame for Fibro and many people that have Fibro are carriers of EB virus. It pays to be tested for this virus. Also, get your Vitamin D, K, Potassium and Magnesium levels tested - they play VITAL roles in Fibromyalgia (especially Potassium and magnesium). Very very imperative these be tested. Try to eat a banana every day, it does help believe it or not.
Exercise: Exercise in extreme moderation can be beneficial to some fibro sufferers, but it depends on how severe your fibro is. Most dx's of fibro is based on trigger points, you must have 11 out of of 18 points for dx of Fibro; hubby and I currently have more than 18 points and it sucks. We began with all 18 points and it has spread over the years. Yes Fibro does progress in some patients, but not all. Some light stretches is about all we can tolerate at best and some days, nothing. Some days clothing touching my skin feels like fire to me. Some days I cannot get out of bed I'm so exhausted, I hurt like someone beat me with a baseball bat and forget the weather
It wreaks havoc on my body. I'm 39 and I feel like I'm 99 some days.
Fibro research has been soooooo active lately. Neurologist have discovered that there is now correlation between it being a neurological disease base condition as well as a muscular condition and they are leaning more towards a neuropathy of sorts. This is why Lyrica (which I cannot take unfortunately) has been approved (and works) for Fibro. It helps calm the nerve endings down which misfire in fibro patients, causing that intense "fire/burning" feeling in the muscles. Think peripheral neuropathy...
Adding Salt: Be very careful doing this and check with your doctor first before adding any type of salt to your diet, even if you have low blood pressure. Not all low blood pressure is caused by fibromyalgia. I have Orthostatic Hypotension, which is caused by (and confirmed through testing/catheters to my heart/xrays) a defect at birth that makes my blood not pump correctly through certain vessels. Its not the same thing as POTS (also not caused by Fibro, but you can have POTS and have fibro...). You can add salt (I must due to having my condition) in moderation and very very little - to help raise my BP up, however if you have Thyroid conditions - make sure you do not use just any old salt as MOST SALT contains Iodine in it - iodine is taken up by the thyroid. You also dont want to add to your issue by going from low BP to high BP in one fallen swoop.
warm baths help TREMENDOUSLY with fibro - sometimes I take 2 a day just to feel better. Headaches are a very very common thing with fibro patients, so dont be surprised if you have them more often. Also - if you have any dental work done, fibro patients tend to heall very very slowly and are more sensitive with dental procedures (very true - i'm 6 months out from a filling and YEOW! did it hurt and I'm still using special numbing stuff, had it redone 3 times now, its simply fibro and there is evidence to support it, ADA has it and it doesnt look very good for us fibro sufferers, hence that "nerve hypersensitivity" issue.)
Double whammy for thyroid sufferers that have fibro.
Wanted to add a few things to touch on Chicabee's fibro information (great job Chicabee!!
Fibro: I have had fibro for 10 + years now and so does my hubby ( very rare that hubby and wife both have fibro at the same time). While rest does play a HUGE role in fibro, sometimes it not that easy. Studies have found (and lab tests) that Epstien-Barr virus and Chronic Fatigue Syndrome (a subsidiary of sort you could say of Epstein-Barr) are partly to blame for Fibro and many people that have Fibro are carriers of EB virus. It pays to be tested for this virus. Also, get your Vitamin D, K, Potassium and Magnesium levels tested - they play VITAL roles in Fibromyalgia (especially Potassium and magnesium). Very very imperative these be tested. Try to eat a banana every day, it does help believe it or not.
Exercise: Exercise in extreme moderation can be beneficial to some fibro sufferers, but it depends on how severe your fibro is. Most dx's of fibro is based on trigger points, you must have 11 out of of 18 points for dx of Fibro; hubby and I currently have more than 18 points and it sucks. We began with all 18 points and it has spread over the years. Yes Fibro does progress in some patients, but not all. Some light stretches is about all we can tolerate at best and some days, nothing. Some days clothing touching my skin feels like fire to me. Some days I cannot get out of bed I'm so exhausted, I hurt like someone beat me with a baseball bat and forget the weather
Fibro research has been soooooo active lately. Neurologist have discovered that there is now correlation between it being a neurological disease base condition as well as a muscular condition and they are leaning more towards a neuropathy of sorts. This is why Lyrica (which I cannot take unfortunately) has been approved (and works) for Fibro. It helps calm the nerve endings down which misfire in fibro patients, causing that intense "fire/burning" feeling in the muscles. Think peripheral neuropathy...
Adding Salt: Be very careful doing this and check with your doctor first before adding any type of salt to your diet, even if you have low blood pressure. Not all low blood pressure is caused by fibromyalgia. I have Orthostatic Hypotension, which is caused by (and confirmed through testing/catheters to my heart/xrays) a defect at birth that makes my blood not pump correctly through certain vessels. Its not the same thing as POTS (also not caused by Fibro, but you can have POTS and have fibro...). You can add salt (I must due to having my condition) in moderation and very very little - to help raise my BP up, however if you have Thyroid conditions - make sure you do not use just any old salt as MOST SALT contains Iodine in it - iodine is taken up by the thyroid. You also dont want to add to your issue by going from low BP to high BP in one fallen swoop.
warm baths help TREMENDOUSLY with fibro - sometimes I take 2 a day just to feel better. Headaches are a very very common thing with fibro patients, so dont be surprised if you have them more often. Also - if you have any dental work done, fibro patients tend to heall very very slowly and are more sensitive with dental procedures (very true - i'm 6 months out from a filling and YEOW! did it hurt and I'm still using special numbing stuff, had it redone 3 times now, its simply fibro and there is evidence to support it, ADA has it and it doesnt look very good for us fibro sufferers, hence that "nerve hypersensitivity" issue.)
Double whammy for thyroid sufferers that have fibro.
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