My leukemia's back.

Hi all...

Well, the surgery itself went well. Surgeon was happy, said it was textbook, etc. But.....

I'd talked with the anesthesia guy before hand, about procedures and meds I've had before and how they haven't worked well. I specifically said "When I had X medicine, I still have Very Vivid Memories of the entire procedure. It did not sedate me well".

so of course that's what he gave me. *******.

I literally cried and had the shakes the entire procedure. I told them I was freaking out and needed something. Was basically patted on the head and told it was almost over. He never once told me when he was giving me anything, not a word. I came out of there spitting mad, shaking, crying, pretty vocal about my displeasure. Got calmed down a bit talking with the nurse and the surgeon. Then the nurse really, really wanted me to talk to the anesthesia guy and tell him how I felt. That was not a great move. Smug ******* sat there and when I said I didn't know what he had done to help me, I could have just cried and shook all on my own....he looked at me and said "Yep, apparently you can do that quite well right now on your own"......*******
smack.gif
. Very few times in my life have I actually wanted to physically hit someone, but that was a close one.

I think the surgeon finally got the idea how upset I was when I told him I'd have another bone marrow biopsy before I'd have my other eye done.

barnie.gif


Okay......

Besides that. things went well. Got to hand with Honey. We went and looked at a property that's not for us. Watched some tv, just chilled together. Nice.

I think I like having some dilation to my eye. It makes everything bright and shiny
wink.png
 
Hi all...

Well, the surgery itself went well. Surgeon was happy, said it was textbook, etc. But.....

I'd talked with the anesthesia guy before hand, about procedures and meds I've had before and how they haven't worked well. I specifically said "When I had X medicine, I still have Very Vivid Memories of the entire procedure. It did not sedate me well".

so of course that's what he gave me. *******.

I literally cried and had the shakes the entire procedure. I told them I was freaking out and needed something. Was basically patted on the head and told it was almost over. He never once told me when he was giving me anything, not a word. I came out of there spitting mad, shaking, crying, pretty vocal about my displeasure. Got calmed down a bit talking with the nurse and the surgeon. Then the nurse really, really wanted me to talk to the anesthesia guy and tell him how I felt. That was not a great move. Smug ******* sat there and when I said I didn't know what he had done to help me, I could have just cried and shook all on my own....he looked at me and said "Yep, apparently you can do that quite well right now on your own"......*******
smack.gif
. Very few times in my life have I actually wanted to physically hit someone, but that was a close one.

I think the surgeon finally got the idea how upset I was when I told him I'd have another bone marrow biopsy before I'd have my other eye done.

barnie.gif


Okay......

Besides that. things went well. Got to hand with Honey. We went and looked at a property that's not for us. Watched some tv, just chilled together. Nice.

I think I like having some dilation to my eye. It makes everything bright and shiny
wink.png

Ugh, what an awful experience.
hugs.gif
Sorry you had to go through that. Maybe you should say you have a bad reaction to X, and get an allergy put on your chart.
 
Yeah, after the night I've had, Versed is going on my list of allergies. It may not be the classic "allergic" reaction, but I'm never ever having this drug again. I remember this from having that stoopid plastic port placed in my chest before transplant. It's seriously like a PTSD kind of thing. I keep replaying the procedure, and I know it gets all blown out of proportion. The actual procedure itself could not have been that bad. It just could not have. I know this.I keep telling myself this. But in my mind, it was indescribably horrible.

I found this statement on a website advocating against the med....

* Some patients experienced a distorted, nightmarish version of their procedure accompanied by feelings of abandonment and panic.

Well, I read that and totally burst out crying. I'm not crazy! Well, at least not as related to yesterday
wink.png
.

I'm still incredibly upset at the anesthesia guy. Not sure how far to go with that, but he didn't freaking listen to me.

Anyway...no sleep for me last night. Since yesterday was pretty much a wash as far as getting anything done, I've got a nice list of chores to work on today. Haven't checked the weather yet, hope there's some sunshine!
 
May not be a classic allergy, but definitely an adverse reaction!!

I didn't sleep well last night either, and I'm waiting for it to warm up a bit outside before I check the chickens water. 18 degrees is a bit cold for me, but the sun is coming up over the mountain and it should warm up fairly quickly. Tons of chores for me today, too!

Have a good day everyone.
 
Gads, Rachel, I'm sorry to hear that your experience was so bad. Sounds to me like you've nailed it, though - when I was reading what you said, I was thinking that my mother has had cataract surgery done twice (and this is a lady that is a dyed-in-the-wool worrier and really doesn't deal with pain well), and she pretty much shrugged it off. You've soldiered through all the horrors of leukemia treatment, and you're coming unglued over this? Something wasn't adding up, and a psychological reaction to the medication makes a lot more sense. You are not a hysterical crybaby, and that anesthetist is a jerk. If he deals in the stuff, he should be aware that such things are possible; sniping at you for having a reaction was not helpful.
smack.gif
 
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Rachel. You need to file a formal complaint against this arrogant doctor. Go to the medical board. No medical personnel should be allowed to totally deny the patient's experience, and be so condescending when they report their issues related to their treatment. You are a nurse. What would happen to you if you were the health care provider, and you treated a patient in such a manner: giving them a medication that they steadfastly insisted that they had had negative reaction to in the past, and then, blaming their reaction on their personality, when they had the same reaction, after you gave them the med that they insisted that they didn't want? He gave you that med without your permission, did he not? There were other choices, weren't there???????
 
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