Lupus nephritis

[sumi]

@sourland It's been awhile and I was wondering how she's doing now?

 

[drumstick diva]

Wondering the same - Sour

 

[dunnmom]

I will pray for this young girl, and your family. So young to be going through such things.

 

[sourland]

@dunnmom, thanks. @sumi and @drumstick diva, she's considerably better. IV antivirals have been stopped and her appetite is improving. Still has some mobility/balance problems and partial deafness in her left ear, but things are getting better. This is a kid who can't sit still and 'vegetate'. Being sick is driving her nuts, but she's dealing with it. Thanks for asking.

 

[sumi]

I hope she will make a full recovery and soon

 

[sourland]

Well, I wish things were better. Jen has lost all hearing in her left ear and still has some mobility issues. The Lupus meds have affected her thought/memory processes and she was asked to not return to college this semester. So she now has no school, no job and no improvement in her health issues.

 

[ShannonR]

I'm so sorry to hear her condition has deteriorated.

I didn't read all 16 pages, just part of it... but have you explored the gut biome in relation to autoimmune issues? Science can't prove it--just yet-- but more and more health research points to the gut bacteria being major drivers of all sorts of autoimmune issues.

 

[sourland]

I'm not certain. As grand parents our input is somewhat limited. Her primary care specialist is a department head in one of the Baltimore hospitals so I hope this has been considered. Her medical condition coupled with the fact that she is an adopted Asian child in a Caucasian family is making life tough for her. The fact that her sister is 'near genius' level just adds to the mess. I can't help, and it tears me up.

 

[ShannonR]

I'm not certain. As grand parents our input is somewhat limited. Her primary care specialist is a department head in one of the Baltimore hospitals so I hope this has been considered. Her medical condition coupled with the fact that she is an adopted Asian child in a Caucasian family is making life tough for her. The fact that her sister is 'near genius' level just adds to the mess. I can't help, and it tears me up.

Sorry to hear this. Lupus is a pretty complex disease, and I do hope all avenues and possibilities have been considered. I can't say by any means that dietary changes, or even something more drastic such as a mucrobiome 'transplant' would help but perhaps it's worth inquiring about. Even a small improvement would be amazing!

 

[Bunnylady]

Ouch.

My younger brother (the one I call 'the Ubergeek') was 'asked not to return' to the school of his choice, too. He went to a community college, earned a degree there, and found a job. Eventually he did return to Duke, where he finally earned his degree in computer engineering. As frustrating, disappointing and humiliating as it feels at this time, I pray that this is only a speed bump.

Being a full-time student is really tough. Maybe a lighter course load would be more manageable?