Obviously you have so much loving support, which is wonderful. But on the other side.... what happens to muscles when they get stronger? They get thicker! So if your muscles are too loose, making them stronger seems like it would have to help. I dont know what your condition really is, and I dont know what doctors say, but I was raised with this crazy mentality of "exercise fixes everything." That is certainly not true, but this sure sounds like a place where it could help! If I were you I would talk to the best physical therapist in town. If your muscles strengthen, they will also help hold those little bones together.