Granny's gone and done it again

[twisted-acres-farm]

Well tis time to feed meself.

I wish you all a wonderful night, sweet dreams, fuzzies, prayers and healing thoughts.

urrent weather
9:56 PM
Seeing different weather?

57°F
Mostly cloudy
Feels like
‎49°
Light rain is expected. The low will be 53°.

 

[Granny Hatchet]

nope just eroding.

well poopy

 

[twisted-acres-farm]

ttfn there Granny.

 

[Granny Hatchet]

Well tis time to feed meself.

I wish you all a wonderful night, sweet dreams, fuzzies, prayers and healing thoughts.

urrent weather
9:56 PM
Seeing different weather?

57°F
Mostly cloudy
Feels like
‎49°
Light rain is expected. The low will be 53°.

I'm in the mood for pizza please! hahaha Sweet dreams

 

[Granny Hatchet]

I don't know where the time went. I wonder if I fell asleep earlier...
Well, Gnight lurkers.

 

[ShrekDawg]

Hi

 

[h2oratt]

coal.

I say copper

 

[CapricornFarm]

Yikes! Sure it's not the same bear, spotted twice? What kind, black, brown or grizzly?

No, the bears are quite different in size. Black bears only in VA.

 

[CapricornFarm]

well, the yaks are all ready/legal to haul to Cheyenne, Wy and then their new home in Divide, Colorado.

Great!

 

[CapricornFarm]

You really went through it, physically, mentally and emotionally I am so glad you found the right Dr and got an answer.

My symptoms have line up with lupus on and off for years but my SA (antibodies?) were negative twice (12 yrs ago and then this past December) and the systemic inflammation comes and goes. I do have Crohn’s disease but that is managed.

I firmly believe that whatever I am dealing with currently is from the RMSF infection. I know I was diagnosed early and treated but the symptoms worsened during and after the treatment which my neuro and GP just ignored. I could not handle it anymore and went back to urgent care, 4 months after initial diagnosis and treatment. Luckily I had the same Dr and he treated me a second time. Some of my symptoms were really hard to function with like the nonstop extreme headaches, neck stiffness, heat/sun intolerance, and more but the most concerning was the extreme personality change. I was literally acting like someone completely different, no inhibition and absolutely NOT MY NORMAL self!

Now I cannot drive far (sometimes not at all), grocery shop easily, be outside for any length of time if it is sunny and/or hot. I have to wear noise cancelling headphones and be ready for any sensory crap to trigger an episode. I cannot sit in the ice arena and watch my son play hockey without an episode being triggered by the sights and sounds. That was my favorite thing to watch and now it’s just so damn difficult. Over the winter just leaving the house was a crap shoot to which they respond with “so you are improving”. Ummm, I’m accommodating to try and function, not getting better. I was feeling well May 2024 and now my life is completely changed. The only thing that has happened is a decline since the RMSF infection June 2024. Why don’t they see this as an issue to offer a little more time towards figuring out? I worry about the long term sequel of RMSF, the cns/vascular inflammation, and why my neurological system is not going back to normal. I already have epilepsy and extreme headaches/migraines so I’d guess my CNS is already susceptible to any changes. Is this just my new normal?

Holy crap I just unloaded….I'm sorry

Hopefully my neuro’s colleague can offer more insight as to the why and how but I’m not holding my breath.

I am suffering with Lyme Disease again. I don't feel like doing anything. Seems like a big task just to wipe down the counters and wash the pots. So tired all the time!