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This is a tough one. I also appreciate the concern raised and applaud knijnnm for voicing it. We want to protect our kids but reality is, people who are going to be malicious will find a way to do it regardless of whether we post gorgeous photos or not. In terms of them being copied and reposted, if the resolution is kept low (ie: 72dpi, and not too wide/tall) the reproduction options are pretty limited. We made the choice to post abundant photos of our family and especially our daughter as a way to connect with people and educate about her rare condition. Without photos, life becomes dull and colourless.
I love how vivid and rich these photos are and am so glad you've shared them!