Ah yes, I know MCTD well, I went through 5yrs of diagnostic heck following a bad case of mono as an adult to get MOST to agree its lupus, MCTD was in the running as was scleroderma, MS, and lupus. Honestly no one is still 100% sure its lupus, but its the "best guess," so I go with it, in some ways they can all fit...living with autoimmune is FUN! Honestly, I accepted the lack of a true diagnosis a few years back, I now go to pain management and have my blood levels monitored every 6mos. Most recently they found that ALL the disks in my neck have herniated due to spasms and the vertabre have started to shift(big no no, they can sever the spinal nerve causing paralysis), 2 of them are beyond repair and will be completely replaced with artificial later this month. I don't think that anyone realizes what all is involved in a complex autoimmune disorder, to the outsider, I probably look perfectly healthy and normal, no one knows it took a handful of meds and a lot of rest to get me there, nor how much daily pain is involved!
I am so sorry that you had to add so much more to it, that is awful!! I can't imagine adding more to all of this, it is enough by itself!! I too am a young autoimmuner, I am 34 with 3 kiddos(almost 12, 9, and an 11mos miracle baby, born after I had given up on more children due to 11 miscarriages attributed to lupus).
If you ever need any type of support, or just someone to listen who understands, I am here for you! I know how hard it can be on you and your family, I live it everyday and the worst is disappointing my kids. I also know that some days my husband(who truly is wonderful) gets frustrated with me as well and I don't blame him, I get frustrated with me too! I know all about the days when you want to do nothing more than cry because you attempted to do something you used to be able to do well only to find that you can't even start or you mess it all up and make it worse.
Animals are wonderful therapy, whether it be chickens, ducks, dogs, cats, whatever fits your lifestyle, they are wonderful companions and can make a bad day a bit brighter!! I love all of mine and can't imagine life without them! As hectic as they often make my life, I wouldn't have it any other way!!
((((HUGS)))) Will keep you in my thoughts and prayers!