My leukemia's back.

[Cynthia12]

This is what our daughter took from their driveway! They got a pre evacuation earlier today. We have 3 children that live there..pretty close by each other. The fire has gone along their mountain range and now all 3 have had these pre evacuations. The firefighters have been great! They have worked hard keeping the fire from burning any homes!

 

[ronott1]

It is very close. It's been windy for days. The fire of course is loving that. Here are a few photos. 2 of the sky above me...looking up. The last one was taken last night by our little Salem pond..from the road. There are homes close by there! Most of our beautiful views are gone now. We travel that road a couple of cities over to see our children. It's all along that Ridge. I will probably get some photos of the areas burned after the fire is finally out. It looked like it was snowing lightly last night and today. Ash. View attachment 1534978 View attachment 1534979 View attachment 1534980

Amazing pictures!

The ash and smoke are terrible!

I hope you have a mask to keep the gunk out of your lungs

 

[drumstick diva]

Cynthia

 

[Cynthia12]

Amazing pictures!

The ash and smoke are terrible!

I hope you have a mask to keep the gunk out of your lungs

Oh, and my husband and I

Cynthia - do you have somewhere safe to go?

Have a daughter up north that has offered. We are just staying in as much as possible. Have to take care of the chickens. Plus, now they are starting to see smoke. 2 fires going on north of us...3 homes gone with one.

 

[Cynthia12]

On another note, I spent yesterday getting a PET scan. Usually, it's not too big of a deal. Yesterday evening, my feet hurt so bad, I had to take pain medication. I haven't had to resort to the strong stuff for almost a year. I don't know if it has to do with the storm, or if it was the radioactive dye, or a combination of the two, but I was in some serious pain. They're somewhat better this morning. Today is going to be laundry day. I need to get caught up on it, and I don't have to be on my feet too much. I've got a load of dishes already running, so I can get Dd to put them up later.

I was seeing something done with a pet scan for people with Dementia..was thinking about asking if my husband should get one. Not educated on this particular scan...may seem like a silly question...is using radioactive dye a normal procedure for this?

 

[getaclue]

Seeing the fire so close, like I said, I'd have my animals, birth, and marriage certificates, insurance papers, paintings, and paper pictures loaded, and I'd be gone.

Yes, Cynthia the radioactive dye is normal procedure. I get at least one a year, and have been getting them for years now. I've never had any problems with it. You go in, they put a line in your arm, draw off a little blood, check your glucose level, then come put the dye in. At the university where I have this done, they have nice little rooms, and a very comfortable recliner they do all this in. Then they bring in a warmed blanket. Normally, I lay back and go to sleep, but you can read, or play on a tablet, or phone. They come get me when it's time, and I get on the table that goes into the machine. I get the choice of having my arms over my head, or to my sides. I usually keep them at my sides. They bring this big strap up, and loosely secure you to the table. Then the table goes into the tube, which looks like a big doughnut, similar to a CT scan machine. I usually go back to sleep at this point. It sort of feels like laying on the back seat of a moving car. About 40 minutes later, they tell me I'm done, and let me off the table. They instruct me to drink extra water for the next couple days to get all the dye flushed out of my system. That's it. I go home.

As to my feet, it's the weather. I've continued to have some swelling, and pain, but it has subsided some. While it's normal for me to get mild pain with weather changes, it's been a long time since I've had a bad flare up. I suspect it has to do with the atmospheric pressure from Florence. While I'm not in the direct path, it's still causing major atmospheric changes here in Florida, which seem to have caused me to have a worse flare up than usual. I'm still having to take ibuprofen for it, but haven't had to take anything stronger since Thurs. night.

 

[Cynthia12]

Thank you so much for explaining it through. I was wondering how long it took. Next time we go in I will be asking the dr. if this scan could possibly help him see more than the MRI on my husband's condition. And...your feet? I've missed the explanation on that..sorry. I have peripheral neuropathy in my hands and feet. Is this what you are experiencing?

 

[getaclue]

Yes, I have peripheral neuropathy in my feet, as a result of the chemo. While I'm not always pain free, it's normally very tolerable. Changes in weather, and atmospheric conditions tend to cause it to flare up a bit more. Normally an ibuprofen takes care of it. Even though Florence didn't hit us directly, it did have an impact on our weather. A couple friends of mine have complained about increased neuropathy pain since Thursday too, so at this point, I don't think the PT scan had anything to do with it.

 

[getaclue]

Cynthia, how many chickens do you have?

 

[N F C]

Good morning Team Rachel

@Cynthia12 please stay safe, get out while you can. I understand about the animals, but your health and safety is more important.

@getaclue your educational issues brought back some of what we went through with oldest DS. Gifted kids fall within the parameters of special ed and are entitled to an Individual Education Program (IEP). Here's some info on it if no one has talked about it yet:what-is-an-iep

What I found is some teachers/districts are more "on board" with the program than others. My DS was in the gifted programs starting at 2nd grade and the biggest trouble we had was his 3rd grade teacher. She wouldn't work with him at all (her excuse was "well, if he's so smart blah blah blah"). After that, it took moving to a different school district to get him into the programs he needed. Fabulous teachers, great program, very supportive staff that wanted their kids to succeed.

Help is out there, keep pushing for the kids.