My leukemia's back.

[sourland]

Well, I'm feeling better enough I'm pretty sure the staff wants to vote me off the island. I swear it's been one mess after another. No organization, no communication, I honestly have no trust in these folks to take care of me. Feels like I've had to fight for my care all blessed day and I'm exhausted. If I've got to stay a week I'll have to get transferred back up to the university, this simply can't last.

Hope this morning is better. My gut tells me that you will 'straighten out' that hospital.


Blooie, prayers for Ashley.

 

[donrae]

Oh Blooie, I'm so sorry. She's adorable, what a gem. The transfusion should make her feel better at least and it sounds like they're moving quickly for a specific diagnosis. I'm a nurse and had no idea how many types of leukemia there are. Sounds like she's in excellent hands. I'll definitely be adding her to my prayer list.
I'm glad my story offers you some peace. God and I have had several talks about his plan for me with this disease. I'm not a confident evangelist but this disease has opened my ability to share my faith. I'm understanding I am where he wants me to be and everything that happens will eventually glorify Him.

But, He's still got to get me out of this hospital today!

 

[Bunnylady]

Praying for you, as always.


And Ashley, too.

 

[3goodeggs]

@Blooie . My neighbors' little girl was diagnosed last Spring (on her birthday- bummer of a party) with the same thing. Her out look is good. They have come so far with this.

Keep the faith, keep a positive outlook, and do not waste energy on worry. Use your energy in a more productive way,
We did not know what to do for them, so we took care of their yard last summer. One small thing off of their plate.


Children should not have to go through such scary things with needles and taps and...awfulness that they do not understand. Prayers for her as well.

 

[donrae]

So...had a very frank talk with my nurse last night. Told her my care had been sub standard, basic practice had not been followed and I was flat scared to stay. I felt I was far more at risk here than at home. She was appropriately unhappy and we discussed standard of care. She did a great job last night. Same talk with my day nurse, and same good results. I got both platelets and blood today, so that meant two doses of IV Benadryl....nap time! Honestly slept most of the day and feel much better this pm. Still no bed back up north, but I'm no longer scared to be here so it's all good.

 

[seminolewind]

Ahhh, you're a nurse. Then you know as well as I do that a person needs to be the expert of themselves and make those medical people accountable for what they do or don't do. I always tell people the squeaky wheel gets the oil. Glad you're feeling better after getting blood.

 

[Honey Maid]

Hey donrae! i saw your State of Jefferson thread a few days ago. Sorry to see you are stuck in a hospital :-(, As you can tell I'm a newbie here, but wanted to touch bases with another Jeffersonian and wish you well, hope you can beat that leukemia.
Talk to ya later!

 

[lazy gardener]

Rachel, I'm so glad you had that talk with the staff. There comes a point in time where being nice IS NOT AN OPTION!!! When your health is involved, you need to accept nothing but excellent medical care. Praying for you.

 

[quietheart]

Praying for you, just spent the last bit reading your thread. You are a light unto the world and I feel God has blessed me with reading your story.

 

[donrae]

Things are continuing to go well as far as the quality of care. I just give my little speech to each new nurse and all is well.
Now it's once again a waiting game for my counts to come back up. Personally, I'm thinking I'll be here until Tuesday or Wed, but the hospitalists seem to think it should be happening sooner. Makes me a little defensive at times....I was flippin POISONED, let's see you get over it in 3 days!! Anyway, lots of time for crocheting hats and being on byc